posted
Has anyone heard of this test? My doctor said it was the best, is it better than Igenix? I tested negative for it so my doctor doesn't think I have lyme she feels it's mixed connective tissue disease. Since this doctor is a LLMD and Rheum. I'm not sure if I should get a second opinion or go by what she says. She is Dr. G in NJ and was the president of the lyme board a few years back so she is one of the best. But as we all know even the best can make mistakes. I was going to go for a second opinion to a Dr. C in Westchester but he only used Stoneybrook labs and I heard that wasn't as good. I'm really confused as to what I should do, I know Lyme can mimic mixed connective tissue disease so not sure if I should keep looking for a doctor to give me the igenix test or stick with Dr. G?
I've been on plaquenil for 3 weeks now and still don't feel any better. Has anyone else been diagnosed with this disease and later on found out it was lyme?
Posts: 19 | From New York | Registered: Dec 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
No 'real' LLMD would put credibility in a C-6 Peptide test...get yourself a new doc.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Actually "real LLMD's" do put credibility in the C-6 peptide test. LymeBlogMD believes that it is a credible test as part of the puzzle. Certainly not the only test to use. A Western Blot is better.
And Seek is right, if your doctor is basing your diagnosis soley on the C-6 Peptide test, you need to find someone who weighs all factors...
A Lyme Literate Medical Doctor. Post here in seeking a doctor for someone who will lead you in the right direction.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Better wording Feelfit. Thanks! Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
The C6 test is not uncommon, but the results of that alone are not much better than WB, which is not that great anyway.
C6 is related to ELISA and western blots in a way - they all measure the response that your body is producing to the bacteria, not the bacteria itself.
Igenex is the company, not the test - the way they build and intrepret their Western Blots is just considered more sensitive than other labs that use commercial kits. Igenex can run the C6 test as well - it is #170 on the form.
Posts: 263 | From Capital Region, NY, USA | Registered: Jun 2008
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posted
I treated with her for over a year and I agree that she definitely treated SOLELY on my C-6 peptide results.
As the results of this test had no direct correlation to the severity of my symptoms, I ended up switching to a new LLMD who treated more comprehensively.
Just my 2 cents.
-------------------- Carol Posts: 38 | From Essex County, NJ | Registered: Feb 2007
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posted
just a thought- i was tx by rhum for over 9 yr
for "auto-immune" soup so to say. at most points
all auto immune d/o are tx with immunosuppression
and use ones that corrolate to symptomology at
that time-- that said, now my immune system is
trashed from yrs of immunosuppression adn i do
now have CDC positive lyme and RMSF, M pneu,bart
babs is only one tx on s/s right now
just a thought
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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