I have always attributed it to chostochondritis, which I do have, which does make sense and is part of the lyme.
But the other night, and sometimes, I get the chest pain while I am laying down and cannot move. I feel like if I move, the pain with go past okay and kill me or something, It is a paralyzing pain that I have to move very very slowly to get into a comfortable position raised on pillows on my back, then the pain subsides after awhile.
Does this sound like chostochondritis???
I heard Montel Williams talk about a chest pain he gets with MS related to his diaphram something or other and it clicked, it dawned on me, could it be this??? Does anyone know what this is?
Thanks for any feedback as I continue to be a doctor to myself for the time being.....
posted
i have gotten this also; went to er too; nothing showed on xrays, and them putting those heart clips on me; removed them for xrays and then put them BACK ON KILLED ME ... PAIN WAS WORSE THAN FORCIBLY hooking them up was worse than pain i came in with.
the pain is also in your pressure point area; my fibro is in all 18 of 18 pressure points.
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I won't be going to the ER if I can help it. Only have had to go once through this whole thing.
Today my legs are killing me, fell down some stairs this morning, very lucky I caught myself because I almost didn't and I started falling from the top stair so it would have likely been ugly.
Gonna work with my neurologist and go ahead with another MRI.
Then a PET scan to check for Parkinson's and Alzheimers, if the price I have to pay is affordable.
Otherwise he also is looking at MS.
I am ready to try something new other than antibiotics. If it's a Parkinson's then apparently the drug they have for it is immediately successful and so I would know.
posted
Hi Lymetoo, yes I saw that, really good info.
My problem seems to be the antibiotics have only gone so far whereas that man benefitted a lot, right??
Still, it won't hurt to do the PET scan to see. If another kind of med can help, I really don't care what I call it.
At the same time...I don't rule out the possibility of running back to antibiotics, or at least no active meds, and calling it neuroborrelia...if all else fails.
I am glad that Y'all bring this problem up and provide info' from time to time.
And Tinnie is right about ER, if it wont subside.
1st time I had Chostacondritis [ my costly conundrum ] in '95 my heart rate soared from the pain, went to ER. I couldn't go home 'til it calmed down.
Then in 2003? I think, I had Pleurisy, same kinda pain under the ribs[lower lung area] instead of across the upper chest.
Have also been told under the ribs, rt.side I think? Is where the spleen pains if swollen... Common w/ CEBV. I used to have trouble catching my breath when it was bad. It has calmed down some!
Recently ,here, Someone asked about this kind of pain around the back bra strap where it goes across. Hadn't tho't bout the pain being the same sort of thing...but it does make sense.
<<<<< 'Turtle' >>>>> I hope the pain eases soon. Please don't let it go if your heart starts to racing. I know ER is darned expensive,but we don't want to lose you!
I didn't know, when my problem hit in '95,what it was,and a 32 year old friend had just gotten out of hospital w/ a heart attack. We talked to her and she begged me to go in.
Didn't take much begging ,I am relieved it wasn't an attack,I hated the expense of ER,but was so glad I had it checked,and they got the pain and the heart rate calmed down.
Please update how you are doing w/ this issue from time to time...I know it is very painful.
Jus'Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Had another episode last night, but not chest pain.
Tried a muscle relaxer since my legs were/are killing me. It took the edge off an itty bitty bit but after an hour I found myself extremely nauseas and about to vomit, heart racing, hot/a little sweats, and it came out the other end. Felt like a wicked episode of the worst GERD you ever want to have. Again, an almost ER kind of feeling, but it passed.
Silverwolf, sorry you have the chosto too! I did not know it could be so paralyzing even though I've had it for well over a decade. Just seems to have gotten worse when it flares. Heart also thumps at times too.
Lymetoo...that makes sense. Most meds I can't tolerate so I'm well up a creek!
I'm gonna go through the thing with lyme friendly ish neuro, then funding permitting, follow up with LLMD. She did a test and knows which meds I can and can't tolerate.
posted
I have had chest pain as well. My heart rate tends to be very slow and we haven't caught any episodes of tachycardia. If I ran to the ER everytime I had chest pain I'd be living at the hospital and they'd probably admit me to the psych ward.
I'd also love to get to the bottom of this!
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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