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» LymeNet Flash » Questions and Discussion » Medical Questions » DMSA questions

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Author Topic: DMSA questions
mandy614
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Hi

My LLMD just started me on DMSA 600mg a day 3 days on 11 days off from a compounding pharmacy.

I had very elevated lead and mercury levels. My questions are does the dmsa work to rid the body of both lead and mercury? Or just one? I have heard cilantro tincture is good for mercury. Can someone give any info on dosages for this?

Also, besides no minerals or vitamins is there anything else I should stay away from while on the dmsa?

I'm already feeling very fogged and tired but hope this will help as I believe the metals are a big issue for me.

Thank you!
Mandy

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pryorka
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DMSA chelates both lead and mercury. It actually works even better for lead than it does mercury. Cilantro isn't recommended by some doctors because it's mechanism of action isn't really known yet. If you don't have any problems with the DMSA though you can try adding the cilantro while you're on the DMSA and see if you handle it, but I wouldn't do the cilantro by itself just to be safe. Reason being that the cilantro clearly knocks mercury loose from binding sites in the body but no one is sure how strongly it binds to the mercury and carries it out of the body so you could have a large amount redistribute which causes more damage.

Let me know how things go, I just started chelating about a month ago. Hopefully we improve soon.

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TS96
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I have been chelating for over a year for high mercury at 8. Lead at 11 and aluminum at 20. I used the DMSA urine challenge test through Doctors Data.


I started at very low DMSA levels of 12.5 along with Nutramedix Algas and NAC. Taking liquid minerals inbetween.

High levels of DMSA made my brain function go haywire so I had to go slow.
I could not tolerate Chlorella or Alpha Lipoic Acid or Cilantro.

I am now up to 125 mg DMSA with Algas every other night and doing fine with it.

Also epsom salt and baking soda baths and Malic Acid for the aluminum.

600mg without a binder would have done me in.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

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TS96
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IMO I'd ramp up slowly and see how you feel. Back down to a comfortable level if and when you start to feel really crappy.

When you are feeling good with that dosage move up slowly.

I got my DMSA through www.vrp.com They sell it in 25mg and 100 mg dosages. I divide them if need be.
I have no connection to the company.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

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mandy614
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Thanks all for you responses. Seems like I'm taking alot!

Another question, are you chelating daily or pulsing? He seems to have me on a big dose but only for 6 days a month. Would a low dose daily or more often work more effectively?


Thxs
Mandy

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CD57
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Mandy did LLMD recommend Chelex by Xymogen? He was having people do it every 3rd night, I think it includes binders.
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mandy614
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No just DMSA at a really high dose for three days on 11 off.

Do you take chelex? Maybe I'll get Dr T in AG to send me some. I saw old posts about the pectasol chelation complex. Do you think this product would be good to use in between DMSA dose or the chelex?

BTW, 600mg a day is AWFUL!!! Thank God I only have one more day.

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TS96
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Mandy,
I am pulsing every other night taking liquid minerals on the off day.

I've experimented alot with chelation. One time I took 150 mg of DMSA for three nights straight and off for four and by the last night my brain was all over the place, fryed and severe anxiety. Took me all 4 off days to get over the toxic/redistribution feelings.

So.... listen to your body

Chelation now actually makes me feel real good, it shouldn't mess you up. If it is I think it's too much too soon.

Gotta go slow when getting metal out.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

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Erica741
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Why on earth are you doing this now? Did you just get high heavy metal test results? Send me your results if you can.
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mandy614
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Thank you TS96. I'll call and see if I can do more frequently at a lower dose. One pill is 200mg. My brain feels like it is being fried, good description.

Erica-

My doctors data results were through the roof forlead and mercury. Ref range for mercury was 4 mine was 21! Lead range was 19 at a ref range of 5. Huge issue.

So makes sense to start slow since my levels are so high but I understand why he's trying to do a "knock out blow". Seems to be trend.

What do you think?

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CD57
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Hey Mandy, my mercury was 10 and my lead was like 20-something. Our LLMD ordered it, he wanted me to start Chelex right away. Then I showed to Dr G and he was not very concerned with the numbers.

I am doing only Pectasol Chelation Complex, no DMSA or EDTA. I was really good for 2 months and then have slacked off on it. But I think it's good, and effective. I called the company and asked them about it, they said most people take it for 6 months. I got this reco from DrR, who works with our LLMD. My urine has a metallic smell (sorry if TMI).

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TS96
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Mandy,
Tell me if I'm wrong but from your previous posts you have been treating candida/yeast pretty aggresivly? Clean diet... no sugar, gluten etc...


Well your body may have no where for your mercury to hide anymore and it's wanting to go somewhere.....

just a thought of mine that that's why your metals are testing really high??????

You really need some good binders. Zeolite, chorella something!!!! You shouldn't be feeling like your brain is fried.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

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mandy614
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CD

Will look into Pectasol Chelation Complex. Erica will tell you I am a supplement whorde :-) so I'll probably end up ordering this. Thxs!

TS96

You could be on to something! Yes, I am super careful about diet and anti-yeast meds. I have been on chlorella but on the DMSA days am not supposed to use it, correct? The only thing I'm taking are meds and whey protein, no vitamins/minerals. I did take some activated charcoal earlier.

I have nutramedix zeolite and zeolite hp I have never used because I didn't want to try without the direction of llmd. Should I use these in conjunction with DMSA, or wait on my off days?

Thanks for your advice!
mandy

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TS96
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Use them in conjunction. DMSA doesn't stay in your system that long, 4 hours or something like that,(someone correct me if I'm wrong) so you need to immediately follow up with a binder to carry it out.
hth

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

Posts: 647 | From NY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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