Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm sorry your son has bartonella but very glad you found it now. Your son has a much better chance of living a normal life knowing that he has this now rather than later.
Do you have bart too? If you do and you also have lyme then this may help clarify a diagnosis of lyme for him but of course one can get bart from cats and dogs too.
Good for you for figuring this out now. I wish my parents had known that I had bart as a child. It would have saved many years of suffering.
GOOD JOB!!!!
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Yes I have Bart, Babs, and Mycoplasma....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Sorry to hear of this sad news but at least you were astute enough to catch it early. That makes all the difference.
God speed........
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
It is possible because the test for LD suck. I too only have band 41 but have been extremely ill. LD diagnosis is based on a clinical diagnosis and since your son showed positive for bartonella I would think that the question about LD has thus been answered.
I am so sorry that you little son has to have this awful illness, but glad you found it early.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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lymeparfait
Unregistered
posted
I am so sorry you are experiencing this with your family.
We went through this a little over a year ago.
There is hope!
We are all doing better. so give it time! You are doing what needs to be done by testing and finding the best LLMD's you can.
This year you will be learning much, and absorbing lots of new info. and changing old patterns of behavior and life style to get better.
If you do this, you will improve and get the knowledge you will need to be healthy for the rest of your life. This info is not supplied readily by our USA medical system, but only right here, with your lyme friends.
Try not to get overwhelmed. Take it slow. Take deep breaths. Ask lots of questions here, and learn from those who have gotten better.
This is not a bad day for you, it is actually a blessing to find this out now!
Many have this and never will know! I am lucky a neighbor who has lyme told me about it, and to get tested. She saved our lives!
I wish I knew this when my kids were young! There is so much you can do for them, and Dr. J. will start the process.
You need to get better first, then your child will follow your lead. It's easier if you are feeling good and understand what needs to be done.
I did it the other way, so focused on my kids problems and symptoms, that I would forget to take my own meds and supplements, getting sicker all the time.
Until my LLMD and ND sat me down and said, to focus on myself, and all other things and those I am caring for will come into balance.
At the time, I was also caring for my two inlaws with Alzheimers...so I was overwhelmed with meds, behaviors, finances, and attitudes for the elderly and the teenagers in my life. Not easy!
They were right...things are better now.
We still have positive Bb, but under control.
The unknown is hard to handle, so learn what you can, to be armed with the weapons to fight these pathogens. And always ask for help...it is here.
posted
Kreynolds, I hope you do not mind my asking - still have a lot to learn - my babs test was 1.64 which the LLMD said was only a possible +ve not definite. So is 1.66 that much higher. I don't understand the scale. Does your son definitely have it or is it considered borderline like mine. Sorry to ask but this whole thing is so confusing. My thoughts are with your son and your family as you work through this.
Posts: 42 | From new york | Registered: Dec 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
As far as I know and can see the titer range is from 0.00-0.90.
My son has a 1.66 which is a definate positive and is pretty high.
As far as your LLMD saying that it is not definate I don't see why he/she would say that.
I always thought that anything above 0.90 would be considered positive.
For instance my Lyme titer is 3.94 when the index range is 0.00-0.90. So you can clearly see that I am extremely high.
Thanks for your kindness during this tough time.
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
roy, wife, and son,
i'm sorry to read this, but now you DO know what he has and he can be treated PROMPTLY ! that's the key here and his outstanding llmd!!
do you have pets also where he might have gotten bite by ticks off of them.
go ahead and cry, rant, and anything else you can think of ... he has a good chance of being cured since he was CAUGHT EARLY. WISH we all had been.
need a shoulder to cry on, rant, or share good news, come here ... we're here for each of you! bettyg
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
bettyg:
We have an appointment with Dr. J in Septemeber and are on a waiting list in case of cancellations.
Yes we have two tiny dogs. We found a tick on him 2 years ago, it must have just bit him because it was barely attached.
In the mean time whil we are waiting to se Dr. J we ae going to see Dr. E.
I am wondering if maybe he got it from me??? But in todays world that will never be proven.
Thanks again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for your little boy and your family....
God hears our prayers.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Don't stress about whether or not your son got LD from you-you live in a high tick area, just like I do, and you also have pets. You probably spend a lot more time outdoors than the average person in the warmer weather.
People that have young children know that kids always want to play outside, so there is more of a LD risk for them, as well as parents like us with young kids who are at a much higher risk of LD because we are outside more, especially in Spring and Summer.
I'm actually dreading the warm weather now, as hard as it is to believe-because I know that my daughter will want to be outside 24/7, thus exposing us both to this dreaded disease. I have no choice, though. I'm sure you know how that is!
What band 41 came up for your son? 41Igg or IGM? Has he had any LD symptoms over the last year or so that made you and your wife get him tested?
I don't see how your son could possibly have gotten LD from you-unless it's in saliva, and if that's the case, then all of us with young kids have to worry about passing it along to them that way. We share alot of saliva with our kids-with utensils, kisses, colds, etc.
There is a 4 1/2 year old child in my daughters preschool class who had LD TWICE already-and was supposedly treated and cured both times with the normal ABX protocol, which is 3 weeks I think.
Her mother told me yesterday that this same child has been complaining the last 3 weeks of neck pain, tiredness, no appetite. She's worried that the Lyme bacteria had possibly gone into remission or hid during her daughter's original treatment, or was not treated long enough with ABX, and now it is back again.
She took her for full bloodwork yesterday because she's very afraid of this.
Very sad to see young kids go through this.
Has your wife been tested for LD yet? I know you mentioned awhile back that she had some symptoms of LD.
I also tested positive for band 41IGM only on a LabCorp WB. I have not had further testing, but it seems that band 41 shows up a lot on WB tests.
I've read that band 41 is not really Lyme specific-I find that hard to believe though, especially after reading about so many people with LD that have that band come up on their WB tests.
Keep us updated on that little boy of yours!!
Posts: 64 | From rock tavern ,new york | Registered: Aug 2008
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posted
Our prayers are with your family of three: for wellness, peace and the strength to move forward.
You can call me any time.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
donaldmn:
Actually since diagnosed, my family has avioded grass.
It is pretty sad because yes we want to go out and have fun, but we are way too paraniod to take the chance of getting bit.
My wife was tested through MDL and came back with a band 60.
I strongly believe that she has LD.
The symptoms for my wife and son are a laundry list full. Too many to list.
My son has an appointment with an LLMD on Tuesday and hopefully my wife will get tested through Igenex soon.
It has been proven, actually in a recent post I had made if LD can be found in semen and it is documented.
I will never know the truth, but it doesn't matter anymore....
I have really bad "Late Stage Nuero Lyme" with 8/10 positive bands on the WB.
Along with a positive Spinal Tap and a Moderate-Severe SPECT scan.
Thanks for all your support!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Seems reasonable to have your pets checked for bartonella. Also for lyme. I think there is such a thing as an asymptomatic carrier of bartonella.
It's possible that your son got bartonella from your pets. It can be transmitted from a scratch or bite. Your pets can carry it around on their nails if they've been exposed. It's also in their saliva. http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/61552?
I don't know if bartonella can be transmitted via the uterus in humans although it is suspected in rodents from some of the studies that I've seen.
It can be transmitted from fleas too and of course ticks.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
kmj wrote: my babs test was 1.64 which the LLMD said was only a possible +ve not definite. So is 1.66 that much higher.
There may be some confusion here with tests. Kreynolds sons results were 1.66 for bartonella. Did you mean bartonella or babesia?
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
TerryK:
My 2 dogs were tested for Bart and Lyme.
My 1 dog has Lyme and they both tested negative for Bart.
Keep in mind that I don't have cats....
My old IDSA doc tried pushing that crap on me when he found out I had Bart.
I laughed in his face
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Kreynolds wrote: My old IDSA doc tried pushing that crap on me when he found out I had Bart. I laughed in his face
Huh?? I only wanted to point out that it is possible to get bartonella from dogs in case your son might have gotten it from one of the dogs. The link I gave above has info that I had found in 2007 from the CDC about bart in dogs.
I'm not trying to say that your son didn't get it from some other place, just trying to cover all possibilites.
Sorry if I upset you.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
You didn't upset me... I know Bart can come from pets.
I think I was being more defensive because many doctors will always use that option.
It's always a possibility, but I don't think it's the case.
The CDC, the people that grossly underestimate the number of cases per year of Lyme...
Thanks for the replies!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Glad you weren't upset.
I completly understand how frustrating and upsetting it is when doctors grasp at anything in order to deny the possibility of lyme.
Never hurts to look at all possibilities including pets in order to try to sort this out but the fact that you have lyme adds a lot of weight to the possibility that your son has TBI's as well.
As a child, my whole family was sick. No one knew what we had or where we got it. Most of my family awknowledges that we probably have TBI's but since they are sick and making no effort to get any kind of treatment I have to conclude that they are in denial. In any case, I try very hard to look at all possibilities because it is so hard to sort it all out. What is coincidence, what isn't etc...
I think infection from parents is likely in many cases but impossible to determine one way or the other with the state of denial that exists regarding TBI's.
As far as the article that I mentioned. It is posted on the CDC site but the research was done by North Carolina State University College of Veterinary Medicine. It shows that many dogs are infected with bartonella despite the fact that most people think it is primarily contracted from cats.
I hope you get some definitive answers about your son but at least you have some answers and will know more once he starts treatment. His response to treatment can help answer questions even if he has negative tests for lyme. Also, as has been mentioned before, an abx challenge can turn a negative test into a postive.
I don't know your history of exposure but it's curious that only one dog has lyme and neither of them have bart.
Wishing you and your family the best possible outcome.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks TerryK:
We will have to see what the LLMD says.
I am almost certain that the LLMD will run more blood.
It's just a wait and see kinda thing right now.
Thanks again for your support!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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