posted
Ok here is my list and I am positive i am forgetting some
Vitamin D3 Vitamin C Vitamin B12 Vitamin B Complex Vitamin E Multi Vitamin Calcium Omega 3 oils Flax See oil Colostrum Bromium 5 HTP Melatonin Probiotics Milk Thistle Ginger Salt
Artemisa Oregeno oil Olive oil L Lysine
Fiber Supplements Metamusal
Tiger Balm Arnica Cream Coconut oil
Camomile Tea Detox Tea
Tea tree oil
Medications I forgot Miralax Aleve Asprin Advil Benadryl Zyrtec
posted
A little bit of background information about myself first. I have had Lyme disease for over 20 years - undiagnosed until two and a half years ago. I have gone a completely holistic route - no abx (it is almost impossible to receive treatment for Lyme disease in Canada, so I didn't have a lot of choice.)
I am about 80-85% better than five years ago when I was very ill. I work full time, bike to work almost every day and go to the gym on weekends.
Most essential supplements:
-Vitamin D 3 - approximately 5000 IU daily in winter. Try to get it through sun in the summer. -Herbal formula energy tested for me -Magnesium citrate - taken to bowel tolerance -Digestive enzymes
Very important supplements -Grapefruit seed extract -Oil of oregano -coconut oil -sarsaparilla tea -essential fatty acids -acidophillus -bromelain
I have cycled on and off numerous supplements over the years, some of which have been energy tested for me, but the ones above are my top picks.
Other essential aspects to getting well included: working out regularly (which I couldn't do for 3 years), juicing every single morning, low carb diet, no booze, no coffee and very little sugar and gluten or dairy. I am not cured, but I am WAY better.
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Wobenzym Vitamin D-3 (Now Brand) Various Probiotics Psyllium Husk Fiber from Organic India Tulsi Tea from Organic India (for adrenals I think) Mitochondrial Resusitate from Metagenics ElectroMix as needed B complex Vitamin C Sea salt as needed for energy and hydration E-Lyte brand Chlorella
Posts: 4590 | From Midwest | Registered: Jun 2008
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ajisuun
Unregistered
posted
Cat's Claw Mangosteen Calcium B complex Multivit Feverfew Green tea Curcumin
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posted
I would think (and hope) that Probiotics is the most common supplement in the Lyme community.
Posts: 371 | From CT | Registered: Jun 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Probiotics
Was taking some of the supplements recommended in the book Healing Lyme, but ran out of funds.
Xango (donation from others)
Isocort
Detox Tea
Ginger Tea
Some kind of tea to help with sleep
If I had the funds I would add:
Reservetrol (Possibly Vivx with Shaklee)
B Complex Vit C Ginko Biloboa
A good vitamin (possibly Shaklee's)
The two supplements that start wtih an A from "Healing Lyme"
Ok Brain is going..will come back later
Doc just suggested several supplements and will list those.
But, don't have the funds to get them right now.
Glycine (montiff), melatonin, glycine to fall asleep, melatonin to go back to sleep
Samento bandero quina
Teasel Root (10 drops 3 times a day) Red Root (30 drops 3 times a day) Bone Set (30 drop 3 times a day)
Helps with Bartonealla, cognitive and ?
Brain function: Phosphotidyl Serine
I also would like to add the Trace Minerals from Cowden and the detox stuff from Cowden
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Acidophilis 2 pills or more Yogurt no sugar added Magnesium 500mg B12 injections B12 vitamin this or that B12 vitamin sublingul Bcomplex vitamin Multi vitamin Melatonin as needed CQ 10 Adaptogen Rhodiola rosea not lately though Bernard Jensen Black Cherry Concentrate gout help
Want to take
D3 vitamin IP-6 is naturally found in grains Phosphatidyl Serine formula Lecithin Stop fatigue D-Ribose Powder SAM-e (S-adenosylmethionine) L-carnitine which needs L-tryrosine and L-methionine Malic Acid Calcium Amino Acids Enzymes Minerals
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
B-complex, B2, B3, Pantothenic acid (B5), Folate, B12 sublingual, Vit C, Vit D w/vit A, Vit E
Iron (for deficiency), Magnesium, Calcium, Selenium, Zinc, Copper, Multimineral
DIMension3 & OncoPlex (will have to stop taking these when the bottles are empty. can't afford them anymore)
Theralac & Ultraflora (will switch to a cheaper brand when these run out)
NAC ALA Milk thistle Multi Omega (3-6-9) Caprylic Acid
Will be adding melatonin soon for it's anti-demylenation properties. help with sleep is a bonus.
Should probably add a separate B6 supplement in there too. Next shopping trip, maybe.
Pau d'arco tea Tiger Balm/Badger Balm Olbas oil
Pretty sure I've forgotten some things
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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posted
Various Probiotics Magnesium B-Complex Alpha Lipoic acid Co-Q10 fish oil EFA - Flax seed oil Glucosamine Vitamin D
Mangosteen Juice Organic Ginger & Lemon Tea Lemon water Olive oil Oraganic Green Tea Organic Echanecia/Green Tea Oraganic Coffee(one cup per day/no sugar) Epsom Salt baths
Am considering adding in Resveratrol and Milk Thistle.
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Current Supplements
Advanced Inflammation Control 1 caps twice daily Bio-Inflammatory Plus 2 caps twice daily GastrAcid 1 cap w/each meal Digestin 1 cap w/meal Pectasol 1 cap twice daily Pectasol Detox Complete 2 twice daily Pure Vit C 1000 mg daily Chlorella 9 pills daily Liver PF 3 caps daily Probiotic 2 caps daily away from doxy Calcium D-Glucarate 3 caps daily CoQ10 200mg daily NAC 600mg daily White Mallow 1 caps before bedtime Maiden Barber 1 caps before bedtime Super Vit B Complex 1 cap daily Limbic Balance 2 caps nightly Silver shield as tolerated Vit D3 5000 IU daily Glutathione Suppositories 1 every other day Need another batch Ultra Balance 1 Parastat
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Probiotics - ROTATED in combination
Iflora 20 billion/8 strain Probiotic 1 x a day in combination with others or (3 x day)
VSL#3 - 225 billion cultures/10 strain 1 x day or
Renew Life Ultra Flora Critical Care 1 x a day 50 billion cultures/10 strain ------------------------------------------------- Dose per day:
Prima una de Gato 1,125 mg(cats claw)- Allergy Research
Grapefruit Seed Extract 500 mg - by Pure Encapsulations
Bromelin 2400, 2,000 mg - Pure Encapsulations
Olive Leaf Extract (Pure) 2 x day- Seagate
AIG Immune 600 mg- Body Wise
Oregano 1,125 gm- Oregamax
Super B complex 100 mg- honey tree brand
Magnesium - Mag Ox 400
Rainbow Lite Women Only Vitamin
Lemon Water Listerine Mouthwash Bleach Rinse
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
acidopholus green tea mangosteen willow bark extract salmon oil capsules ginger garlic turmeric
Posts: 797 | From New York | Registered: Feb 2008
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bettyg
Unregistered
posted
take only multi-vitamin pill daily
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Along with many others already mentioned here, my LLMD recently started me on:
Transfer Factor -ImmunePlus by Researched Nutritionals. Will probably move on to the Lyme specific one after a while on this one.
My CD-57 was going lower an lower and this is to help my immune system get going on it's own. What a novel idea!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
The supplements I'm taking:
Transfer Factor Red Yeast Rice - for extremely high cholesterol (and I'm only 25. ) Vitamin D Vitamin C Vitex Multivitamin Calcium Magnesium Fish oil Primrose oil Iron (very low ferritin) B-Complex CoQ10 (but not while I've been on Mepron) Iodoral Selenium (haven't taken this for a while) NAC (don't take this as much as the others) organic freeze-dried garlic (but not all the time) probiotics
Oh, on the herbs side I've taken and take every so often now:
I think that's about all of them... most of them, at least.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
. 20 gms sea salt p/day
..20 gms Vitamin C p/day.
..crushed garlic.(with food)
..crushed ginger(with food)..
..crushed jalepeno peppers(with food).
..lots of yogurt.....
.Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
let's see...
magnesium fiber probiotics lymph cleanser vitamin b vitamin c fish oil coq10 multi vitamin glucosamine calcium vitamin d digestive enzymes
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Holy smokes...y'all must have some serious $$$ for supplements when I see these lists! Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Alpha Lipoic Acid/Acytle L Carnitine combo Probiotics -such as Primal Defense Transfer Factor Salmon Oil, Borage Oil D3 400/dy - will try to ramp up to 5000/dy Super Curcumin Vit C by Apple Poly, or - Super Bio-C buffered by Solaray CoQ10 Grapefruit Seed SAM-e Milk Thistle Ginko B 12 shots 2 time/month Phosphytidlecholine and Glutathione shots 2X/month Mangosteen Juice or Mystica (but it's expenseive, won't re-purchase) Digestive Enzyme w/each meal Resveratrol Chlorella Lysine (to counter arginine) Gaba + Zinc Activated Charcoal - evening meal only Calcium/Magnesium in evening Super Amino Garlicque or Caprylic - sure helps Candida
posted
probiotics - healthy trinity Ultra mangosteen juice noni juice (anti-tumor) grape seed extract (anti-tumor) Vit C - powder quercitin bromelain papain
I've tried a lot of supplements but I'm allergic to most so don't have a long list.
Posts: 13116 | From San Francisco | Registered: May 2006
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Pro Omega Fish Oil Chlorella MSM Magnesium/Potassium Calcium B-12 sublingual Vitamin C Serrapeptasse HCL Melatonin Multiple Vitamin Milk Thistle various probiotics Lithiate Selenium concentrated Trace Minerals in my RO water
Posts: 1761 | From USA | Registered: May 2006
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
quote:Holy smokes...y'all must have some serious $$$ for supplements when I see these lists!
I spend my dollars where it works.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I try to spend my $$ where it works too.... wish I knew for sure just where that is. In the meantime I am taking alot for my neurolyme brain and really feel that *these things are helping.
Probiotics 2x2 Magnesium Concentrace minerals biotin (hair loss) B12-500 - 1000 B6 50 Vit C 0-3000 CoQ10 30-90 mg *Lithium Orotate 120mg *Huperzine A 200 mcg 1-2x *Vinpocetine 10 mg Resveratrol 80 1-3 X
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
As I understand it, Codex will take all of this away from us for good on December 31, 2009.
Supps. have helped me SO much, that I will die when that happens, which is exactly what they want....to get rid of the "useless eaters". (See New World Order Agenda 21 if not familiar with this horror).
Their own estimates are that 3 billion people will die when their standards are implemented. Until then, I'll continue taking:
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I take 2 store-bought supplements (and then several bulk herbs that we make 2 teas from):
1. Theralac probiotic 2. Carlson Cod Liver Oil Super (1000 mg 100 Softgels) for natural Vitamin D - I can't take OTC synthetic Vitamin D as it makes my bones hurt very badly.
Food is just as important as supplemets to me, so I will mention that the majority of my diet includes wild salmon about 2-3 times a week, leafy greens like collards, mustard, turnip, and kale, cooked either in homemade organic chicken stock or sauteed with garlic and thyme and pine nuts.
Lots of real wild rice. We also mostly eat free range organic chicken and sometimes grass fed organic steak - if you look locally you can sometimes find local farms that have great prices on grass fed beef cuts, poultry, eggs, dairy, and organic produce - I have some resource links and more info if anyone is interested.
We eat greens almost every day, and lots of veggies. Only wild caught fish - farm raised is the worst for mercury and chems. I eat an egg every morning because I have crazy low blood sugar and need the protein.
Things I absolutely can't have (personally):
NO alcohol NO caffiene (including any chocolate) NO milk and most soft cheeses or yogurt (I developed a sensitivty to it over the last couple years) NO tomato sauce, though a raw tomato slice or two treats me ok (tomato sauce is very acidic and hurts my stomach/causes GERD flare) NO spicy foods (until I get better of course!) *very* little sugar
We try to only get organic as possible, but it can get expensive. Our garden flopped this year, otherwise we could have had all organic produce for 4 seasons for very cheap.
My husband has been making me 2 herbal medicine teas. We buy the herbs in bulk, and try to get only organic and/or wildcrafted herbs. Many of these can be grown easily in most temperate zones - we will be moving soon so we don't have an active herb garden now.
Stomach Tea: Since I was dealing with a stomach ulcer for a long time, and I have bad acid reflux/GERD, I needed extra help with taking meds which made it hurt more.:
Chamomile Marshmallow Root Slippery Elm
Detox Tea: This helps me IMMENSLEY, with the intent being to bind and remove the toxins from Lyme and its die-off, and helps my body lessen the ill-effects of antibiotics etc.
Sarsaparilla Wintergreen Birch Bark Chamomile Licorice Root (very small amount of licorice - too much makes me herx very strongly)
I take a combo of half and half of each tea in a mug every morning after breakfast and every night before bed. If I miss the detox tea I notice big time - too many symptoms to list here.
Also, the stomach tea helps greatly if I start having my ulcer or reflux problems, so I drink that occasionally during the day if I ate something that bothered me, etc.
edited to fix for neuro-lymies (I should know better, I am one! very sorry everyone.)
posted
Cilantro Salt/C Multi vitamin Rainbow light Vit E Candida Cleanse Rainbow light coconut oil
That's it for now. I've cut way back on my supplements. And haven't noticed a difference except when I started taking the salt/c And cilantro. I only kept the ones that I feel a difference on something
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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Acetyl carnitine Omega 3-6-9 CoQ10 L-tyrosine L-glutathione New Chapter Tiny Tabs New Chapter Pro Biotics Kombucha - a tiny bit Digestive enzymes Charcoal at night for cadmium poisoning Magnesius aspertate {Berber Cap Isatis Morinda} for a viral thing I'm battling B complex Vit D
One of these buggers was making me nauseous but now that I'm on abx, it hardly matters to me.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wow, there are just SO SO many supplements listed here. It must be a full-time job popping them all every day! Is anyone taking 100 pills+ a day?
I take supplements too, but the sheer volumes shown on this thread amaze me.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
ELECAMPANE drops seem to be actually NEEDED for me for babesia (along with Mepron/Zithromax), i think; just my feeling; (that's a sbustitute for the Nutramedix Enula).
LOMATIUM drops i take as antiviral, it really kills my potential Herpes outbreaks, which i don't get thanks to Lomatium.
Cardamom for babesia.
Pau d'arco drops have naphthaquinone; isn't that the same stuff as Mepron, atovoquone?
Artemisinin 3 or 4 days a week.
Iron--Dr J S writes that for Artemisinin to be effective, your Ferritin should be at least 45; and since i was anemic, i take a lot of iron pills
Strontium for osteoporosis Vit K2 menaquinone-4 (called Menatetranone)for osteoporosis
Calcium Magnesium Vit D3 Boron,Zinc,Selenium B-50s Biotin 5 mg Folic Acid 2000 B12 Vit C Choline/inositol Lecithin Glucosamine curcumin Allimax (expensive, but have to have it to prevent yeast problems)
Andrographis Sarsaparilla Neem pills Pau d'arco pills Gotu Kola Eleuthero Ginko Propolis Horsechestnut Peppermint oil pills Oregano oil pills, sometimes Digestive enzymes lactoferrin Rhodiola Quercitin Calcium-D glucarate EGCG Nettles tea, not always Green tea Apple pectin Cilantro extract drops
lysine sometimes Indole-3-carbinol Vit E sometimes Broccoli pills sometimes fish oil pills sometimes Betaglucan sometimes Colostrum pills if urgently needed,--- works! (Bovine)Immunoglobulin pills sometimes (causes inflammation, don't know if they do anything good)
Quina drops, have as backup Cryptolepis,have for future tx Cumanda, no reaction from 45 drops! Noni, once in awhile(alkaloids hurt my tendons) Cat's claw, once in a while (alkaloids hurt my tendons)
While on Mepron, i had to stop taking most of the antioxidants except once a day away from the Mepron. Is that correct?? Big problem and unknowns about the Mepron, whether and which antioxidants are allowed??? Dr J S writes that it's a problem, and he hopes for future resesarch.
from pamois.
[ 16. December 2008, 07:01 AM: Message edited by: pamoisondelune ]
Posts: 1226 | From USA | Registered: May 2007
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
Fish Oil Evening Primrose Oil CoQ10 B-6 B-5 B100 Complex B-12 sublingual Milk Thistle Multi vitamin Ester C Grapefruit seed extract Mag Tab SR
Vit D-3 Zinc Andrographis Olive leaf extract Theralac, Culturelle and various probiotics
Posts: 1487 | From New England | Registered: Oct 2000
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
daily vitamin vitamin B complex magnesium silymarin vitamin D3 probiotics klonopin for minor seizures
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8879 | From Illinois | Registered: Aug 2004
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posted
Tincup, When you do get your 100 listings, will you want help creating this into a document? I'll volunteer, but suspect you've got it under your wing.
Also, when the document is completed, will it be posted anyplace or can the participants gain a copy?
Now Foods, 8 Billion Acidophilus
Posts: 45 | From western kentucky | Registered: Oct 2008
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bettyg
Unregistered
posted
wow, wantabe, 52 pills daily! i have problems getting them down and would take most of day to do so.
up for more weekenders only members...
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DebAz
Unregistered
posted
Hello.. Tincup. I was wondering when you make the list is i possible to sort them out as in .. what they are mainly used for.
For instance right now I am doing research one which ones are for parasite cleansing.. which ones help virus.. Which are anti bacterial.. Which are anti fungal..
And so on....
That would really hep as we sort through.
As well which ones are for Detox help Adding to nutritional support.. IF they have a mechanism that is known to do something such as work against or for something else.?
Am I asking too much?
I am doing reading and researching and it is a lot of work and when I see someone mention a new supplement of some sort I try to keep a log and I try to research it ..
then I am trying to choose from there a protocol of my own without guessing or taking things that do not make sense with one another.. or so I do not overdo one thing or another. and so on and so forth.
Deb I would be willing to help out too .. if you would like.
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
GraceT and DebAZ..
I was sitting here crying till I saw your posts.
It is NO secret I am a horrible organizer. I DREAD having to sort through this stuff.. but since I need it I would have to try.
If you all want to help... Praise the Lord and YIPPEE!!!
You couldn't have said anything more magical to my ears.
And yes.. I want this final product to be used by anyone and everyone... so a group effort here is VERY much appreciated.
If we can get 100 responses... that is just a good round about number and enough to get a good sampling....
Then we can chat and share duties.
I'll be offline shortly for a few weeks. Hopefully there will be a lot of responses by then. When I get back online.. you'll see me stumbling around... remind me and we can work on it.
And thank you for offering. I think we will have a good final product that can be used in different ways.
PS.. Betty G.. thanks for keeping this post up top.
probiotics (about 3-4 brands) kefir multivitamin (iron free) magnesium tablets (magtab SR) alpha lipoic acid serrapeptase vitamin C fish oil
Posts: 300 | From Northeast | Registered: Dec 2006
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bettyg
Unregistered
posted
up for those who have time between christmas and new years to answer and contribute to tincup's latest poll for whatever project she is working on now!
looks like another 50 plus people to add what they do. bg
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Iron magnesium b complex b12 sublingual b12 injections\ b 6 IV GLutathione adrecor fish oil theralac ultraflora df s. boulardi transfer factor avea
Posts: 3905 | From USA | Registered: May 2007
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posted
Aged garlic caplets Oregano oil Omega-3 Probiotics (VSL#3) S. boulardii (Florastor) Vitamin D3 Vitamin C B Complex Multivitamin Magnesium glycinate Milk thistle NAC ALA Ginger capsules Host Defense by New Chapter (cordyceps, reishi, etc.) Ortho-Adapt (AOR) Chlorophyll super concentrate
Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
This is a good thought...making a list of what supplements we most use and what works the best...however, someone else mentioned Codex and the desire by corporations to take away our natural supplements.
I know we all talk about what we use anyway here in an informal way but it just struck me today that because this list is public and I'm sure there are different factions monitoring it....that we need to be careful as to what information we give away. We also give away very private info about ourselves...basically our medical histories
Posts: 1176 | Registered: Oct 2002
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posted
As of now, we are protected from CODEX by the 1994 DSHEA bill which classifies supplements as foods. If they were to tamper with that bill, then we'd be in trouble.
Some good news: Health Freedom just got voted into the list of ten top national priorities for the new administration.
Now they want our input on each of these priorities, to develop some national policies.
So...we can go and chat about what health freedom means to us, including as Lyme patients, as users of supplements, etc. Go see my post in Activism on it.
Posts: 13116 | From San Francisco | Registered: May 2006
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