LymeNet Flash: When to switch from Bicillin to IV abx?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » When to switch from Bicillin to IV abx?

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Topic: When to switch from Bicillin to IV abx?

AnnaL
LymeNet Contributor
Member # 18464

posted

A little history:

I was on oral abx for six months, with very little improvement.

My LLMD then put me on Bicillin injections. I am also on Flagyl (for cysts) and Levaquin (for bart). (Plus anti-yeast, various supps, etc.)

I'm definitely feeling worse since starting Bicillin, but I don't know if it's "herxing" or not, or if the Bicillin is really helping.

I was wondering what the experience of others has been.

How long should I keep trying the IM injections? Is there a generally agreed upon point at which one moves on to IV abx?

Thanks, all. I'm just trying to get a handle on what my future might hold.

-AnnaL

Posts: 398 | From By the Salish Sea | Registered: Dec 2008 | IP: Logged |

swachsler
LymeNet Contributor
Member # 18155

posted

Anna,

I have the same question! I eagerly await replies.

I've been on Bicillin 5 months. Was 3xwk, now 4xwk.

I get a lot of herxing from it, but I am torn between thinking I really need IV Rocephin to deal w/neuro Lyme and fearing possible complications.

-Sharon

Posts: 223 | From Western Mass. | Registered: Nov 2008 | IP: Logged |

hcconn22
LymeNet Contributor
Member # 5263

posted

I did bicillian 1 shot a week for 16 weeks and saw no improvement. My new LLMD said that 1 shot is like water-- will not do much.

I got a PICC line monday-- and can not report on that. But the bicillian shots for me were very painful

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004 | IP: Logged |

AnnaL
LymeNet Contributor
Member # 18464

posted

I'm currently on 3 shots of 1.2 MU per week.

The shots are painful, but not overly so for me. Luckily, I have a high pain tolerance and previous experience with multiple piercings and tattoos. [Smile]

My main concern is that, well, I think it's what all of us are thinking--I want my life back! I want my brain back!

It's so difficult to figure out how aggressive to be (and when), in balance of risks and benefits.

Posts: 398 | From By the Salish Sea | Registered: Dec 2008 | IP: Logged |

mandy614
LymeNet Contributor
Member # 16524

posted

After 5 months of bicillin my llmd suggested IV Rocephin. Not sure how long though. I've only improved 10-15% in the past 8 months.

I'm excited to try it. I'll do anything to get my brain back.

Posts: 348 | From maryland | Registered: Jul 2008 | IP: Logged |

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