Topic: My daughter got her Igenex western blot results today
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi everyone,
I knew it was true, but was hoping it wasn't....
My 29 year old daughter has lyme also. I think her husband has it too. I hope my 2 yr old and 5 yr old grandsons don't have it.
Here are her Igenex results:
IgM:
31 ++ 34 IND 39 IND 41 ++ 83-93 IND
IgG:
41 IND
Her symptoms are indicative also: fatigue, headaches, trigeminal neuralgia, insomnia, overactive bladder, chronic sinus infections, muscle twitching, back pain, heart murmur, depression, anxiety,etc.
I just got her an appt with my LLMD on Tues March 10, and I am going to go for my 4 week check up the same day.
Who would have ever thought that tiny ticks that we never saw could create so much havoc?
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Getting an appt was a good idea. Looks pretty clear that she is dealing with Lyme. Hope that the doctor is a good one.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Wow, I am sorry to hear that. I am 31 years old, so I know what it's like to be young and have Lyme Disease. Your daughter can write me if she is interested.
I have all of the same symptoms as her except for the neuralgia, muscle twitching, heart murmur and back pain.
I didn't know that overactive bladder was a symptom of Lyme! Just today, I was wondering if I am crazy for having this weird bladder pain/irritation/frequency that comes and goes.
Last Saturday, a doctor (who doesn't understand Lyme) told me I need to see a psychiatrist when I told him about my bladder issues in addition to all of the other symptoms I have.
I've had the bladder irritation since September now and I can't figure it out. Are bladder pain and frequency of urination symptoms of Lyme?
-------------------- I was diagnosed with Lyme Disease in August 2007, but I now feel it was a misdiagnosis. I was finally properly diagnosed with Chemical Sensitivity in February 2011. My life has changed drastically since then. Posts: 128 | From Dallas, Texas | Registered: Jul 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
SForsgren...Thanks for your reply...We are lucky to have a good LLMD.
electrolite...thanks for the offer for her to write to you. Maybe at some point she will join this site. She is not well and also taking care of their 2 young children, so she's usually busy just doing that.
Yes, irritable bladder and frequency are also signs of lyme.
It's really the (non LLMD)Dr's who need the psychiatrists!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Sorry to read this, Dek - hope your family can get the help you all need.
That was a good one - turning it around - any doctor recommending we need to go to a psychiatrist needs to go to one to work through their own denial issues!
Posts: 13116 | From San Francisco | Registered: May 2006
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bettyg
Unregistered
posted
dek,
best wishes to your daughter and family on her correct diagnosis! so glad you 2 are going together to appt.
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks lymetoo, robin1243 and bettyg,
Today my daughter found out that she won't be able to go to my LLMD next week with me because she is in the middle of a disability case.
He won't be able to treat her until after her disability hearing, whenever that is....probably months.
Since LLMD's practice under the radar, they don't get involved with people in disability cases, because their records would be subject to scrutiny.
For now she's going to have to take the ILADS guidelines to her open-minded PCP and ask her to treat her according to them, and see what happens.
I can also help her with starting supplements and diet changes, etc since I have already seen the LLMD.
I guess we'll take it one step at a time.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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bettyg
Unregistered
posted
dek,
is daughter going for SSDI disability or long term disability?
what step is she on?
just submitted and turned down;
2nd step ... reconsideraton
3rd step ... waiting for admin law judge hearing normally takes ALMOST 2 FULL YEARS!!
may i suggest she call the person from ssdi or whoever, and ask where she is on waiting list to be heard, and there BALLPARK date when her hearing could be!
yes, my lyme records may have been read; but my disability ... they stayed away from lyme, fibro, cfs, etc..
just dealt with mental aspects since their adult impairlist is very detailed and is COVERED in that.
others aren't .. 14.09 mentions lyme disease BUT NO SPECIFIC! darn..
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