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» LymeNet Flash » Questions and Discussion » Medical Questions » Diet--the missing link for me?

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Author Topic: Diet--the missing link for me?
adamm
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As some of you who've read my posts know, I just hit the one-year
mark in treatment with abx recently, and so far have experienced
no improvement whatsoever.

Symptoms pretty much all neurological.

I'm wondering after reading some of the stuff here,
though--could the difference between the patient who does nothing but get worse and the one who gets the full recovery ever come down to pretty much just diet?

Exercise isn't the issue--I get plenty of that-- and give my lack of joint pain, I doubt I'm HLA-DR4. I am, though, in college, and I eat, well, like a college student, so I was just wondering...

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2roads
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I'm sure that has something to do with it Adam.

I'm glad you're trouble-shooting everything.


Nutrition is so important to a good immune system.


It could tip you over the edge and get you on your way. Look into smoothies with packed nutrition....like the Olympic swimmers. Google this....I know my husband did for my daughter.


You can get all sorts of stuff to throw in there, especially when you're on the go.


How about sleep? As a student, are you getting 8 hours?


Try this and see if it helps. Please don't get discouraged.


Hugs,


Greta

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Janice70
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You should get your blood tested for food allergies. If your immune system is constantly fighting allergens, it seems to me that it would be less able to fight Lyme.
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Dekrator48
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Hi,

My LLMD said that Borrelia bacteria thrive on sugars.

In order to help yourself get better, he said you have to starve the bacteria.

He said no gluten, no milk products, no simple sugars, no processed food.

Eat 5 meals daily, with 1/3 being lean protein and 2/3 being complex carbohydrates, not simple carbs.

He said we usually crave the very things that feed the bacteria....like bread or pasta or chocolate, etc.

Diet really can help alot.

My LLMD said that even though he is recovered from his 5 years of being disabled in a wheelchair from lyme, he feels alot worse if he does not eat well.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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seekhelp
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I would be willing to bet diet is the missing key for many on LN.
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Hoosiers51
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I have been a tough sell on the diet thing so far.

And I am apparently paying for it, because I just tested very positive for yeasties in the stool.

I just always had a hard time believing things I hear without data backing it up. I never knew how they "know" the Lyme loves sugar, and dairy, and gluten, and........

the list just seemed to go on and on.

Can anyone present a really persuasive argument as to why for some of these things? I understand the concept of eating healthy for overall health, but what about how everyone says Lyme thrives on it????

I am willing to change my diet, I just haven't heard a good enough argument yet. I'm not trying to be difficult, just being honest. With all the things that I've tried that have failed, I can't accept something anyone just because it's the word on the street. Singleton's book provided a diet, but not a good enough argument. So I'm still waiting I guess......I know that is lame, I'm sorry. [Frown]

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Lymetoo
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quote:
Originally posted by seekhelp:
I would be willing to bet diet is the missing key for many on LN.

Amen.

Whether it's that you need to be gluten free or you need to be sugar free.... Diet is major.

Think of this... What if you have yeast right now and don't know it, how would you know if what you're dealing with is yeast or lyme?

Both cause VERY similar symptoms.

So it would be smart to try a 2 month very strict sugar free, low carb diet and see what happens. Maybe even throw in a gluten free diet on top of it...or follow it with that.

Gluten causes neuro problems bigtime, along with joint/body pain.

Candida diet and elimination:
http://flash.lymenet.org/ubb/Forum1/HTML/021412.html

http://www.wholeapproach.com/diet/

Lyme symptoms list compared with yeast symptoms
http://flash.lymenet.org/ubb/Forum1/HTML/021202.html


DIET, DIET, DIET is the key. Then, be sure to follow the 5 step plan outlined below. It was developed by my naturopath. It works.

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.


2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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www.celiac.com

--------------------
--Lymetutu--
Opinions, not medical advice!

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Hoosiers51
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Okay, so I have decided I will try the anti-yeast diet for awhile.

I am DREADING it, and doing it very begrudgingly, because I LOVE food, cooking, going to restaurants, etc.......but I will do it. [Frown] [Frown] [Frown]

RIP yeast.

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seekhelp
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I too would love to see some real studies showing lyme multiplying in a body due to sugar. Assumptions are one issue..facts are another.

I'm guessing the only truth to all this eating healthier boosts the immune system. That is important. We need every break we can get to beat this disease. There's no doubt.

I just wish so many LLMDs wouldn't make up stories without citing hard facts. We already face an uphill battle with people thinking we're off our rockers. We don't need others thinking our LLMDs have no facts behind statements written in publications.

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Hoosiers51
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I agree with you seek on that one.

Though I do believe word of mouth and case studies have their place as well. If I see someone with lab results similar to mine and as sick as me get better by trying something, am I gonna try it? You bet! [Wink]

I finally decided to do the anti-candida diet just to get rid of candida, not necessarily because of the theory that lyme feeds off it.

I know based on testing that I had bad candida (which I was skeptical of before because I didn't have some of the classic symptoms). So, I owe it to myself to get rid of this stuff....it could be contributing a lot to my fatigue.

It is going to be tough (the diet), but there just aren't really any other options if I want to get rid of this stuff. If I keep eating sugars, I bet the yeast would survive despite the anti-candida drugs. Bummer. [Frown]

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Lymetoo
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quote:
Originally posted by seekhelp:
[QB] I too would love to see some real studies showing lyme multiplying in a body due to sugar. Assumptions are one issue..facts are another.

Why do you need a study? It feeds YEAST .. of that there is no doubt and plenty of studies to prove it.

Sugar also lowers the immune system. That is also a proven fact.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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quote:
Originally posted by Hoosiers51:
If I keep eating sugars, I bet the yeast would survive despite the anti-candida drugs. Bummer.

It absolutely would. No doubt at all.

--------------------
--Lymetutu--
Opinions, not medical advice!

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robi
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Speaking from personal experience I will tell you that food is of PRIME importance. When I eat good healthy veggies and lean meat (usually chicken or turkey as beef is a huge contributor to inflammation) I have improvement in all my symptoms from brain fog to muscle pain. It does not "cure" me but there is definite and noticeable improvement.


Another thing is sugar.. If you eat suger and can get well you are VERY lucky. Sugar is horrible for the immune system. It also fuels the yeast fire enormously!!!

My diet: Lean foul, veggies (NOT the starchy ones), lots of greens, NO flour, rice (maybe a little brown on occassion), pasta and potatoes. Good fats. Limited butter. No margarine (that'll kill you all by itself ..... it is not really food. And absolutely no sugar (in all of its forms) or artificial sweeteners.
Use stevia if you need something sweet.


Yes, diet certainly plays a huge role!!

Just my experience.

robi

--------------------
Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy'

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TF
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Here is a section from the 2008 Burrascano lyme treatment guidelines. It makes diet very important. See #6:

SUPPORTIVE THERAPY

CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:

1. Not allowed to get behind in sleep, or become overtired.

2. No caffeine or other stimulants that may affect depth or duration of sleep, or reduce or eliminate naps.

3. Absolutely no alcohol!

4. No smoking at all.

5. Aggressive exercises are required and should be initiated as soon as possible.

6. Diet must contain generous quantities of high quality protein and be high in fiber and low in fat and carbohydrates- no simple carbohydrates are allowed. Instead, use those with low glycemic index.

7. Certain key nutritional supplements should be added.

8. COMPLIANCE!

The words "Absolute Rules" are in bold in the first sentence.

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NMN
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I have recently gotten hooked on Manuka Honey. I have missed the sweet stuff I tells ya!! [Wink]

--------------------
Pos BB and Bart(Q & H IGG pos)
Began treat 1 year after start of illness. Diagnosed Feb 2007.

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sparkle7
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I seem to have the contrary opinion here but I don't think diet is a big, urgent thing...

I also tend to like a healthy diet. I'm not into junkfood. I do like 1 cup of coffee a day & a little dessert. I eat mostly health food - whole grains, lean meat, fish, poultry, veggies & fruits, kefir, limit hydrogenated oils, chemicals, etc.

I try to drink alot of filtered water. I'm pretty moderate with what I eat & I don't think I have any food allergies.

I have tried some extreme diets, juicing, no sugar, etc. & it didn't seem to make much of a difference for me.

The main thing is that if you take abx for a long time - it can throw your system out of whack with yeast. For this reason it may be good to avoid sugar & carbs. I don't know about whether it effects Lyme but the drugs do have side effects & you may have to compensate through diet.

I just don't think being on an extreme diet is going to cure a bacteria. We do feel better when we eat properly & it's good to know if we have any food sensitivities or allergies.

I don't think diet can cure Lyme, alone.

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atheana
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Is Ezkiel bread ok?
Atheana

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Hoosiers51
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Lymetoo,

I was just wanting scientific data saying that it fed lyme, not yeast. The reasons for sugar feeding lyme seemed a little more obscure to me, just logically.

Another member actually just PM'ed me some info supporting that sugar does literally feed lyme, so that was neat. I'll take a look at it later on when my brain is a little less scattered.

But regardless, the candida is now what I am focusing on.....so either way I'll be cutting out sugar and lots of other things it looks like.

PS--sparkle, I used to be like you. I had had my food allergies taken care of with NAET, and I wasn't reacting to foods, so I felt like just as long as I cut out the artificial chemicals, everything was good in moderation. Even though I didn't restrict things, I still made sure I got lots of nutrients from whole foods.

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Lymetoo
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quote:
Originally posted by Hoosiers51:
[QB] Lymetoo,

I was just wanting scientific data saying that it fed lyme, not yeast. The reasons for sugar feeding lyme seemed a little more obscure to me, just logically.

I know...but almost everyone on abx has yeast, so it's feeding it.

Sparkle... but you're not on abx

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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i eat sugar. i immediately feel pain.

--------------------
Lyme? Its complicated. Educate yourself.

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seekhelp
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Well, I'm going to see if this theory works for me. I've decided today to go on this candida diet once and for all. I owe it to myself to at least try.

After 3-4 days of taking relatively low-dose Olive Leaf Extract, it's knocked me down hard. My nose is running clear liquid like a faucet, I'm super exhausted, feel like I'm walking on a pillow, etc.

It could be Lyme, could be yeast, could be 50 other things, but I need to do something. At the VERY LEAST, I'll eat healthier and lose weight. That's never a bad thing.

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lpkayak
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we have all heard about ketes liking sugar

i finally read the whole article i posted about lyme, syphillis, and hiv.

somewhere near the end there is a paragraph about what ketes need to live and thrive and sugar and an acidic environment are listed

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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quote:
Originally posted by lpkayak:
[QB]i finally read the whole article i posted about lyme, syphillis, and hiv.


where??

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lauralyme
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I am a walking experiment of what sugar does to lyme... any consumption of sugar and I am flat on my back with vertigo. I don't need any scientific data to confirm that!

Yes I absolutley believe that diet plays a vital role in recovery. As limiting as the diet is, you do actually get used to it.

Ditto what tutu says.....sugar paralizes the immune system

--------------------
Fall down seven times, get up eight
~Japanese proverb

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pamoisondelune
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Adam---

You've been on the same antibiotics for a long time. Isn't it time to switch drugs? My LLMD switched people after 5 or 6 months.

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Hoosiers51
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What do people on anti-candida eat for breakfast? This has been tripping me up. I know it's not steak and broccoli! [Smile] I obviously have a lot more research to do. My cookbooks are in the mail, but if someone could enlighten me until then....
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lymeinhell
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Eggs cooked in olive oil. Or scrambled. Or hard boiled. Or an omelette with fresh veggies. And a handful of almonds if I'm craving carbs.

Or a plate full of egg whites.

When I couldn't stand it or needed a break, I'd have lunch for breakfast.... heat up some chicken breast, lightly sautee some veggies.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

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TF
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Turkey bacon is nice with the eggs, or lean ham, or cheese.

Here is a good recipe for a hot quinoa flake porridge. I ate it every day for a long time. Can carry it to work and heat up in microwave, etc.

http://bodyecology.com/recipes/porridge.php

The Body Ecology Website has lots of recipes for those on an anti-yeast diet.

The entire website (and book by the same name) is dedicated to getting rid of yeast throughout the body.

Quinoa is a seed. It is so very healthful. Use it as a substitute for rice and pasta. The flakes are a substitute for oatmeal sort of.

You can also drink kefir for breakfast. I made my own (saved money and no sugar in the kefir). Did this the entire time I was on lyme treatment.

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TF
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I found this recipe in the newspaper. It was awarded Best Recipe in 2008. We love it at my house.

I substitute water for the wine. If you want, you can omit the corn if you want to really avoid starchy vegetables all together.

Peppers stuffed with quinoa, corn, and feta cheese:

http://www.epicurious.com/recipes/member/views/PEPPERS-STUFFED-WITH-QUINOA-CORN-AND-FETA-CHEESE-50015976

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sparkle7
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Lymetoo- Sparkle... but you're not on abx

That's why I stopped taking abx! They were adding to my toxic burden & not making me better. It just seemed wrong for me to continue. I tried them for 8 months... They didn't make me feel better at all & just made things worse.

When you stop adding yeasts & funguses via abx - you might feel better. I'm not telling anyone to stop. I think they can be helpful if you catch the Lyme right away. For me, they didn't do much. I was ill for 9 years or more before I started treating.

During various times in my life, I tried an anti-candida diet & it never seemed to change anything. Some doctors & people seem to think it's a panacea & cures everything. For me - it didn't seem to help much.

It's the abx that cause damage. If you decide to stop them you may have to treat candida. I found Solaray's Yeast Cleanse to be very helpful. It worked better than Diflucan for me.

Once the yeast is under control, a moderate diet should be OK unless you have a special situation or allergy. If sugar makes you feel bad - it may be something other then the Borrelia bacteria.

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tainabell
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I saw Dr. Burrascano speak last weekend at NYU Medical and he said that they did a study where they took alcohol and added it to a solution with spirochetes and they observed the bacteria actually becoming MORE AGGRESSIVE.

That was a real eye opener for me. No more alcohol. Not at all. Alcohol, by the way, also contains high quantities of yeast.

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Hoosiers51
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Thanks for the suggestions. The problem I'm having is that I don't like eggs. I can eat them, technically, but I dislike them. Sometimes I cook them and then just stare at them because they make me loose my appetite. I'm weird, I know. Something about the jiggle.

Turkey bacon I could maybe do. The quinoa I will look into. This is becoming difficult!

The only way I usually eat eggs is if I do them scrambled or in an omlette loaded with cheese. But isn't cheese out? Can I do cheeses that aren't aged?

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Hoosiers51
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Also, is it safe for someone who is slightly hypoglycemic to go on an anti-candida diet? I think that is another thing that usually stops me in my tracks, is I get irritable from needing whatever I need. Everyone in my family is like this.....we need to eat small balanced (protein, fat, carbs) meals throughout the day or else we go nuts. So is this even possible?

Like right now I'm having a meltdown and I just need a granola bar or something to balance me out. I don't know much about hypoglcemia because I don't techinically fit it, I am just "slightly" it, so I always kept it under control by eating balanced throughout the day, so now I just don't know what to do.

What I mean is, I never had to research hypoglycemia because I wasn't an extreme hypoglycemic, only slightly, so I manage it by eating ice cream or something in small amounts if I need it or a granola bar. Cheese helps too, with some carbs like a baked potato.

Anyone that knows something about the condition, I could use your two cents as to whether I can even do anti-candida. I feel lost. I have a really really hard time reading, so researching online is very tough. I basically just go by what people tell me on lymenet. [Frown]

Help!

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TF
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Burrascano allows cheese and tofu on the yeast control diet. I take that to mean all cheeses.

On a yeast control diet, you don't have to be sure you are not eating yeast. Rather, you have to be sure NOT to eat the things intestinal yeast treats as food--the things that make it multiply.

Sugar is its food--including crackers, bread, and anything made with flour because it begins turning into sugar in your mouth. (A cracker can "melt" in your mouth--that's it turning into sugar.)

I rarely ate eggs. I ate the quoina porridge and sometimes bacon, cheese, nuts, seeds.

Breakfast was the most difficult meal with the least choices.

To avoid hypoglycemia, you are to eat frequent small meals and AVOID SIMPLE CARBOHYDRATES. In other words, avoid sugar and flour and eat the anti-yeast diet. And, eat frequently. Carry food with you.

You can do this. Hubby is hypoglycemic. I have him carry ham and cheese as a snack, canned veggies, sunflower seeds, nuts, raw carrots and celery sticks etc.

This low-carb diet (Atkins-type diet) will make you lose weight. And, you can eat as much and as often as you want!

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Keebler
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Hoosiers,

you must maintain a certain level of blood sugar.

If you feel like you're going to pass out all the time, you may need more complex carbs and, if balanced with protein and good fats, the a granola bar or moderate amounts of gluten-free whole grains such as quinoa might just be the ticket.

Our bodies need glucose to live. The trick is finding the right balance to keep a stable blood sugar. The proteins and good fats help to prevent sharp drops.


Mary's Gone Crackers makes some wonderful varieties of gluten-free whole grain crackers that are low-glycemic but enough to help fuel the body. Combined with fresh veggies, this is best.

Fresh veggies can be your standby, too. And nuts.\


-

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Hoosiers51
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Okay, gotcha. When I would feel weak, I would always try to reach for something that had a little bit of everything in it, including simple carbs. I think I was thinking about how when you get your blood drawn and you pass out (which would happen to me sometimes), they would always give me fruit juice. I must have misinterpreted that to mean sweets help with the feeling of "about to pass out."

So, when I would feel weak, I would reach for something with carbs, but also fat, because I noticed fat helped the most.

Just goes to show how wrong I was. It was never something I researched, but since your husband is hypoglycemic, I'm sure you know what the right thing to do is. [Smile] I had been told by MD's and ND's in the past "you are slightly hypoglcemic"...so who knows what that really means anyways (like if I truly am or not), but I will follow your advice.

So thank you thank you from the bottom of my heart! Been really struggling lately, so this advice has saved me a lot of time, etc. [Smile]

And being able to eat cheese will help a lot.

Take care.

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Hoosiers51
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Thanks Keebler....the whole problem is that I am trying to get rid of the yeast in my body (I had a lot in my stool). Would getting rid of it be possible while still eating even complex carbs like whole grain pastas and whole grain crackers? I was thinking I would need to cut those things out for a time.

And this is sort of the battle I feel like I'm fighting....my body feels like it needs/wants carbs (obviously not pastries, but whole grain, complex carbs), BUT, I have this unfortunate situation of having tons of yeast from all these antibiotics.

And I don't think my body only needs/wants carbs because of the yeast driving the craving, I think it is just who I am, my blood type or whatever...how I'm wired.

The ideal situation would be to go off the antibiotics, because then I could probably safely consume some carbs and still get rid of the yeast, but I feel like unless I want to take a break from my antibiotics (which is not out of the question), I may need to avoid carbs to kill the yeast.

Thoughts?

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Hoosiers51
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Keebler-- just re-read your post. Looks like you said the crackers were low-glycemic. So maybe some carbs are okay if they are low glycemic?

I am thinking the Kashi granola bars I typically eat would be out though, because things are added to those to sweeten them, even though they are lower in sugar than most granola bars if I recall.

I can see that quinoa would be okay, but I wonder about things like brown rice and oats? I was thinking I would need to cut those out.


I'm sorry if I seem like I'm dense...lately I feel like my IQ went down 20 points, so I promise I'm listening to everything you all are saying. Thank you for the help!

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Hoosiers51
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Okay, I just read Burrascano's yeast control diet in his Guidelines.

That answers some questions, but it does conflict with some of the things Lymetoo has said about anti-candida diet. That is why I'm so confused...different experts seem to believe different things.

Maybe it would be best for me to go strict for a month to get rid of yeast that's in me, then switch to Burrascano's. BUT, the problem is that I think too stict would be too hard for me to follow personally.


The only questions I have after reading what Burrascano wrote is that he doesn't really address complex carbs much that don't contain flour, like oats, brown rice, gluten-free pastas, etc. He doesn't say how much of that stuff we can eat. I'm guessing we should limit it.

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TF
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You're right. My lyme doc said you can eat "a little" brown rice.

Also, you can eat a few strawberries at the end of a meal. Never on an empty stomach. Gives you some fruit once in a while. (Hey, you can eat all the lemons you want! My doc wanted me to eat 4 per day. I squeezed them in water. Works great for keeping herxes gentle and detoxing in general.)

And, if you ever cheat, do it on a full stomach, not an empty one.

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pamoisondelune
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Hoosiers--- i cook scrambled egg whites seasoned with TURMERIC or curry powder, sauteed in olive oil with a few veggies like chopped onion, or chopped carrot pieces, or a little spinach, or tomato pieces; then you can add more taste afterwards by pouring on top a little V8- juice, or ketchup.

And yes, this for breakfast.

The Israelis include fish in their breakfast.

Switching to Mediterranean and mid-east spices can add alot more palatability to your food.

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gridmonster
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Things that seem to work for me:

Eggs, lean skinless chicken, fresh veggies, spuds,

bananas, green grapes, bran cereal, no-fat milk

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