posted
:confused: I had an endoscopy and a colonoscopy yesterday, and today I have pretty severe cramping in my gut and really hurts in my lower back, kidney area.
I had to do two preps of golytely and magnesium citrate, along with six enemas to clear it all out, all over three days with a clear liquid diet the whole time.
I really hurt, and was wondering if anybody else had this, and if I should worry. I don't want to be the whining patient.
The surgeon said that I have autoimmune gastroenteritis in my upper GI and the lower GI, colon and intestines had some spots, but "nothing to worry about". What's so difficult about that diagnosis, is that they want me to take steroids to suppress the immune system to quiet the gut, but that is the exact opposite of what I should be doing for the lyme. Any ideas?
In His care, Jenn :confused:
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
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bettyg
Unregistered
posted
jen, BOTH PROCEDURES SAME DAY! to me that was completely wrong!! but it's after the facts.
way to hard on your body although and you had to have 2 PREPS!! and 6 enemas!!
they would have photos or something along that line, i'd want a copy of whatever they took!!
spots seen but they don't mean anything ... i do NOT buy that one at all!
that area could be cancer! so i'd want to definately know more than they told you.
why would it be necessary to do both procedures same day??
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I had a colonoscopy without any deadener of any kind and I was bleeding and in pain for several days afterwards. I was in a lot of pain during the procedure too.
I called the hospital the day after and told them. They said that shouldn't happen and if I had pain after a few days to call my doctor.
I'd call the place where you had the testing done and tell them what you are experiencing and see what they say you should do about it.
Gastroenteritis means you are inflammed. The prep and procedures likely caused some irritation especially since inflammed tissue gets irritated easily.
Gastroenteritis can be caused by infection. Have you been completely worked up for infections? Lyme is a culprit in autoimmunity from what I've read and seen. It's possible that lyme is causing an autoimmune componenet and once you are treated, the autoimmune problem will go away.
I'm with betty - I'd check into this further. I'd discuss it all with my LLMD or other trusted doctor first and see if you can get some help making a reasonable plan of action.
Also consider getting some testing through an alternative practioner. Sometimes they can pick up infections that allopathic testing cannot.
FIRST though, I'd make sure it's not something more serious, not that infection isn't serious but... Not to scare you but my aunt is dieing of colon cancer despite her many efforts to get her doctor to help her figure out her gastro problems over the course of a year. They dismissed her problems telling her not to worry. Not once but repeatedly.
She finally went to the emergency room and they found that she had cancer and it had spread to her liver! Had they caught it when she first asked them to help, her prognosis would be very different.
I'm certainly not saying that you have cancer or anything that dire but please make sure you consult with someone you trust and have everything checked out.
I would certainly NOT take steroids. That is their answer for everything autoimmune when it seems that many autoimmune problems are actually infections!
An alternative practioner would likely be able to help you deal with this without steroids. Look for an ND (with good credentials) who specializes in gastro problems.
posted
Thanks so much for the advice. On your calling and alternative practitioner, I made an appointment with a Naturopath and Accupuncturist. Hopefully she can advise me as to if it is an infection.
Today was better cramping wise, but I still had red blood in my stool...sorry if that's too much information, TMI, but just in case somebody think's that's abnormal.
I think I'll call on Monday and make an apointment with another GI doctor for a second opinion on the spots that they saw. I really hope it's nothing. I can't handle another mine field. I'm already tired from running this marathon.
The reason they did both in one day is because Vercet doesn't work by knocking me out and erasing my memory. I learned that the hard way. So because of that, they put me under and did both the same day. I didn't say this earlier, but the first time in the morning they put me under, did the endoscopy, tried for the colonoscopy but I still had a little stool. So the woke me up, gave me all the enema's to rinse it all out, and put me under again to finish in the afternoon.
I think that piayed it's toll in how I felt.
THanks for all of the loving support! I really appreciate all of the love you guys give me! I love you all and really do pray for all of you every day!
In His care, Jenn A tick check a day keeps lyme away!
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
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posted
What symptoms were you having that led to these procedures being done? How long have you had them?
I had both done at the same time when I had upper right quadrant pain. They would have done just the endoscopy for that but I got them to do the colonoscopy at the same time.
I would think those procedures would rule out cancer in those particular areas.
My diagnosis from the procedure was gastritis caused by reflux and they prescribed an acid reducer. Frankly, I was skeptical about it being due to acid reflux but I took this for a while and didn't notice a change. I decided my problem might be part of my Lyme symptoms (I was not diagnosed with Lyme at the time) or a food allergy problem. I am gluten intolerant so it was possible I was getting some gluten somewhere without knowing it.
I worried for a while that my pain was autoimmune and would get worse but it didn't. It has even gone away. There is a doctor who specializes in gluten intolerance who feels that the autoimmune process is triggered by gluten in those who are sensitive, so I figured I was doing what I could about that anyway. If you haven't already, you might want to check out celiac disease/gluten intolerance.
I didn't have your symptoms after the procedure but I did have a massive headache and nausea for 2 - 3 days.
I don't think I would take steroids but would consult with a more natural doctor and/or my LLMD.
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I would think that a sample/speciman of each area will be sent to a lab to be analzed to rule out cancer.
My gastric inflammed tissuee were supposed to be checked for a long list of bacteria that I gave my gastro doc (he's a friend) and everything came back neg.
I really found it hard to believe that the lab didn't/couldn't identify bart, lyme etc. But hey some labs wouldn't know these guys if it smacked them in the face.
I would make sure your doc knows about the bloody stools and any other issues you are having.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had both done at same time cuz i only wanted to be put out once
i have a history of ibs and severe pain when waking up from colonoscopy
this was a new doc and i didn't like him-wouldn't talk to me-
as i was waking up nurses told be a had a hard time and an awful lot of meds-they kept repeating it-including iv fentanyl
i was ok at first-but had the same symptoms you had for almost a week:
"and today I have pretty severe cramping in my gut and really hurts in my lower back, kidney area:
i also have a slightly deformed colon where it takes the right angle turn-and i tried to tell the doc that but he ignored me. i think he just was too ruff. i called and they said it was normal to feel that way.
it went away after a week-but i know ppl who have no pain at all and don't even go to sleep so i don't think its normal
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
man oh man...i'd never do that. i have severe ibs, and diverculitis, plus colon polyps...which were removed.
all that prep has more than likely irritated the hell out of you. i can't do that liquid so i take dulcolax due to the vomiting.
my gastro would never put me through that.
i'd say find another damn doctor and quick....
i always feel like a horse kicked me in the stomach and lower intestines after i have one. but it usually goes away after a few days.
don't wait tho.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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