Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
recently, i have had several sebaceaus cysts, and i am pretty sure that i remember cysts of various varieties are common with lyme.
i have suddenly had an outbreak of them in just the past few weeks when i never had them before. four on my face!
first one showed up on my face near my eyebrow. due to frequent nausea and vomiting, i cannot take oral antibiotics on a regular basis anymore and forget getting more than 6 wks i.v. from insurence.
and i have temporarily given up on the out of network lyme dr i was seeing. so i have only been going to a local general practitioner on a monthly basis for pain and symptom meds.
when the lump first showed up, i just took some leftover antibiotics we had around until my regular appt. came. dr was not concerned with the lump, just said they were common and was not interested in prescribing anything for it.
the self-treating shrunk the lump, but there is still a now permanant tiny lump left. i got another lump, and went to dr right away this time and this time he prescribed clindomycin for it, it shrunk, and went completely away. just finished up on the one week of clindomycin a few days ago.
BUT, WHEN I WOKE UP TODAY, THERE ARE TWO MORE ON MY FACE!!! i am about to call the dr, but want to know if anyone has had experience with these before? and what meds are the best to take for them to go away completely. i have two tiny lumps on my leg just above my knee from ones i had a few weeks ago.
i don't want to have permanent lumps all over my body - especially my face! why are they suddenly showing up?!
i asked my dr if my immune system was shutting down and if this might be contributing and he said that my immune system was fine. this was not a trick question. i have been very sick for 18 yrs with several lyme infections that went yrs undx and untreated and i get confused and forget things. and now i remember my lyme dr had done a test a few yrs back having to do with T-cells and my score was very low. the G.P. should known i have a comprimised immune system.
when i had to go to the hospital last september for the severe vomiting i frequently suffer from, but really can't take anymorewhen it gets really bad, they actually were nice this time, unlike they were a few yrs ago when i couldn't take it anymore and went to the ER. i had to tell them i was dehydrated and request i.v. fluids. i was still pretty sick when they released me a few hrs later.
this time they automatically gave me fluids, did lots of tests, and admitted me to the hospital and kept me there until the nausea and vomiting were under control as well as other things like electrolite balance. among the tests they did, they determined i had a high white blood cell count.
we are in the middle of moving, i have no income, my daughter is graduating and we have all the prom costs to deal with right now, so going out of network to a lyme dr is not possible right now, so any suggestions as to what meds might be best to completely heal these cysts and any advice on what is going on that i am suddenly getting so many would be appreciated. thanks.
Posts: 1093 | Registered: Nov 2000
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posted
I had one recently at the corner of my nostril. Putting hot compresses on it will help, but the thing that helped me most was putting Venex ointment on it (bee venom ointment). You could also try dabbing it with a dilution of mms.
I think they're filled with spirochetes because treating it made me herx. That would also be supported by the fact that yours went away with Clindamycin.
Whatever you do, you must treat them. Otherwise I believe they could become permanently disfiguring. If you google "spirochetal gummas" you can find pictures of what the syphilis spirochete has done to people in the past. It can be ugly.
No one seems to have put this together for Lyme yet, but I've done a lot of reading on it, & I feel certain this is what all the lumps, etc that we get are.
Patti
Posts: 975 | From California | Registered: Apr 2007
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Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
Hi Patti, thanks for the info. the dr did not even want to treat the first one i got. he said it would go away by itself, and they were common. we live in Bucks Co., PA were Lyme is extremely common and this dr, although better than drs i've seen in the past, is beginning to make me think i need to find a more experienced and broader minded general practitioner.
he wonders why i dislike the infectious disease specialist he sent me too whom right away agreed i had late stage neuro-lyme even without further testing, although he did want me to have another spinal tap which i declined. but then treated me with 6 wks of pennecyline ( was useless. did not even notice a herx. just felt more tired. ), then cut me off, sending me away with a script for doxy.
oh, and a woman i met in the waiting room of that I.D. specialist was seeing him long-term for "fibromyalgia". her husband also had "fibromyalgia" symptoms. i tried to tell her it more likely was lyme, as i was misdx with "fibromyalgia" by upenn drs when i was near death and we even told the upenn dr we thought i had lyme. old, wrinkled, faithful medical receptionist was listening in and i'm sure relayed this info to dr, not winning me points.
this makes me wonder even more if i was born with lyme. i only know for sure about the two infections from Nantucket Island vacations in '91 and '93 where we unwittingly took photos of me with the text book bullseye rash and the local rashes in '96 and '98 before i knew what lyme rashes looked like. but other family members had lyme-like symptoms, and i've had so many tick bites in my life and they used to remove the ticks by putting a hot match on the tick. very bad!
when i was four yrs old and started kindergarten, i got what they called a "boil" on my right cheek. i was a bit feverish and uncharactaristically irritable, and then the lump showed up. my older sister was a bully and hit me a lot and frequently made me cry, so the blamed the cause as partially being exposed to new germs at kindergarten and of course on me for crying a lot and rubbing my face.
my mother knew this dr was not a good dr ( my older brother had a serious illness as a newborn - 108 degree fever where he got dehydrated and had to be rushed to ER and dunked in ice water and spent 3 months in the hospital and they did not know if he were going to live or not and was left with autistic-like behaviours and brain damage ) - he insisted my older brother was normal up until age three. failed to notice my brother was having petite mal seizures and used his expertise as a father of 13, that all kids are different and my brother's failure to speak or speak in echoala was "normal" until it was apparrent to any idiot that he was not.
but this dr went to our church, and my mother being a devout catholic thought it her religious duty to have her family treated by this quack. even though usually he was quick to prescribe antibiotics - if one sibling got the sniffles, all of us would have to take tetracycline, so now i have yellow teeth - in this case, he decided to, without any anestisia, to take a scapel and put two slashes in my face. then my mother was instructed to boil water, dip a rag in the boiling water and then apply it to my face to draw out the puss.
sorry! really gross. that lump was much larger than the ones i am getting now. i don't know if it is the same thing as what i am getting now. i do know that yrs later, drs told me i should have been prescribed antibiotics and i would not have been left with the lump and scar.
the extremely hot water was tortcher. it left me with a noticable lump and scare right in the middle of my face. i think he partially based his decision to slash my face rather than treat with antibiotics on the fact that among his brood of 13 or so kids, he had one my age, francine, also known as fanny, who was an unattractive, awkward, chunky, uncharming and dimwitted girl. he insisted having her in the smart class despite her immaturaty and slow intellect. the nun had to give her hours of specialized attention just so she could keep up. so slashing my face helped to even the score.
but he did a lot of stupid stuff. when i was two, i got the chicken pox. this was 1962 or 63. my dad had never had it. somehow, he must have come up with his own vaccine, because prior the the chicken pox vaccine that came out in the 1990's, i did research and found nothing about a chicken pox vaccine in the 1960's. well, my dad almost died from that "vaccine".
also, he finnally realized he was too arrogant and incompetant to practice medicine when in the late 1970's, his oldest daughter became pregnant with his first grandchild. he had always been the sole provider of medicine for his family and was determined to be the sole medical provider for his pregnant daughter, including delivering the baby, not allowing her to go to a specialized OB/GYN. the baby either died prior to birth or was stillborn. so that dr finnally called it quits. the dr he chose to take over his practice wasn't much better.
i'm going to check into the bee venom ointment. i read in another post about treating with bee venom products that appeared promising.
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