posted
I've recently read in four different places that bab. duncani (WA-1) is resistant to mepron and malarone. Several LLMDs have had their patients use clindamycin and quinine or bactrim ds instead. Anyone had any experience with this?
cactus
Frequent Contributor (1K+ posts)
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posted
I'd believe it's resistant to Mepron or malarone - they knocked out my b. microti, but the WA-1 has relapsed again and again.
Mepron and malarone both give me horrendous herxes, then relief. But when off of them, the babs symptoms return eventually.
Bactrim gives me great results - after a herx. Right now I'm using it in combo with malarone and biaxin. Seems to be working.
If there's another relapse in the future, clinda and quinine here may be my next shot at beating this.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
anyone else?
Posts: 199 | From utah | Registered: Jan 2009
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Hoosiers51
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Member # 15759
posted
I think Mepron is okay for west coast babesia if you add artemisinin. There are doctors I know of that recommend mepron with zithromax and artemisinin for west coast babs.
But, whether you have east or west coast, Mepron could still not be the best fit for you.
cactus, I have heard from doctors that the babesia tests cross-react....so you could just have one strain, or have both. But if you have both, if duncani is appearing to come back positive still, it could actually be the microti....according to what I've heard. So it's hard to know. I heard this from an LLMD, and also, someone on Lymenet said that they called Igenex, and Igenex told them that.
Posts: 4590 | From Midwest | Registered: Jun 2008
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lpkayak
Honored Contributor (10K+ posts)
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posted
do you guys use testing to tell if you have it? i really thoguht the testing wasn't good-but you all sound so positive you have it or you don't
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I know a parent of a Dr. J patient. He told me Dr. J said that Duncani can't be eradicated if you don't take art with the Mepron.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Jill E.
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posted
I just tested positive for Duncani, and two top LLMDs of mine said either Mepron or Malarone are in my future along with many other things. But because I've had liver issues in the past from Ketek there are many things to figure out.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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adamm
Unregistered
posted
Are there any less toxic alternatives to the artemisinin? After reading the Toovey articles I'd be very hesitant to take it. Also, which Babesia would one most likely get infected with in MN?
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
If the two strains cross-react, then maybe there's no definitive answer to which strain we are fighting.
Six, it's interesting to hear that Dr J said that - because I cannot tolerate artemisinin, despite multiple attempts.
LLMD suspects that I have CP-450 detox issues, so that would make sense since art uses that pathway as well.
Maybe the lack of art is the reason I've continued to relapse?
Actually, my latest round of Malarone, Bactrim and Biaxin landed me with pancreatitis and it was a horrific experience. Could be a result of the CP-450 issues there, too.
Adamm - I don't know about MN, but both strains are present in VA. I would imagine that either/or/both could be present in MN.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
That is interesting, because my son just saw Dr J yesterday and we were told he has Duncani, and he did not tell us to give him artmesia. Hmmm.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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