posted
have been reading up on the Marshall protocol for the treatment of Lyme disease, and the results seem very good.
Has anyone used this protocol? how did you find it? How soon did your symptoms start improving?
I have recently been diagnosed with Chronic Lyme and 6 years ago wass diagnosed with MS - My Symptoms are - leg strength , balance (mobility) bladder - it is a progressive form
I have not started any treatment yet, and want to find the most efficient way of treating lyme, Thank you
Posts: 33 | From UK | Registered: Mar 2009
| IP: Logged |
God im so confused, only diagnosed a few weeks ago, and dont know what to do. I saw a LLMD, but he just recommended IV Ceftriaxone., which several books and articles do not recommend in chronic lyme!
Posts: 33 | From UK | Registered: Mar 2009
| IP: Logged |
posted
adam you will find this site not very receptive to the MP. Most of the people that have recovered don't even bother to talk about it on this board.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
The reason you haven't seen any negative stuff is that the MP sites censor it out. You only get to see the positive cases.
And there are no articles showing this, as there has been no study of this. There has been no science done on the MP.
The books that do not recommended IV Ceftriaxone may not be the best sources of info. Lyme is a messy minefield; many people write books with their opinions which then come off as fact. For neuro Lyme IV Ceftriaxone probably has the best track record. But it won't help the co-infections or the cyst forms of Lyme. But if I were newly diagnosed, that would be the FIRST choice, if available.
Here's another place where you'll see former MP patients. You'll notice that some do very well, but others get much worse. Overall, the Lymies have not been terrible successful, to put it kindly.
posted
I recommend you use the "search" function on this site -- search within the title only -- and you will find many useful discussions.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
| IP: Logged |
posted
The IV will likely knock back a HUGE bit of the load. Then, if your LLMD is smart, he will add in meds that go intracellular and others for the cysts.
Posts: 845 | From Eastern USA | Registered: Jul 2006
| IP: Logged |
posted
i have neuro lyme as well, late in dx. there is info out there. getting depressed is counteractive to what you need to do. get to know your enemy was my approach.
this can be overwhelming. if you feel you LLMD is confident and educated then trust that dr. if not, seek out another for 2nd opinion.
My LLMD recommended i read "cure unknown" and " the lyme disease solution" before 1st appt. i did and this gave me more understanding of what all was involved at first appt.
the lyme diet in Dr S "lyme disease solution" book is very specific, was willing to try b/c i was so bad i was desperate. asked LLMD about success of the diet- response was- honestly have not had enough patients follow it fully to see if has a better outcome. is a very strick diet and most will diveate from it- that can not be measured as yes /no if not followed as written. may help, can see the reasons why from MD point of view. lyme does cause tons of inflammation
i read on it, was going to try it. was not a good option. i have big household to feed on daily basis and had my mother in law here taking care of me , kids an dhouse for months on end, thankful for her help
might be worth trying, try searching that on here??
following Dr tx plan has began to help, i started tx/got dx in 9/08. just now seeing changes, even if small and on IV for only 1 1/2 out of 4 mo. needed. so - h ang in, dont throw in the towel and educate yourself would be my suggestion to anyone new to this. the things you start to find is good info, but very overwhelming and discouraging at times. when readign post/threads you have to take into account for that person their situation if alway differnet. everyone has difff. journey with this, diff responses to tx.
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Adam, the issue with the MP is that you really have to just keep researching it and decide whether it has the highest probability of assisting you.
Like others said, it's got it's proponents and others who didn't improve.
My personal opinion is that it's not the right course of action until other options have been explored, including antibiotic therapies, herbal protocols, even Rife therapy. I would put most of those ahead of the MP, but you need to come to your own conclusion and figure it out because for all anyone here knows, you could do it and end up feeling well again.
You will have to walk the plank like all of us and that means committing to a treatment based on the best probability of success and since everyone responds so differently, you may hit it or miss it on the first, second, or third protocol you try. You just do your best to gather as much information as you can, that's what I think.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
adamttt..
.I have been on the salt/c protocol for almost 3 yrs and having great success with it. It's not the most popular on here either. FYI... Salt is a natural bacteriocide..
Parasites and Worms are a MAJOR part of Lyme disease. I was misdiagnosed for over 25yrs and had severe neurolyme. Just giving you another option.
You can also check lymestrategies because these are the folks doing the protocol. They also combine it with other protocols as well,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
The MP seems to work best for those with disrupted vitamin D levels, specifically low 25D (the most often tested kind) and high 1,25D. That's the first thing to get tested to figure out how well the MP may fit you.
My D levels were way off, and after years of searching, the MP was the first treatment that cured several of my symptoms. Several other symptoms remain. The MP is a slow process, requiring years, but everything they've told me to expect has come true, thus I'm encouraged to keep going.
Posts: 727 | From USA | Registered: Mar 2006
| IP: Logged |
Are IVs necessary? Could i use just 2 orals which attack the 3 different forms of lyme~? spirochete/L form/Cyst form ??
Posts: 33 | From UK | Registered: Mar 2009
| IP: Logged |
lymeparfait
Unregistered
posted
Have you been seriously detoxing?
It's hard to have success without it.
Many killing protocols will work for individuals to some extent, but everyone who gets better adds some sort of detox into the mix during and between treatment protocols.
Everyone gets die off, yeast, candida, and has heavy metals. Those need to be moved out to get to the next phase of relief.
Also, a must...nutritional support.
Not just a good diet, but adding in liquid form, electrolytes, good amino acids, proteins, and vitamins. Those that get great success with any treatment, fix the absorption issues too.
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hi adamttt
Welcome to lymenet!
First advice....settle in for a long fight.
Second advice....Get a good doctor and follow their protocol. No one has the simple solution. If they did we would all take it, get well and this board would cease to be necessary.
Even the doctors are experimenting, but they have the advantage of experimenting with many patients at once as opposed to you or me just experimenting on ourselves. Drs also have resources to learn from each other.
Finding a good doctor to lead your attack is essential.
Having said that, diet is critical to your success and your doctor can't be there to prepare your every meal. Some doctors have expanded their knowledge of nutrition but none of them got much training in it in medical school.
You may have to work hard on that issue on your own or find a 2nd doctor who is highly trained in nutritional healing.
Make no mistake. Your body has to be part of this fight. How well you nourish your body will determine how well your body responds to medications and how fast you progress.
When I first became ill, it only took 5 mths to digress to the point of having to quit my job and becoming housebound.
I quickly learned about nutritional healing. It was the first step I took toward healing and it had a powerful, noticeable affect for me. I found a doctor trained in integrative medicine to help me identify issues and deal with them including food sensitivities. They can contribute to a lot of our symptoms.
6 mths later I was back at work, weak but functional. Within one year, I was enjoying a full life again although I do continue to fight this illness. I am currently in year 3 of my fight. So, not cured yet, but fully functional.
Nutrition continues to be a big part of my healing picture.
Vit D3, btw, brought about incredible improvement in my joint pain and issues. I take 5000IU daily as my lyme went into rheumatoid arthritis. "Explosive arthritis" my doctor said. My LLMD is also a rheumatologist and said she had only seen 3 cases as bad as mine in her entire career. So, I was no mild illness.
Yet, with every joint initially inflammed, just 6 mths later, my bloodwork dropped and one year later, my bloodwork was a very weak positive. I have hovered near normal ever since.
Currently, I don't suffer joint inflammation very often. I ride horses for a hobby and have to feel really good to participate in that sport.
Diet alone did not cure me but it was such a huge part of the picture. It just makes sense that your body will function at its best if you feed it well.
Beyond diet, detox was also a very, very important part of feeling better. This takes extreme effort for me. I couldn't even do epsom salt baths originally because they pulled the toxins around and crippled me with agonizing pain.
Today I enjoy epsom salt baths.
Detox methods my doctors have used:
IV's of glutathione for 2 yrs. After that, switched to glutathione suppositories.
Detoxing herbs. Just tons of these and continue them to this day.
Detoxing diet. Cruciferous vegetables and especially asparagus increase your body's natural production of glutathione. NAC supplement increases glutathione.
Abx and herbs and colloidal silver all utilized to fight the bacterias, parasites and viruses in my body.
I test positive (repeatedly) for Babesia WA-1, Mycoplasmas P., Cpn, EBV, HHV-6, H.Pylori(cleared now)QFever, parvovirus, tapeworm. I am sure I am forgetting something.
This is a fight that is practically too great for the doctors to figure out. I believe it is very good for us to learn all we can and participate in the fight but not to buck our doctors. We need their efforts and their knowledge.
The 4 D's
Doctors, Diet, Detox, Drugs!
Adam, keep this in mind. It is not going to be a quick fix. Slow, steady and determined will get you well. Don't assume abx alone will do this. It is a multi-faceted approach.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
posted
thanks luvs2ride, i appreciate antibiotics alone are not sufficient, but t the same time i do believe abx should nbe the core of any treatment
Posts: 33 | From UK | Registered: Mar 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Sorry, I can't read all the replies right now. My brain is just waking up. But, since I studied this at length, I'll offer my experiences with part of it.
I gave the Benicar that is used on Marshall a trial run and had a major kidney attack. I had tried it before and just felt awful but tried the 2 time and had the worst kidney pain ever. I have serious doubts about using that. (But, others do better on that than I did.)
And, this would be a very hard time of the year to start that. Skin has to be totally covered, even with gloves, even just when getting the mail or walking to your car (even on cloudy day, even if in the UK).
You need special fabric for your clothes . . . Special hats. . . special sunglasses, even when indoors you need to close your curtains. No skin can be exposed to the daylight when outdoors, even in under a shade tree.
As if lyme, itself, were not isolating enough, all the gear required to keep daylight out can be very socially isolating.
And the people who are on the MP often feel horrible the whole time. (I think that is from the benicar, myself.)
And - Marshall really is designed ONLY for those with high vitamin D. I still think there is a better way to fix that, though.
As for others avoiding the sun, we NEED the sun. Unless on doxycycline or other abx that say "stay out of sun" the sun has many great effects for about 20 minutes' exposure a day.
We NEED vitamin D.
---
Another consideration is that on the MP, herbs and most supplements are not allowed. It is my belief that anytime abx are taken, liver protection is vital. You would not be able to take liver support or any of the supplements that lyme patients find to be helpful.
Also, the MP does not address coinfections. You did not say if you were assessed for other TBD (tick-borne disease) but, very often, a person who has lyme also has other TBD. Those would not be able to be treated with the MP.
Now, all that said,
If you are drawn to the low-dose abx part, try this one, Very similar but far more simple and without benicar:
Now, after all that I've said, if you are still drawn to MP, be sure to read the articles by JC Waterhouse in the "Townsend Letter"
She did a series of excellent articles on her success.
You can search on google for that. If I can easily find the links in my file, I'll come back and post those.
dguy, said above that this has worked for him. It has worked for some. So, if you do it, be sure to do all the homework so that you can avoid potential pitfalls and see how others who succeeded did it.
You first need special tests for your vitamin D levels. And, unless they are in a certain range, you may not even meet the criteria for this.
Good luck with whatever you decide.
---
Search "Townsend Letter" here for "Marshall Protocol" and you will find 12 articles. I'm not sure if the ones by JC Waterhouse are there or not. It may take a bit of searching but those are important to read. I don't know if she had lyme, though.
posted
Keebler, IMHO you are right on with your other posts. In this case, I hope you don't mind that I have some minor disagreements with some of your opinions, so my comments are below. I also have a few questions for you; I hope we can continue to learn from one another.
BTW: I am still on Benicar (since Oct 2006) and OFF antibiotics while taking Mycopryl and Niasafe (flush--free niacin). I am doing really well, as I've beaten down the high levels of candida that may have been slowing my healing. _____
I gave the Benicar that is used on Marshall a trial run and had a major kidney attack. I had tried it before and just felt awful but tried the 2 time and had the worst kidney pain ever. I have serious doubts about using that. (But, others do better on that than I did.)
-- is it possible you were herxing because of any of these: herxing from germ load in kidneys, D changes in kidneys? How was kidney function measured? But yes, I know 4-5 people that COULD not hack the Benicar...just too much too handle.
And, this would be a very hard time of the year to start that. Skin has to be totally covered, even with gloves, even just when getting the mail or walking to your car (even on cloudy day, even if in the UK).
-- not me? Are you kidding? I got good sunglasses, but that's it. Plus, I think the MP folk may be shedding some of the cave-dwelling measures, but I am not sure. But I've done OK on the MP without all that stuff.
You need special fabric for your clothes . . . Special hats. . . special sunglasses, even when indoors you need to close your curtains. No skin can be exposed to the daylight when outdoors, even in under a shade tree.
-- not true. See above, at least for my experiences.
As if lyme, itself, were not isolating enough, all the gear required to keep daylight out can be very socially isolating.
-- not true. See above, at least for my experiences.
And the people who are on the MP often feel horrible the whole time. (I think that is from the benicar, myself.)
-- not true. Many people feel great on the Benicar, because of the anti-inflammatory effect. It's an ARB and considered to very safe, even more so than antibiotics.
Marshall really is designed ONLY for those with high vitamin D. I still think there is a better way to fix that, though.
-- I dunno what you mean by this, Keebs. People with high load(s) of intra and extracellular bacteria MAY benefit from the both the Benicar and the antibiotics.
As for others avoiding the sun, we NEED the sun. Unless on doxycycline or other abx that say "stay out of sun" the sun has many great effects for about 20 minutes' exposure a day.
-- you are right, we don't need that much to get a benefit. Not to mention how natural and wonderful it feels! I took a 2 hour walk yesterday and felt great afterwards.
We NEED vitamin D.
-- sure. But we don't need that much, especially all the extra crap they put in all our foods. Stick to sea foods and a little bit of natural photon action...that's my two cents.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Cold Feet,
Glad you shared your experiences - and disagreements with my statements, too. That's learning.
sorry, I can't organize this for easy reading. but i hope it answers your questions.
And I'm glad you are doing so well on Benicar. Again, individuals will vary. There are a few here who have done benicar (not on MP) and had nice results, too.
As for Benicar, it was clearly kidney according to my MD by the path of pain and other characteristics. I was doing no other abx at the time. However, I am very sensitive to nearly all drugs.
And - thinking back now, I think I had not been drinking as much water as I usually did for a day or two before. So, simply that may have been what happened. Benicar made me so dizzy that I could not get up enough to get water. Again, I react differently to many things than do others.
It was about 1.5 - 2 years ago when I started to prepare for this.
--
About "You need special fabric for your clothes . . . Special hats. . . special sunglasses, even when indoors you need to close your curtains. No skin can be exposed to the daylight when outdoors, even in under a shade tree."
Yep, I was told all this by the person from MP who was my mentor at the time. We spoke on the phone - and she directed me to MP links for all this, too.
Special sunglases - oh, yes. I got 3 levels of darkness from a special sunglass place that guide - and site - from the MP suggested. They had to filter one or two types of UV. Regular sunglasses, I was told, would not properly filter the UV light rays.
All this, at that time, was on their website. It may have changed since that time and, as with all things, some people are affected less so - or more so - with some of the elements.
--
As for another way to fix high vitamin D levels, my ND just got back from a conference in which there was a presentation on this. My levels were okay (as I had the test prior to considering MP) . . . but my ND had remembered that I investigated it and told me that had they been high, there are other ways to work with that other than Benicar or the MP.
I did not ask further but could ask her the next time I see her if anyone wants to know.
---
One thing great about LymeNet is that it is a collection of experiences. A great survey, so to speak.
Maybe since I've been surprised too often and sorely unprepared for some experiences, I love the way people can see the range of experiences and then, if they choose a path, plan to minimize cons and maximize the pros.
--
Sorry, if I may have misstated that every felt horrible on the MP. From all the posts I read at that time, that was my impression.
Thanks, Cold Feet, for saying ``Not necessarily so''
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Oh, one other thought is that I don't think the MP has anything to address the cyst form of lyme. One would want to find out about that.
Many may use elements of the the MP but unless it is done exactly by the book, the guy who developed this is quick to say it's not the MP. He wants no variations at all (or, at least, did not when I studied it).
Some LLMD are using Benicar with some patients. But that is not the MP.
If you think Benicar may help, it need not be the MP. But, be careful that you don't think you can alter the protocol at all and it still be the MP.
posted
I respect your Experience on the MP cold feet, but my experince was that of misery. I know it is NOT like that for everyone.. but personally for me.. It was what made me worse and I am still trying to get better from it... that was a YEAR ago. I got so incredbly ill on the MP... Lets just say my family was VERY scared. I spent 6 months in darkness, my children living in a cave. It became VERY isolated and depressing.. to say the least.
I was also treated very poorly by the moderators and followers of the board as well
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
| IP: Logged |
Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
UnexpectedIlls,
I'm so sorry! I knew abx hadn't helped you, but I didn't know you were on the MP. I've heard some good things, but heard other stories like you had, very very scary.
I hope you are doing better. Still on raw foods? I finally restarted again and today is day 3, feeling very very foggy today.
posted
I did the MP for 6 months while I was undiagnosed.. no one knew I had lyme at the time. when I found out (through my own research) that I had lyme my LLMD pulled me off asap... various reasons.
I did 6 months on MP and 6 months on LLMD treatment.
Actually I had to stop completely raw... I am still doing raw and jusicng... but I HAD to add things to my diet... My ND said I was depleting myself.. and although I am/was a veggie.. there are certain things I have to eat... I have to see my food as medicine.. even though I am not too happy about some it.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
| IP: Logged |
posted
I am one of the chronic Lyme patients who has enjoyed very good results with the MP. I know a few others who have also enjoyed success with it.
Likewise, I know numerous others who have followed it to the letter and who have not improved - some of whom have gotten much worse.
In many such cases, patients were then considered non compliant and denied further support. All too frequently, those very patients were banned from the website and their negative reports hidden. I have my own personal doubts about whether or not their data was ever included when tabulating the website's results.
Despite my own success story, I have some major concerns about referring people to that website and that course of treatment. It is a very difficult and extreme course of treatment.
It sounds as if there are other avenues that may be better for you. You can always come back to it later if nothing else works, but it's probably not something you should pursue as a first line of treatment.
Of major concern to me is the fact that the MP websites tend to downplay negative reports and risks associated with the protocol. Also, I feel the in silico modeling utilized by the website has limits. It may be predictive, but I have concerns that it still doesn't seem to have been followed up by controlled in vitro and in vivo testing.
What is touted by that website as in silico evidence may very well be a starting point that indicates a need for further research by more objective third parties lacking ties to the outcome. Until there is such research, I would implore you to question anything you see at that site and to consider other outside information as well.
When I participated at the website, less stellar reports were hidden by the administrators. One of my concerns has been the heavy handed censorship that goes on at that website - for instance, private messages there are not private from the moderators and administrators.
Furthermore, there is a reason that patients refer to it as `the protocol that cannot be named.' One such critic, who was present during the early evolution of the protocol, was sued by the originator of the protocol.
Litigious behavior towards a patient and participant who helped to put the MP on the map did not help to assuage my own concerns despite my own success.
Of even greater concern to me are the reports mentioned at Mercola's website where a former participant at the website discusses several deaths and also cancers that have occurred in that patient group.
I left the MP site a long time ago, so I'm not familiar with those cases, but I believe the contributor in the discussion at Mercola's website to be credible.
Honestly, I would encourage you to work with your LLMD or someone else equally familiar with Lyme disease and co-infections for guidance. I'm sure your LLMD has a better track record and numerous successes of his/her own that you may not be weighing adequately in your present state of mind. Perhaps you can speak with some of those patients.
In the early days of Lyme treatment, co-infections were not always recognized or treated thoroughly. This may have led to some of the early treatment failures you have heard about. Treatment seems to have evolved considerably since then.
Being something of an old-timer here, I have seen more successes with traditional LLMD treatment than I have with the many of the other protocols that are out there.
Suffice it to say, I hope the MP will still be there if you ever really need it. I had the dysregulated D levels and fit that profile. As a result, it worked very well for me and for my family, but it wasn't an easy road.
Also, I opted for it after I had tried other things and was considered a treatment failure and kept relapsing. Now I'm medication free, with the exception of thyroid.
At this point, I'm doing very well and am still showing no signs of relapse. For me it's been of tremendous value, but it isn't something I ever would have pursued as a first option.
Do you want to start another topic where you might be free to ask others about their experiences with some of your concerns with the treatment options you have readily available to you? The search function here may also be of value when it comes to reading about the experiences others have had with various treatments.
Also, before you get too discouraged, you might want to search for the success stories that are on this website. Melanie set up a success story section a long time ago and I'm sure it has continued to grow.
Best of luck to you whatever you decide.
Posts: 487 | From USA | Registered: Feb 2002
| IP: Logged |
Thanks for the thoughtful analysis. I'm glad that you're doing so well.
Posts: 845 | From Eastern USA | Registered: Jul 2006
| IP: Logged |
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I think this is the most useful and clear discussion of the MP I've seen on this site over the last year or more that I've been participating here!
Thank you so much to each of you for your clear, honest, and polite comments!
As someone who had (and possibly sitll has) a very high D 1,25, along with sun sensitivity since I was a child, I have been very drawn to the MP.
I got the special dark glasses (still wear them), cut down on being in the sun, and cut out most all sources of ingested Vitamin D (no milk, eggs, fish, etc.). I also use less florescent lighting and keep my blinds drawn.
Wearing the dark glasses helped with my brain fog issues and moods.
I even picked out my LLMD because he was someone who did the MP!
However, when I went for my first visit, I found out that he only had two patients still on the MP--all the rest of the ones he'd had on the MP were now off of it. He said he was an early and enthusiastic adopter of the MP, but that the results in his patients and the problems they had trying to do it made it not worthwhile, in his opinion.
Ugh.
Anyway, tests showed that I had Babesia and the bartonella-like organism (BLO) you can read about on Lymenet. The last time I looked, the MP site said that treating Babesia first was a good option. It's a red-blood parasite, and not something that the MP would target anyway.
Since I still had Babesia symptoms after self-treating with herbs for about 8 months, I thought I might go onto the MP when the Babesia treatment was complete.
I started with the Babesia treatment (herbs and then Mepron/Zith), which I have just recently finished--but it took over a year. I've learned a lot during this time, and am not going to do the MP now, although I do hold it "in reserve" if I truly need it in the future.
I have tried Buhner's herbal protocol for Lyme (got seizures for the first time in my life), Cyrptolepsis (helped), artemisinin (helped), detox foot pads (helped), Doxycycline (got a seizure), Clyndamyacin (pre-seizure aura), Mepron/Zith (helped a LOT), anti-fungals, Humaworm, DMSO, vitamins (some help a LOT!), niacinamide every couple of hours, hydrogen peroxide and inversion (helps), bee venom cream (helped some), systemic enzymes (helped), magnesium, the symplified methylation factors that have recently been discussed on Lymenet(still taking these).
I also got Bowen therapy, accupuncture, and reflexology treatments.
At this point, I'm doing the Allergie-Immun drops from Germany, and will be reporting to my LLMD about what occurs with them. I'm still taking quite a few vitamins and the symplified methylation suppliments as well as chlorella for detoxing.
I would like to try the Bionic 880, but that may not be possible.
So, my personal advice to you is to find out if you have co-infections, as these may not respond to the MP.
Keep researching--I spend at least an hour a day finding out more about Lyme, eo-infections, people's experiences, etc. It's YOUR BODY. And, there is truly no single route that works for everyone.
Hope this helps!
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Frown]](frown.gif)
Printer-friendly view of this topic