posted
I have this from the beginning - severe hyperreflexia in my knees and wrists
My LLMD seems to think it's related to low magnesium
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
This happened to me with my first LLMD visit. I was really surprised, the LLMD apologized to me as one of them hit something (don't remember what). My second LLMD visit, this wasn't the case. My adrenals are MUCH better. I had a weeks worth of panic and anxiety either last week or the one before, but the past few days I feel really calm.
I was feeling calm at the appointment on Thursday and the knee reflexes were appropriate. Are you still feeling really wired (that's how I feel when I'm so anxious I just cannot sit down or watch a movie or anything)? I don't know if it has anything to do with it, but when I was in extreme anxiety state, my reflexes were hyper.
I'd never heard of hyperreflexia before, but when I finally saw a neuro, she wrote it as one of the dx on the lab slip for the MRI of my SC.
Later, when the MRI came back pretty much normal, she dismissed it as "common in young women."
I'm 39. Is that still considered young? ha ha ha.
Anyway, I saw reference to it in Burrascano's 2008 protocol under "magnesium defficiency,"along w/a bunch of other sx I have.
He says oral mag is not enough for ppl w/these sx, and that if it's that bad it shd be IV. (That's what "parenteral" or whatever that word is, means, right?)
-s
Posts: 223 | From Western Mass. | Registered: Nov 2008
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posted
Thats what my preventative doc says. Not LLMD.
He has me on IV mag in myers cocktails. Said the mag especially and b's can get so low that the body does not absorb unless flooded.
I hope this is the cause of my "creepies" in my arms and legs as well.
Posts: 861 | From USA | Registered: Dec 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hey Feel,
Sorry I should clarify. I mean maybe it has something to do with startle reflex. Like adrenal. I know when the anxiety was SO bad last fall, a friend's barking shih Tzu about threw me through the roof, I jumped so high. Just driving with my husband made me gasp every time he turned the cruise control on or off because the car would lurch ever so slightly.
But enough to set my nerves off. It was awful.
Anyhow, I would ask your doc, maybe they will have an answer for ya! I'll have to pm you what my LLMD said about my heart palps, an explaination I've never heard before.
posted
I have brisk arm reflexes and normal leg reflexes and an over active startle reflex - but underactive gag reflex. All neuro stuff. Very confusing and worrying too. Hyperreflexia is considered an UMN sign - upper motor neuron - hence the association with ALS.
Posts: 42 | From new york | Registered: Dec 2008
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Dawnee
Unregistered
posted
I am very hyperreflexic. 4+ in arms and legs and crossed adductor reflex. My shoes have actually flown across the room (lol) I also have what my Dr says is myoclonus. Starting almost a year ago I had major startle/adrenal issues. Everything would make me feel like I was going to have a heart attack and my heart would race over the stupidest little things.
My LLMD attributes it to Lyme and after almost a year on abx I still have hyperreflexia, but I can tell it's quite a bit better. The startle reflex is still there but is MUCH better!
Before I was dx with Lyme I was MAJOR freaking out because I had the hyperreflexia AND major muscle twitches all over. Then experienced percieved weakness in my arms. Of course I thought "ALS!" and went to my old neuro FaREAKING out. He thought I was just crazy, but performed an ENG on only one arm just to prove I was okay. And it came back normal. I still freaked until I found my LLMD, got tested and was told it was all Lyme related and that I was going to get better. And I am getting better
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posted
Same here. At LD onset, I had major hyperreflexia, everywhere. Like Dawnee, I was pretty freaked out when that was combined with crazy amounts of muscle twitching.
My reflexes have calmed down some after one year of treatment. Now if I could get my CNS to calm down...it's still way over-active. I still have an over the top startle reflex, it's better, but not normal. It's the "plugged in" vibrating feeling I really hate.
You're not alone with this feelfit. Hopefully it will get better with tx. TS
Posts: 566 | From West Coast | Registered: May 2008
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posted
I have the same. And major twitching/crawling/buzzing & overreactive startle reflex like TS and Dawnee. Also have weakness in left arm related to nerve damage, found on NCV test.
It's all of this CNS and peripheral nerve stuff that's the worst for me.
I wouldn't worry about ALS. It all seems pretty common with lyme. Just wish it would go away.
Posts: 453 | From TX | Registered: Aug 2008
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