posted
Hello, here is my story. I have been sick the last four weeks with a variety of symptoms. Headache, nausea, loss of appetite, sore wrists, ankles, knees, shoulders, collar area, and hips, chest tightness, mild abdominal pain, lower back pain, sore muscles, brief episodes of rapid heart beat, trouble concentrating, vision problems, fatigue, and a general feeling of sickness. All these symptoms seem to come and go hourly/daily. Some days it is very hard to even get out of bed whereas other days I feel ok to work and excercise. It all started with the chest tightness. I was x-rayed and checked out with the diagnosis of a upper respiratory infection. 10 days of amoxicillion were prescribed. After a few days I felt better. The fourth day I got the chest pain back but this time even worse. Went to see the Dr. and this time they ran some lung/breathing tests. Everything was fine. Was advised to continue meds and call if I wasn't getting better. Two more sick days went by then I went back to the Dr. where they did a cbc, mono, and influenza test. Blood was normal (hct a hair low) and influenza, mono was negative. Now I was getting all the other symptoms I mentioned. They sent me home with a diagnosis of a viral infection that I just was having trouble shaking (I am 29 and in perfect health). By this time a friend of mine had mentioned lyme disease. His uncle went through months of Dr. visits before being diagnosed with LD. He said my story sounds similiar to his so I got a LD test. It came back negative. I went back to the Dr. for more extensive testing(blood work). I mentioned LD to him and some things I had learned about it and he dismissed the idea because of a false test. He said my symptoms indicate a later stage of the disease and the test would show a positive. He was more concerned about a few autoimmune diseases to test for. So far the tests he ran that are done are all normal. To top it all off, last April I found a deer tick on me. It had to be there for at least two days. I never got a rash but called my Dr. anyway. He put me on three weeks of doxycyline even without a visit to him. I should mention that this was a different Dr. than the one I am using now. My normal Dr. goes on vacation for the month of March. I should also mention that I am an avid outdoorsman and even my job is 95% worked outdoors. I guess I am telling my story simply to hear from anyone else who has had a similiar one and maybe for some advice on what to do next and if it really could be LD. Thanks.
Posts: 1 | From Wisconsin | Registered: Mar 2009
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quote:Originally posted by brando: Hello, here is my story.
I have been sick the last four weeks with a variety of symptoms. Headache, nausea, loss of appetite, sore wrists, ankles, knees, shoulders, collar area, and hips, chest tightness, mild abdominal pain, lower back pain, sore muscles, brief episodes of rapid heart beat, trouble concentrating, vision problems, fatigue, and a general feeling of sickness.
All these symptoms seem to come and go hourly/daily. Some days it is very hard to even get out of bed whereas other days I feel ok to work and excercise. It all started with the chest tightness. I was x-rayed and checked out with the diagnosis of a upper respiratory infection. 10 days of amoxicillion were prescribed. After a few days I felt better. The fourth day I got the chest pain back but this time even worse.
Went to see the Dr. and this time they ran some lung/breathing tests. Everything was fine. Was advised to continue meds and call if I wasn't getting better. Two more sick days went by then I went back to the Dr. where they did a cbc, mono, and influenza test. Blood was normal (hct a hair low) and influenza, mono was negative.
Now I was getting all the other symptoms I mentioned. They sent me home with a diagnosis of a viral infection that I just was having trouble shaking (I am 29 and in perfect health). By this time a friend of mine had mentioned lyme disease. His uncle went through months of Dr. visits before being diagnosed with LD.
He said my story sounds similiar to his so I got a LD test. It came back negative. I went back to the Dr. for more extensive testing(blood work). I mentioned LD to him and some things I had learned about it and he dismissed the idea because of a false test.
He said my symptoms indicate a later stage of the disease and the test would show a positive. He was more concerned about a few autoimmune diseases to test for. So far the tests he ran that are done are all normal. To top it all off, last April I found a deer tick on me. It had to be there for at least two days. I never got a rash but called my Dr. anyway.
He put me on three weeks of doxycyline even without a visit to him. I should mention that this was a different Dr. than the one I am using now. My normal Dr. goes on vacation for the month of March. I should also mention that I am an avid outdoorsman and even my job is 95% worked outdoors.
I guess I am telling my story simply to hear from anyone else who has had a similiar one and maybe for some advice on what to do next and if it really could be LD. Thanks.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Sorry you're feeling so bad. I would get to a doctor literate in Lyme Disease. Most doctors aren't. Check out the trailer at www.underourskin.com to learn more about why that is.
You need to get a Western Blot, preferably from IGeneX Labs.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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bettyg
Unregistered
posted
welcome brando!
post in SEEKING DR. forum, and please COPY 6goofykid's broken up version there.
subject: WISC. LLMD needed paste goofy's version there
go to bottom left hand corner and mark box to receive all replies to your post. you've got some great ones there!
god bless you 6goofykids for breaking his entire post up so we neuro patients are able to read and comprehend.
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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