-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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For some reason I couldn't open the link. But this topic has a profound interest for me.
My wife was thought by several neurologists to have ALS, though they tested her with EMG on her leg and "ruled" it out. And then her first llmd also "tested" her for ALS through some kind of blood work and also "ruled it out".
I am still confused why Lyme can be misdiagnosed to be ALS. I thought one tool to diagnose ALS is EMG muscle sensation test. Although nothing can be a bullet proof test but I heard from neurologists that EMG for ALS is relatively reliable - meaning that most ALS patients will fail the test. Do many Lyme patients also fail EMG test?
Posts: 822 | From midwest | Registered: Apr 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sorry wtl it works for me. It says 414 patients at
Mass. General Hosp were tested for Lyme disease.
24 were seropositive and only 4 had confirmed past
immunoreactive infection. Two of these patients
received ceftriaxone for (1 month) without
clinical improvement. Lyme disease was rare in
414 patients with ALS and is not likely to be
causative. Muscle Nerve, 2009
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
One month would not have put a dent in me either! So sad this even got published.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
"Seropositive" =CDC criteria? which has what? 80% -90% miss rate?
And they take people whose symptoms are sick enough to be ALS diagnosed , and run 1 month of monotherapy. They not looking and not researching, they fabricating stuff to fit their pre-existing conviction
I mean seriously imagine what would happen to current medical establishment if it turns out that MS, ALS and parkinsons were caused by known infection. And the mainstream organisations were ignoring research and mistreating millions of patients? -No one will allow that to happen
Posts: 856 | From MA | Registered: Jul 2009
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Borrelia burgdorferi is capable of producing a neurotoxic steryl glycoside compound.
And recently, there has been quite a bit of research that points to steryl glycosides as playing a role in the development of ALS and other neurodegenerative diseases.
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