seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I had this tested in Jul-08 and Sep-08. Both times my score was 54. I started Abx in mid-Aug 08. I have been off of them for 30 days now.
My ID doc ran it last week. Depressingly, my score dropped to 30! This helped him believe Lyme may be my issue along with my recent more positive WB from Igenix.
Would being off Abx really bump your CD-57 down. So much for thinking 5.5 months of orals did anything for me. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Well, you could look at it that they antibiotics DID do something for you....they kept the score 30 points higher.
I bet the "answer" is to just not go off them until the CD57 gets above.....was it 120? Whatever the score was that Dr. B said patients need to get to before stopping antibiotics. At that kind of a score, the thought is that your body actually has a fighting chance.
My current LLMD also believes in "immune stimulation." I don't know what exactly this entails yet, because it's one of the things we are going to talk about more "down the road," in later appointments. My guess is it's something like Transfer Factor (Chisholm Labs is supposed to be a fabulous brand).
Good luck seek. Just don't go off those abx until you think your body is ready to take over. And, keep your immune system strong by keeping your gut strong (probiotics, the right foods, etc). I have been doing a lot of reading/research lately, and some components of our immunity are literally in the gut.
I believe the GI is an area hard hit for Lymies because we douse ourselves in antibiotics (but for now it's the best answer...it's just unfortunate the damage it can cause).
Posts: 4590 | From Midwest | Registered: Jun 2008
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Why did you stop the antboitics? Did you feel better or did the doctor just feel it was time to quit??
How did your body feel when the CD count was high, vs. when it was lower??
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Also, here is another thing to keep in mind......
Some LLMDs don't believe this, but others do. (I tend to believe it):
If your CD57 starts to climb back up to where it should be, but you don't feel better, don't get discouraged and think you haven't made progress.
There are only a select number of infections that can cause CD57 to be low. (as I said, this is a theory some llmds believe and some don't) If your numbers go up and you don't feel better, it is likely because you have other infections like babesia is one example, or bad yeast from antibiotic use.
So while of course it might not be an accurate gauge of how you're feeling because of other infections/other factors, it can be seen by some as an indicator of how much of a factor Lyme itself is, or possibly a few other "stealthy" infections, depending on who you believe.
Posts: 4590 | From Midwest | Registered: Jun 2008
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