Topic: Almost too depressing for me to think about
adamm
Unregistered
posted
I'm wondering if the reason that my illness is so hard to treat could be because I had in fact been initially infected well before I got my tick bite and, with each course of antibiotics I took since then, the bacteria were building resistance.
Here's what I had before the tick bite:
ADHD Occasional random tingling Anxiety/depresion problems Visual snow Occasional tinnitus, a couple of times, when I was extremely tired, accompanied by musical hallucinations
While I know that these symptoms aren't that Lyme-specific, what worries me is that, when I was very young, my family used to vacation on Long Island, very close to Plum Island, and I used to have very bad reactions to bites the mosquito bites I got there .
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Actually Adam, all those are lyme symptoms. If you google musical hallucinations, almost every site that comes up attributes it to lyme. I found this out when a lady I used to take care of kept hearing patriotic music. I couldn't hear it so I googled musical hallucinations and there it was, lyme related in almost every site!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Adamm,
It is possible, indeed. And it's good that your body managed to carry you through all that to the point that you can now get treatment, finally.
We can each only do the best we can do. I'm all for facing reality, knowing the truth. However, at some point we need to diffuse the fear and just deal with the facts.
Yes, it is possible. Yes, it's a long road. But, if you stay on course, each day you will be closer to health. Of course the tricky part comes from not knowing exactly what that course is or when to change course and steer in another direction.
We can't undo the past - or sometimes ever really know what happened. If you do the best you can, your body will be very happy about that. Keep your eyes on the prize.
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I was at a meeting last night and someone asked the LLMD who was the guest speaker how one could know when he or she contracted Lyme if no bite or rash was remembered.
He said you know "when your story began".
So, yes, I think you may have been bitten a long, long time ago.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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lymeloco
Unregistered
posted
Those symptoms are VERY lyme specific and I see that your registration date is only 2007, that tells me to hang in there because there is more time for you to get even better.
I've had all those symptoms, so just relax, take a breather and know with time and a positive attitude, you'll get there.
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Isn't it always interesting when we have that 'AH!' moment when trying to put our finger on a start date with all of this?
Sometimes, it can be overwhelming when we realize just how long we have been exhibiting unexplained symptoms. But, it can also be enlightening to realize that those very symptoms now have meaning attached.
If I am hearing you... the feelings of depression are from thinking that you are now antibiotic resistant? Yes, that would be hard to take, and I have wondered the very same thing myself after being in treatment for these many years.
However, I have come to find that the whole 'resistance' theory isn't all it is generally made out to be. I personally feel that it has some merit in some instances. Although, I have seen that with TBD patients, we tend to be even more sensitive to meds over time than the opposite effect.
In other words, what we could easily tolerate at the beginning of our treatment is much more than we can tolerate now, especially if treating long-term, if not treated thoroughly enough and if treating intermittently.
I also feel that if we are no longer responding to a particular protocol, it is usually because we need to switch up the meds. Not because we have become resistant, but because we have done all the damage that that particular med can do, and it is time to move on to another.
That is also true with co-infections. Many who are no longer progressing in Bb treatment, have been shown to be harboring untreated co-infections which are hindering further progress until addressed.
Finally, and I find myself in this place currently, if we have been dealing with TBDs and their eradication for a long time, eventually something's got to give. Other system failures begin to occur, and those have to be addressed as well. Adrenals, thyroid, hormonal, nutritional and mineral imbalances, candida overgrowth...the list seems endless.
Posts: 7052 | From Colorado | Registered: Mar 2003
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adamm
Unregistered
posted
quote: ...the feelings of depression are from thinking that you are now antibiotic resistant
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