Just this morning this started I was on the train on my way to work and I had a twinge in my urethra and I adjusted my sitting position and then again.
By twinge I mean a painful shooting pain.
Then that went away and I was left with this need to urinate.
I got to work 30 mins later and went into the bathroom. I urinated without any pain and when I looked in the bowl everything looked fine.
But I still have this sense that I need to urinate again and I just feel a little weird down there no pain just discomfort.
Anyone know what could cause this suddenly? Yeast problem? LD?
I feel as though I've made some great progress with my treatment and then wham a new thing comes by to say hey your not done
I will keep fighting and praying though.
Thanks. Melissa
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
Are you taking anything to help you sleep? I had this problem when i was taking Tylenol PM every night. Problem went away when I stopped doing so.
Posts: 277 | From NY | Registered: Jun 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Every time my daughter would get that feeling, she would go to the doctor and get a test for a bladder infection.
In all her years of being ill, she has never had a bladder infection.
This feeling eventually went away. I think it has something to do with bart and a nerve that goes from the brain all the way down the body.
So, if you are herxing with neuro issues right now, this may have aggrivated this nerve.
Just to be on the safe side, you can get tested for an infection, but wait it out and see if it goes away.
With this feeling also came the feeling of urine retention, urgency, sometimes incontinence (this isn't fun for a 17 year old girl)
Hope you get an answer.
Posts: 2903 | From AZ | Registered: Feb 2006
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Possible urinary tract infection, or possible new LD symptom.
Different bacteria are sensitive to different antibiotics, so it's still possible to get a UTI when taking antibiotics.
It would be worthwhile to see your Dr for a urinalysis/eval.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Thanks all, I am drinking tons of water and try to wait it out a day or two to see if it improves.
Dan- Not taking anything for sleep but I do take valium for anxiety.
Kelmo- So sorry for your daughter poor thing I can't imagine being 17 and dealing with any of this. Also I have been having nerve things lately and you kind of read my thoughts on that front... Any relief for these nerve things or just be patient and keep going with treatment?
Dekrator- Thanks for the info I have not ruled out that possibility...
Melissa
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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bettyg
Unregistered
posted
interstitial .... can't remember the other word; tutu will know it when she reads this.
i have this feeling 24/7! had testing done with me sitting in stirrups peeing... BLADDER SPASMS i believe was my diagnosis.
I have had the same problems since last September. I feel discomfort and a little pain in my bladder and have urgency and frequency.
I was checked by my doctor in September. No infection. Then I was checked again by my doctor in February. No infection.
They started treating me like I was crazy when I told them I was having bladder issues and had no infection. I started to wonder if I was crazy.
Then I found out on LymeNet that it is another symptom of Lyme. I have met two other women in my Lyme support group who have this problem as well.
Lymetoo said that Lyme can cause interstitial cystitis. I don't know if that is what I have, but I am trying to watch my diet so I don't irritate my bladder more.
One of the women I met said that her treatment is helping this symptom improve.
electrolite
-------------------- I was diagnosed with Lyme Disease in August 2007, but I now feel it was a misdiagnosis. I was finally properly diagnosed with Chemical Sensitivity in February 2011. My life has changed drastically since then. Posts: 128 | From Dallas, Texas | Registered: Jul 2008
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I had this problem for a long time at the beginning of the flare up of my Lyme, before the fibromyalgia symptoms and the CFS symptoms and the RA symptoms and the meningitis symptoms (all misdiagnoses I received, except the meningitis - I was given prednisone for that, then the urinary problems developed not too long afterwards).
Unfortunately, my PCP and the Urgent Care facilities I visited all decided I had urinary tract or bladder infections without even doing a culture the first few times. I was given antibiotics and had terrible problems with them, especially the Cipro.
I also compounded the problem by drinking cranberry juice like it was going out of style! I was SOOO miserable I would do anything to make it go away. I drank cranberry juice morning noon and night. I took Vitamin C like crazy. At that point I was drinking so much cranberry juice I was making my urine very acidic and it would burn even more.
Did I mention this went on for months? I spent so much time in the bathroom I was falling asleep in there sitting up with my head propped on the counter by the toilet. Miserable. Then one day it just went away. I had stopped drinking cranberry juice for some time, which may have been prolonging the discomfort - hard to be sure when it actually stopped.
What it came down to was the last time I went to my PCP for this and they finally did a culture and found nothing.
Later I came to discover I had Lyme and that this can be a symptom. It can be from inflammation of the bladder and associated areas, or from inflammation or damamge to the nerves connected to those areas.
If I were you I would definitely insist on a culture before anyone treats it as a UTI or other infection.
posted
Frequent urination can be a lyme problem, as lyme loves bladders. It can also be a side effect of some meds. For instance, the beta blocker metoprolol lists it as a side effect.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
This symptom is terrible! Once I was up for about 24 hours because I felt like I had to pee so much I couldn't sleep - of course I couldn't even go most of the time!
It hurts! . Again another weird Lyme symptom, some have it much worse than I do and know alot more about it - I believe it is called Interstitial Cystitis - I am pretty sure I spelled that wrong.
Anyway, I have found acupuncture has helped a lot with this for me; also my LLMD recommended an over the counter bladder analgesic that gives me some relief when it becomes unbearable.
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
Wow guys I'm so sorry you all have had so much experience with this... but I'm glad to know it can go away.
I am Just drinking water alot I have an appointment to see my LLMD on Tuesday and my PCP on wednesday so I guess I will just discuss it with them then, unless it gets much worse.
Thanks again for all your replies.
Melissa
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
as above, first get checked for bladder / kidney infection.
if clear ask dr about inter. cystitis (big word for bladder irritation )
I have bladder symptoms off/on. usually on. in my case, have noted lumbar prob. and nerves coming off lumbar spine affect bladder, gi, lower nerves, etc ( some of thorasic nerves too )
for this, I have been using heat, trigger point massage, craniosacral massage. most importantly I try to make sure I use r.r every 2hr if I feel like it or not to prevent neurogenic bladder
best wishes
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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posted
I have this same problem. I have had it for about 10 yrs. So I am used to it now. You learn what makes it worse. Like caffiene. It was one of my earlier Lyme symptoms even when I didn't have a clue it could be Lyme.
Now my 10 yr old son is having this problem. Gosh it's a whole lot worse when it's a child. He is missing so much school because of it. We are putting him on a medical leave because of all his symptoms. But this one is the worst. He was having troubles going to sleep tonight. Poor guy
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I agree first get tested for a UTI and have that ruled out.
Also, it could possible be caused by a yeast infection, so you may also want to rule that out as well because it can also cause bladder symptoms. Best to go to your gyn to have them do a swab to rule this out.
Do you notice that the pain increases after eating certain foods or drinking certain beverages?
It could be interstitial cystitis.if an infection is not found ..I have this and it was caused by lyme/coinfections.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Amy Sorry sorry to hear about your little man I hope he feels better soon.
Thank you can't give up, I am going to get my urine tested on Monday by my PCP (the earliest they could get me in). Hopefully they can help me figure out what it is...
What would cause a UTI?
Thanks.
Melissa
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
Just about anybody can get a UTI. Very common. Just happens.
My3boys... IC is a very serious problem, for which there is no cure. "Bladder irritation" is insulting to me.
IC ended my teaching career.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Sorry you have suffered so, Lymetoo.
I thought my daughter might have had IC when she had her bladder issues, but after getting better with treatment (took over a year), I'm assuming it ws just a nerve issue or bladder irritation.
I think it can get confusing when the symptoms seem similar.
Hoping you get some relief, soon.
Posts: 2903 | From AZ | Registered: Feb 2006
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I think my 10 yr old has this IC. How do we test that or do you recommend that? If it's invasion I won't do it. He's going through enough lately!
It is his main reason he hasn't been able to go to school
I am pretty sure that is what I have too.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Although this may be an isolated event for you, just to have as general knowledge is the link below. Hormones (or lack of) can affect bladder function.
I recently started hormone replacement (bio-identical) and that "always having to go" sensation has been eased (until I caught a harsh bug that is going around here, doling out month-long coughing spells).
posted
It could be interstitial cystitis (bladder spasms/inflammation). My LLMD said it is quite common with lyme disease. I have it too, but it could effect others differently.
What I have found helps with the frequency/urgency is put a pinch of baking soda in a cup of water. It alkalinizes the bladder and the body. My doctor said it can be safely taken 3 times a day. You can use up to 1/2 tsp. baking soda. I usually start with a pinch to see if it helps.
Also, there is product called Prelief. Made by the same company that makes the product called Beano (for gas). I have only been able to find Prelief online, but some discount drugs are supposed to carry it. Just none near me. You take 1 or 2 tablets with meals. It neutralizes the acids, basically the same thing as baking soda, but you don't want to take the baking soda mix with meals. You need the stomach acid available for digesting foods. Not sure if Prelief adversely impacts that or not, but it does help the bladder.
Certain foods/beverages are known irritants for those with interstitial cystitis, so note if particular things are causing it to flare.
There is a website online for IC support and information. Sorry I don't remember what it is, just google interstitial cystitis.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Jam- thanks for mentioning prelief it has really helped me to be able to eat a lot of foods I couldnt tolerate before.
I don't post often but I read every day. I have Lyme but I was also diagnosed with interstitial cystitis back in 1997.
I didn't realize so many people suffer from it so I thought I would share what worked for me to put it into remission. I've been pretty much symptom-free since 2001.
A naturopathic doctor had me taking 2000 mg of MSM three times a day and I went from unbearable pain and discomfort to two hours later being pretty much symptom free.
It was a wonder pill for me. I used it for about three months and then weaned myself off.
In '97 I was using a brand called Doctor's Best but when I tried it a few years later during a flare-up it didn't work as well. However, that time, a brand of MSM from Target worked. Go figure.
For me, each time I had a flare-up, I was drinking a lot of Crystal Light. I avoid it like the plague now.
I'm not sure what worked for me will work for everyone, I just thought I'd join in and share since I've learned so much about Lyme from you all.
Jennie
Posts: 45 | From New Jersey | Registered: Sep 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I've had issues with this ever since having children--just thought it was stress on the muscles and stuff.
Went through the kegels, and that didn't help.
Keep getting tested for infection, nothing ever shows up.
I get it so bad sometimes--especially before we go away--that I go potty then 5 minutes later have to go agai, and 5 minutes later again.
I swear sometimes in the half hour before we go somewhere I go about 4, 5, or 6 times. It's awful!!!!
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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then 5 minutes later have to go agai, and 5 minutes later again.
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