tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Has anyone here gone into remission on this protocol or know of anyone who has?
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
My wife has been on it since Jan 2008 (no abx just the herbs).
We thought she was in remission but has suffered a slide-back just this past week (massive fatigue and achey legs). We don't know whether it's a flare/die-off cycle or just the disease getting the upper hand.
The herbs however did give her many asymptomatic stretches that lasted up to 2 months so it did something for sure.
Posts: 655 | From USA | Registered: Sep 2007
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posted
My sister in law swears by it and has been on the protocol for years with no relapse.
Tried it for my child and it didn't work well. His lasted only about 2 weeks before the slide back.
I guess everyone is different.
-------------------- But the greatest of these is LOVE Posts: 19 | From New England | Registered: Mar 2009
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
You really need to see an LLMD and try abx which are much stronger.
IMO, CherylSue
Good luck.
Posts: 1954 | From Illinois | Registered: Aug 2007
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I've been on abx for 1 1/2 years. Much better but am thinking of switching over to Buhner.
Posts: 2541 | From Northeast | Registered: Jan 2008
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Several people on the yahoo Buhner group were cured on the Buhner protocol.
I take some of his herbs and i wouldn't want to be without them, but i also wouldn't want to give up the abx either, i need those too.
Here's a tesitmonial from that group: QUOTE
First let me say I am no expert. I got the book and followed it and was lucky enough to have it work for me.
I do continue to take one andrographis and one Source Naturals resveratrol every day. Once in a while when I suspect I may be relapsing (I'm pretty paranoid about it because my quality of life was changed so much and I don't want to revert!) I take a few days of about half the full protocol--two pills each of andro, resveratrol, sarsparilla, cat's claw and whatever else, four times a day. So far I haven't had a big herx when I did that, so I figure there hasn't been much regrowth. My husband hasn't done the protocol so he could theoretically re-infect me.
I worked from the book and never saw an LLMD. Buhner says that his protocol is for control and may not be capable of eradication, so I try to keep it in mind when I have symptoms of any kind. I haven't used any antibiotics.
The only test I ever had was my family doctor's Lyme test, which came back negative. So there's no proof I had Lyme. I figured it out by the symptoms and the fact that I had lived in an endemic area for years and spent a lot of my time in woods and fields. I also remember a flu-like illness the first year I lived there and could see that my depression, eye floaters, heart murmur, palpitations, and eventually joint pain (I got other problems, too, and kept getting tested for things like MS and lupus, but everything was negative) all appeared slowly in the years after that. I don't know whether I have or had any of the co-infections. I'm guessing not, since I recovered so much easier than many do.
I do take a lot of supplements and still take a low dose of Wellbutrin for my depression. That has decreased since the Buhner and I hope eventually to go off altogether, but these drugs are very addictive and just halving it gave me a bad month.
Important things for me: I am completely gluten-free and probably will never be able to eat wheat, rye and oats or, sadly, drink beer. I keep my carbs pretty low, eat few sweets, and have realized recently that even an occasional diet drink with aspartame is out of the question. Better to have sugar if I must than have the reaction I get to that stuff. Some of what I thought were relapses were probably the result of having a diet soda when we went out somewhere. Whether that's just me or lingering effects of TBD, I don't know.
I hope you are prepared for the herxing. I guess some don't get it, but my first couple of weeks were terrible, with unbearable headaches and extreme fatigue that made me just want to lie down all the time. I was miserable. Without this forum to tell me that it was normal and a sign it was working, and to tell me how to help it by drinking lots of lemon juice in water and taking an occasional anti-histamine, I would have given up. That I can now take those same herbs and have no reaction shows me something really did work!
I purchased the herbs mostly from Vitacost and iHerb, except the teasel which I got from some special site online. But your daughter may not need the teasel. Oh, and I was very lucky at the beginning to find someone on eBay selling the rest of his Buhner herbs because he'd bought a lot and wasn't finishing the protocol for whatever reason. I got a bunch of herbs cheap that way to start, but of course they don't last long as you get into the height of the protocol. I had to reorder from the other sites often. I would say the whole thing probably cost $500 but stretched out over several months. "aluta_gaia" <[email protected]> UNQUOTE
Posts: 1226 | From USA | Registered: May 2007
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posted
Remember that it doesn't have to be an either/or. You can certainly use both abx and herbs together. My husband has done so for 3 years, and has made slow but steady progress.
Just be sure to run everything by your LLMD, so that you make sure the things that you're taking are coordinated.
Viva
Posts: 532 | From southeast US | Registered: Oct 2005
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
pamoisondelune,
Well, I guess then since it says right in the book that the protocol is for controlling Lyme and not eradication, then I'm probably far from being done w/abx. Thanks so much for that info.
Posts: 2541 | From Northeast | Registered: Jan 2008
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I've had more improvement on herbal protocol than with ABX. I was having too many side effects and contraindications with ABX.
Posts: 73 | From ID | Registered: Jul 2008
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