LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Gastrointestinal problems

 - UBBFriend: Email this page to someone!    
Author Topic: Gastrointestinal problems
cecekoo
Member
Member # 19572

Icon 1 posted      Profile for cecekoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
The feeling of bloating, abdominal pain, fullness and gas after eating (and weight loss) may be due to problems with sluggish stomach or intestinal movements. This can be due to Lyme neuropathy. The best tests for this would be either a helical CT scan with IV contrast, or a nuclear medicine study to test for "gastric emptying". You could also have bacterial overgrowth in the intestine from sluggish intestinal movements. If that is the case, than a short course of antibiotics like cipro, falgyl or doxycycline may help. Reglan is another medicine that helps move the stomach and intestine. Pancreatic insufficiency may be another reason.
Posts: 14 | From OR | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi cecekoo. Did you intend this to be a response to someone's post?

Just wondering.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
LittleLymie19
LymeNet Contributor
Member # 15610

Icon 1 posted      Profile for LittleLymie19     Send New Private Message       Edit/Delete Post   Reply With Quote 
Are there any remedies for lyme neuropathy of the gut? That's what I have. The nerves in my digestive system have stopped working so my peristaltic action is gone and my absorption is minimal. I also have a lot of pain and bloating.

I've had a course of biaxin- 10 days. That's all I could tolerate because of how weak my body is.

I was on zelnorm as well, which I hear is like Reglan, and it didn't help.

Do you have any other suggestions?

Where do you get you information?

Thank you.

Posts: 710 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Capa
LymeNet Contributor
Member # 18930

Icon 1 posted      Profile for Capa   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Biaxin was horrible for my stomach and I only lasted a little over a week on it. I'm taking a break from antibiotics because my stomach is so bad but will most likely end up on IV Rocephin soon.

--------------------
Lisa D

Posts: 103 | From MA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Welcome; i'm so glad you found us!! You've come to the right place for education and support!


Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/lyme_disease/treatment_guidelines.html


Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf


this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77378


please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!

http://tinyurl.com/Bettyg-NEWBIE-PACKAGE

***************

please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber
print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.


Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
------------------------------------------------------

People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
*******************************************

IP: Logged | Report this post to a Moderator
Buster
LymeNet Contributor
Member # 19472

Icon 1 posted      Profile for Buster     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have gastroparesis, it is a living hell but I am about to try doperidone or something like that, Doc said it should help better than reglan, reglan is a nasty drug.
Posts: 458 | From Miss | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
cecekoo
Member
Member # 19572

Icon 1 posted      Profile for cecekoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Is Domperidone available in US market? I know that it used to but how about now?
Posts: 14 | From OR | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
my doc gave me dicyclomine. causes constipation,. which i am suffering from. geez, give a person something like that to cure constipation??

i give up....

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
missextreme
LymeNet Contributor
Member # 3610

Icon 1 posted      Profile for missextreme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Try coffee enemas. They have helped me sooo much. They are on the Gerson Diet, which Dr. C in Missouri recommended to me.
Posts: 204 | From Wyoming | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
LittleLymie19
LymeNet Contributor
Member # 15610

Icon 1 posted      Profile for LittleLymie19     Send New Private Message       Edit/Delete Post   Reply With Quote 
What does the Gerson diet entail?
Posts: 710 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
klutzo
Frequent Contributor (1K+ posts)
Member # 5701

Icon 1 posted      Profile for klutzo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have the pancreatic insufficiency that ceeceekoo mentions in the first post here.

I took OTC enzymes for a decade, thinking my lousy digestion was just part of Lyme and I'd have to live with it, since I had heard so many Lymies say they were told to take enzymes with meals. Then my fat digestion got so bad that OTC enzymes no longer worked.

If you have it, you will need to take prescription strength digestive enzymes with each meal or snack, eat no more than 60 grams of fat daily, and eat four small meals daily.

Without the enzymes, proper nutrition will not be absorbed, and weight and then hair will be lost, not to mention awful fatigue. My mom died of this back when they did not have enzymes, so I know what it's like w/o treatment. She went down to only 62 lbs. at 5'7" tall.

Pancreatic insufficiency is serious, cutting life span by an average of 20%, so if you have any of the symptoms mentioned in the first post in this thread and/or clear oil floating on the water in the commode and/or BM's that streak the side of the commode, go see a GI doc ASAP. By the time you show symptoms, at least 90% of your pancreas has already been destroyed.

klutzo

Posts: 1267 | From Clearwater, Florida, USA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
klutzo, i'm sorry for your loss.

i have bad stomach pain which comes on about 15 or so hours after eating. cannot tolerate any fat at all.

stools are mostly light tan with oily mucousy spots in the water.

i've had every tests known to man except the ercp, and my gastro still insists i have one of the worst cases of ibs he's ever seen.

i a terrified of pancreas problems and refuse, absolutely refuse, to accept ibs.

he won't give me the enzymes so i have to take OTC.

i don't know if it's lyme or not, but, yes, it's making me absolutely miserable.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
rebecky
Member
Member # 19251

Icon 1 posted      Profile for rebecky     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi there,

I am just beginning this journey and am seeing a LLMD on April 6th.

I too have gastroparesis that I believe has been caused by lyme or some bacteria still to be determined.

My gastro tried me on reglan but it made me really agitated so he put me on domperidone.

I have to have this compounded and only one pharmacy in the area does it.

No, it is not approved by the FDA in this country.

It was conditionally approved by the gastro division of the FDA but didn't make the final round.

I felt it made me more hungry and I didn't really feel "better" so I stopped taking it until I talk with the LLMD.

I am overweight, which I believe is lyme related, so an increase in hunger is not the best for me right now.

I have also started twitching, in my face, arms, etc...

Posts: 19 | From Dover, NH | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
LittleLymie19
LymeNet Contributor
Member # 15610

Icon 1 posted      Profile for LittleLymie19     Send New Private Message       Edit/Delete Post   Reply With Quote 
Klutzo,

That is alarming, because I just recently tested positive for pancreatic insufficiency, and I've probably had it for at least 10 years of my life (I'm only 20).

I can only tolerate about 10-15 grams of fat a day, and NO oil. Just an ounce of avocado, then the trace amounts of fat in the massive amounts of carbs that I eat.

I'd love to hear more about your experiences with pancreatic insufficiency, and what you did. Why is it that it shortens the life span, even if you begin treating it? Is it the lack of fat? [Frown]

Posts: 710 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
cecekoo
Member
Member # 19572

Icon 1 posted      Profile for cecekoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

Just took amoxicillin and azithromycin and within few hours, the stomach issue is getting better and gaining weight.

Just and update.

Posts: 14 | From OR | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
missextreme
LymeNet Contributor
Member # 3610

Icon 1 posted      Profile for missextreme     Send New Private Message       Edit/Delete Post   Reply With Quote 
The Gerson diet is:

- high amounts of natural juices. This provides natural nutrients that are very depleted in Lyme Disease

- frequent coffee enemas that elimante toxins. These REALLY do help, as I have found in my own experience.

- high doses of Pancreatin


I follow a modified version of the Gerson diet, and I am recovering my normal health.

It works!

Posts: 204 | From Wyoming | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
missextreme
LymeNet Contributor
Member # 3610

Icon 1 posted      Profile for missextreme     Send New Private Message       Edit/Delete Post   Reply With Quote 
One more thing to add:

Gastrointestinal issues have been my biggest problem with Lyme Disease. As I have gone on a stricter diet and started on enzymes, I have drastically improved. I can work, go to school full time, and am continually improving.

The use of enzymes and coffee enemas have helped my gastrointestinal issues significantly. In the past year and a half, many of my worst issues have been resolved. My pain is so much better than it used to be!

Contact me, please, if you have any questions. I would love to help you in any way.

Posts: 204 | From Wyoming | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
do you think if i asked my llmd to give me digestive enzymes, he would?

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.