Around thanksgiving, I was put on Ketek. Stopped after 2 weeks (doctor had another patient with liver issues, so he stopped me too). Went to Ceftin. I herxed like crazy. I don't like to throw that term around too much, because I never know what the heck is happening.
But I think it was a herx. Mental and physical. I had anxiety attacks that were just...unreal. And a huge exacerbation in physical symptoms. I got through, but my GI tract just couldn't deal with it. I tried to tough it out, but couldn't.
Started IV Rocephin last week. My days, especially the past few, have been very, very rough. Like, how-am-I-going-to-get-through-this tough. Heart stuff--I don't care how many heart tests I've had, it still scares me to no end.
My question is about what seems to be a cycle that's developed over the course of these abx. I don't have a 'clean' start on any because I switched a couple times. But I feel horrendous through most of the day, peaking in the late afternoon--can barely move, and feel very sick.
Oddly, though, by about 10 pm, I feel slightly better. And to be honest, kind of traumatized by what has happened in the day.
I have (I say this very cautiously) had some seeming improvements. Im less dizzy, less disoriented. Except for a few nasty spells of it. My heart isn't racing, but it IS pounding. Less visual issues, and also...I think I'm thinking more clearly in the times when I am not in utter misery/despair.
Also...after having a constant low body temperature for over a year (before that, when I first got sick, I had a fever for months)...my temperature is going up into the normal range in the evenings.
I read in Dr. B's guidelines that he had patients track their body temperatures through the day to help guide treatment, but I have no idea what the particulars of that are.
Anyway. I know that's all a bit all over the place--but the main question is....does anyone else have these periods of feeling just so incredibly, deathly awful, and then....it seems to fade?
In the course of my illness, I seemed to have had times where sometimes days were easier, and sometimes nights. Often getting more ill then at the OTHER times.
Any thoughts?
I'd also add, if anyone has any words of wisdom--theses 'herxes' or reactions to the medicines or whatever is going on....are scaring me hugely. I have NO clue where the line is that something really bad is happening to me, as opposed to some thing I just have to get through. And it doesn't seem like there's any way to really know.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
In the beginning of my treatment,
I had very few hours of "good" time.
Sometimes in the evening.
Sometimes in the morning.
Gradually though (over two months), so gradually I hardly noticed
I started to get a couple of good hours together in a day.
Then three hours. Then occasionally a half a day.
Then a whole day!
Give it some time.
I would call my LLMD and tell them what was going on.
Hang in there. It is scarey!
Hugs,
Geneal Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
When you said your symptoms are exzcerbated it sounded yo mke like herxing. Changing abx can cause it. And matbe the dosage is too high and causing a more violent herx. Try backing off. Herxing should be reduced. Then you'll know.
Posts: 51 | From Reno, NV | Registered: Dec 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
For me, I'm usually better first thing in the morning.
After being up and around for about 2 hours or so, the symptoms start stacking up.
In the middle of the day, I'm just wiped out and can't wait for my 2 year old to go down for his nap so I can put a video in for my 4 year old and just crash.
Funny you should mention Ceftin--I'm not officially diagnosed yet (see an LLMD in March), but I was on Ceftin for a sinus infection in December.
Within a day or so of starting it, I launched into massive anxiety, spaciness, shortness of breath, pounding heart, etc.
I thought, I hope I don't have this to look forward to when I start treatment!
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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