posted
Need to ask opinion of, I finally got ID doc.(best could do)on my Ins.
Got the picc Line short of 1 bout week, due to mess ups.
ANYwho, new would not be cure but my last yr. was worst, I new. Leading towards ALS/Parkinson. Hoped to stop progression.
I feel all did was stir chetes up, with no back-up antibacterial or viral.....???? all know not even near myself, I tried for ,
I am very discouraged that I am even worse off. Got over the Herx part6th week, really after was off. Heaved like never did before. Felt ever orifice From eyes on down. Huggggsss, to all in need
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
kerryblue,
Did you follow up the IV abx with orals? You need your doc to do that. i so wish that you had the access to proper treatment.
Let me know if I might be of any help. I am near you in FL.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
Hi, Thank You (feelfit), NO that is problems Half *** 20,000 of meds. & then go no where without medical back up. I was not sure if late herx, but now is lingering. You think you are doing right after all years to fight treatment & get HMO to pay which had been battle....sigh.... Now back to square 1 or worse. The ID. Dr, did say I prob. know more about Lyme than he. Then yet I inquire about Igenex to find the Co-infect. which Yrs. ago was Poss. everything(why got treatment). His tests 5 bands & PCR were neg. so he was not happy about this. Leaning towards ALS worst yr. ever. Been battle for yrs. to get more than band-aids treatment. Been Dxed with FM/Know have & it1s sister MS/ME ++++Lots neck injury & pain. Nausea non stop. I believe all of this is linked. No diff. than 100 names to cancer yet under 1 name. This is NO diff. We all start out with flu-like symptoms & never gets better. Then as cancer goes to it`s own branch of tree. That is why same as cancer depends where it attacks which branch. From the root which is prob. mycoplasma.
I have no doubt after 100 yrs. old that mosquito`s also carry by now.
Just all huge cover=up, & no cure, expensive treatment that does not work on many.
Is Mich. Close to FL???? My sis lives in Whitehall (tiny town on Whitehall Lake)/// Huggggssss, to All in Need
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hi Kerry,
No, Michigan is not close to Florida. I live in florida over the Winter. I just am here in Florida for longer this season because I am on IV.
I feel so bad for you. I know that you don't have the money to see a doctor outside of your insurance. I wish that you would speak to Dr C. (FL) and see if his Clinic of Angels could help you out.
There is always a way.
Do you have any support there for you?
I know that in your day you were very involved in all of this Lyme and TBI stuff. Do you have any connections left from those old days who might be able to kick some ideas around with you?
PM me if I might help in any way.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
Hi, Thanks FEELFIT, just lost my blog. Feel if had been put on doxy after picc sure would been better.
I have felt quite alone did most all on my own. Kids did not even know. They back off any Lyme stuff. Do not believe.
Just that No 1 cares hurts, except mom keeps in touch & she is 88 with her eyesight going daily.
SIS, is oncology nurse & does not believe eve showing her picc. Line. I call if chemo for Lyme.
Still sick, know in late stage & going down little faster than norm. Huggggsss, TO ALL IN NEED Thanks for find words Feelfit, some are not so polite, Arghhhhh
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
((((((kerryblue))))))
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
Hi Zombie, Hope not?? Thank sending nice note. I already for got what asked you, DUH, whats new,sigh I fought 20 yrs. for treatment finally go picc line in. Herxing after, also feel worse. Think might just stirred up chetes after 30 some yrs. NO BETTER IF WORSE/NEEDED BACK UP DOXY.
I am so sorry that this crud is left to get these
THERE IS GROUP FAMILY,started very long list of their loved 1`s died,(say we do not die of). They what should really be on. Gives us more action for. Look at panic of few Swine flu. When me have thousands+ who need all these relationship that finally die of. Heck, more than half, could not live anymore were Most people with FM/MS/ALS/Parkinson's just diff. branch off tree we get. As cancer why hits liver or bladder pick it`limb of tree. I have said this before feel mycoplasma is main root.
HUGGGSSS, TO YOU, ALL IN NEED....!!!
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic