posted
My mom called me a couple of days ago to inform me that Lyme disease was on the front page of my hometown newspaper.
The newspaper I worked as a business manager, and close partner with the publisher.
There are two women chronicled in this article, and all of their struggles through Lyme.
When my mom called she was crying, along with her coworkers. She said she never realized what I was dealing with, having this disease.
I plan to call the publisher and relay to him the struggle I have had with the disease, having to have open heart surgery umong other things.
He is a good family friend, and it would be nice if I could contribute to another article! Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
It's good to hear from you. I'm glad it opened your mom's eyes.
Please post the link to the paper, or the name of the newspaper. I'd love to read it.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
Hi, This is great to hear. I'm hoping more papers will write articles. Esp. after "Under our skin," hits theatres. Glad your mom and her co-workers read it and are supportive that is so important!
Take Care, Ann
-------------------- If you keep doing nothing...nothing changes!
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Our local paper came to our house to discuss Lyme and how it has effected my family.
It will be coming up in next Sundays paper...
My wife originally called to ask them if they would run an ad for our support group.
They were very intersted in the disease, so we figured whats better than having a newspaper put all the info out there?
After all, every paper in every town should write something about this disease...
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
roy, that's wonderful ... we look forward to hearing when it comes out, and please post the link here to read, and you know WE WILL ALL REPLY to it!!
astria, outstanding, would you happen to know the link IF you are feeling well enough to look. hope you are doing much better.
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I agree, every paper in every town SHOULD write something about this disease,
especially those places where ticks are a major problem as they are in my county.
I know I have hesitiated to approach our local paper because although I have had some rough times the past year, I don't feel as though I'm a major sufferer as some on here are.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
bettyg:
Will do! I hope they portray us in the propper manner.
My wife is making a point to call the editor before it gets put out, just to make sure everythings right!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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I havel looked and looked for the link to it and can't find it.
The website is statesville.com and it was on the front page of last Sunday's newspaper-March 15th.
The two women in the article said they were cured by Dr. J.
I am going to call the publisher tomorrow-thank god he is a great friend-and try to maybe get him to do another story, and to tell him the hell his little girl has been through.
My mom was a manager at this newspaper for 15 years and that was my first job, where I was business manager, so maybe I have some pull
Thank god I left on good terms!
I will keep you guys posted.
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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bettyg
Unregistered
posted
hi roy,
i did one 5 yrs. ago coming up aug. 04; took 3-4 months to get this done. this turned me down; they turned another woman down; together we were able to make a point and they did 2 separate articles on us, and the the next weekend, lyme support group had a table at local FARMER'S MARKET where we each told our story using their microphone system.
even 1 texan called my house during the time i was home; he was really glad i'd done it and especially on this statement i made which paper published:
"You look perfectly healthy...not sick" said one of my family members. Oh what they don''t know and can NOT feel of the pain and fatigue inside me! If I were in a wheelchair, used crutches, a walker, or a cane...I would have a visible disability.
"It's all in her head". Only those of you going through this know how much pain and anger you've caused us with your thoughtless comment on our "invisible" illnesses!
We don't want sympathy; we only want your support, compassion, and someone to talk to when our "flare-ups" are bad. I have been blessed with my supporter, husband, and close friends.
fyi, newspaper here would NOT let me read her final story before printing! all mistakes i brought to her attention thru the FEEDBACK COMMENTS to the link of our story. so be prepared! you don't know until it's in your lap as you read! xox
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
astria, i just tried looking myself! boy, their search feature doesn't work at all!!!
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
bettyg:
What a great story!!
You are right... all we want is support and for the medical field to take this disease serious!
If I was hobbling around with crutches or a cane, like you had mentioned, people would feel bad.
You know what though.... I Look Good! Boy am I sick of hearing that. I've only been hearing it for 2 years.
Wouldn't even want to know what its like to hear it for 10,15,20,30 years! I'd go crazy!!
Well thanks for your story and advice!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Thanks for the article. It's scary to think that these two had knee pain which was overlooked. Many don't even get such obvious symptoms.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
MariaA:
Thanks for the link!!! Great Article!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
astriapage
Yes, please keep us posted. Any postive article about this disease and what it does would be great.
Being you worked there and left on good terms hopefully they will listen to you!
Good Luck!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Thank you for posting the link. What an excellent article. It portrays the disease in everyday words.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks for posting that! I enjoyed reading it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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