posted
Well, I just wanted to post some hope for some folks that are struggling wondering if it will ever get better. It does get beeter.
My symptoms have gone from 50 symptoms down to headache and stiff neck. I am functioning at 85 percent and starting to have some hope. Just one year earlier, I was only at 20 percent of health.
My LLMD took me off of all ABX for now. We want to see if the abx themselves were causing any issues. So far, after 5 days no change. I know it is still too early
We are also experimenting with muscle relaxtants and traction for my neck. I am not sure if the source of my headaches is not related to muscles. After this experiment, I have some intremix to see if my headaches go away.
So I am excited to give my body a break from abx. Who knows it may be permanentaly. That would be sweet!. The no abx experiment is to see if my conditions improve due to the removal of toxic effect/side effect of abx, or muscle relaxants or intermix.
Time will tel
If the bug comes out of cyst format, I will be ready to hit hard with abx. So this break can also be good from that standpoint. It is my hope that we all beat this awful disease.
-------------------- Dx 3/2008 Pos. WB and Bart- igenex Levequin 500 mg March 2008 Amox 6000 mg - May 2008 Doxy 400 mg - June - oct Biaxin and Flagly 1000 each, oct-dec Zitro, Malarone and Flagly Jan - feb Remission for 6 months Relapse Sept 2009 zithro/flagyl Posts: 130 | From canada | Registered: Mar 2008
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posted
Congrats on your progress, and thanks for sharing. It gives those of us in the thick of it hope. I would be ecstatic to get back to 85%.
Good luck!
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Bravo! I love to hear good news. Best of luck to you.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Good luck with this test period, Tony.
How long were you on antibiotics for? And how long before you began to see your improvements?
I'm on a shorter antibiotic break because of developing an allergic rash: I'm being tested next Friday for sensitivity to my abx [Rifampin, Zithro and Tindamax] and then will be given a desensitising 'vaccine' for when I resume.
10 days after stopping antibiotics, I feel little different and the -low- over-the -eyes headache I've only developed recently is still dominating.
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
This is great news!
Just an fyi, something my LLMD told me about headache and neck ache. He says people with LD have swelling in the brain and even after we are well, the swelling can remain for a good while, up to 2 years. I am sure some will disagree with this, but I find it interesting and something to think about. It could mean that just because you still have the head and neck pain that, that doesn't mean you aren't well.
Good luck! I hope you are on your way to full recovery!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If you start to notice symptoms getting worse again, restart antibiotics asap. I know this might seem obvious, but some might think they should wait until their next Drs appt, and in the process, get even worse.
I know this from personal experience. Posts: 975 | From California | Registered: Apr 2007
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Well, it has been 12 days off of ABX and I am feeling the same to slightly better. At the end, I was feeling very toxic.
My remaining symptoms are headaches, stiff neck and head pressure ( mild now, can be extreme) What my LLMD wanted to do is to see if the headaches went away thru the elimination of abx and or treatment of my neck (massage)
I even purchased a cervical traction device which I will start on Wednesday
It is a nice break from abx. I am not sure if I will relapse, but I am enjoying my break.
I am seeing my naturpath on Wednesday to work on suppportive treatments and ways to boost the immune system
-------------------- Dx 3/2008 Pos. WB and Bart- igenex Levequin 500 mg March 2008 Amox 6000 mg - May 2008 Doxy 400 mg - June - oct Biaxin and Flagly 1000 each, oct-dec Zitro, Malarone and Flagly Jan - feb Remission for 6 months Relapse Sept 2009 zithro/flagyl Posts: 130 | From canada | Registered: Mar 2008
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Congratulations!!!
I hope you can put this disease behind you for good.
A real good idea, building up the immune system. Take plenty of Mg and probiotics since the most of the immune system resides in the gut.
Let us know how it goes, for better or worse.
Good Luck.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
This is sounding very promising, Tony!
Please continue to keep us posted and GOOD LUCK!
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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