posted
Does everyone who has Lyme also have all those other co infections. My LLD thinks I have Lyme and a cmv co infection but all my other tests from Igenex came back so clean that she doesn't think I have other co's right know.
Is there a possibilty that I don't have any other co infections except the DNA virus.
I have none to few neuro issues, just pain and insomnia and some anxiety.
Posts: 199 | From utah | Registered: Jan 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I didn't think the test for co-infections were any more accurate than the test for LD. I thought most LLMDs treated co's based on clinical diagnosis also.
Sometimes the symptoms for co's come out later during treatment for LD. Well at least for some people.
It is possible to have just LD and not co's. I would quess that it is rare though.
Just my opinion, but I think that the pain of LD is a neuro symptom as is insomnia.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Leelee
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Member # 19112
posted
I have a clinical diagnosis of Lyme and Bartonella. The Bartonella diagnosis was made based on skin lesions and dermalogical problems on my back and nose.
My LLMD sent my blood work to Igenex for Lyme and Babesia and to Fry for Bartonella. I won't have the results for about three more weeks.
I have read that most people who have Lyme have co infections too, but I don't know if that's a hard fact. I think it's often difficult to get accurate results for some of the co infections.
I also agree with sutherngrl that co infections may appear as your treatment continues.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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groovy2
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Member # 6304
posted
Hi Bwillis -- It is possiable that you only have lyme but the majority of people have co infections--
from what I have seen about 70% of people have Babs -- and around 40% have Bart --
The tests for co infections are just as poor as the test for lyme--
Thats why LLMDs DX by symptoms and use tests for back up ONLY --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
When I look at the symptom list for babs and bart, I have so few of them, almost none, but a few that can also be from Lyme. I see so many people treating for these co's but my LLD says what we're doing should get Lyme and the co's anyway but we must treat the viral co's differently.
I have no cognitive problems, (I'm always so sorry when I say that Betty), no coordination problems, no heart problems. Could I just be in a little better shape because I have had this a shorter time than most.
I guess I'll just keep listening to my LLD and do what she says, maybe my fears will be helped a little next week on my next appt with the doc.
Posts: 199 | From utah | Registered: Jan 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It manifests in different ways in different people. There may be many variables at work here.
Some people with babs do not get the associated fevers/night sweats while others do. Similarly, lyme may affect any number of bodily systems and this in part accounts for the varying array of presentations.
Of course, genetics plays a part too and whether or not you have pre-existing conditions, like hypothyroidism for example.
Chronic fatigue and ongoing endocrine issues have been my main symptoms...not to mention floaters.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
Bwillis, I have only Lyme. Given the symptoms and test results for me I would have to say it is possible.
Posts: 262 | From ohio | Registered: Jul 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I would have to say that a majority of people with Lyme would have coinfection...
I am no MD, but most everyone I talk to has at least one if not more.
It is possible to just have Lyme, I wish that was my case.
Its been 2 years diagnosed and went from o to 3 in that time period.
The first co I found out I had was Bartonella, both strands ( B.Henselea and B.Quintana)
Then came the Babesia and the Mycoplasma...
I wish you the best and hope you just have Lyme!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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