posted
My daughter always seems to be sicker from October to May. She is generally sickest from March to May.
This isn't like SAD. She really becomes mostly nonfunctional from March until the end of May.
She had made significant progress starting last June and had struggled a little over the winter.
March hit and she has been mostly bed bound. I thought babs had reared its ugly head and started her on malarone and zith. After 14 days, her headache was so much worse that the dr thought it was more from a med intolerance than a herx, so we stopped the meds.
I feel like we if we could figure out why she gets so sick from March through May, we could get her over this hump. This is not a new thing. It has been consistent every year since she first got really sick.
Any insight or ideas would be greatly appreciated.
Posts: 177 | From God's Grace | Registered: Apr 2007
| IP: Logged |
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Sparrow,
I can't speak for all lyme patients,however similar,
we are all somewhat different as well, symptomatically.
More then one theorist, has intimated, that these, "similar/dissimilarities", are
due probably, in part or whole, because our individual DNA are unique.
I personally, have monthly flares becoming increasingly worse, leading up to my "six month" flareups,
which are decidedly worse then my monthly flares.
Increasing in severity proportionate to the time passed or in between, my last IV antibiotic therapy.
I have received feedback from others, who have also experienced, this six month exacerbation of symptoms.
Some experiencing this phenom., at the same time periods as I and some others different months.
This should be studied further, whenever the money becomes available.
Furthermore in reference to your question.
IMHO, your doctor, MAY, have misstaken the headaches,for what they really were.
However, when a patient, especially a youngster is concerned,
caution, is always, the better choice.
The changing of the seasons and possible barrometric pressures at play,
may have a strong influence, as to what happens to lymies,
whenever there is a hurricane nearby, now that I live in Florida,
I have exacerbated symptoms whenever such a storm is near,
as do many, I am in contact with in this area.
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
jt345
Unregistered
posted
Hi
For me spring and summer are my bad times. I think itis the warmer weather. Come fall I feel better .
Like right now Iam feeling like a mac truck hit Me. Every bone in My body hurts from the inside out,and My brain has called a general walk out. appleseed
IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
There is certainly a trend in most patients. It's either Winter or Summer primarily. There is usually a very specific window (i.e. End of Novemeber, etc) that patients report the sudden change.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
If there's a cyclical pattern every year then it has to be due to the seasonal climate variations. Maybe the temperature or humidity during those months are condusive to getting sick in the home, possibly due to activation of mold spores or something else?
Posts: 655 | From USA | Registered: Sep 2007
| IP: Logged |
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Yes, I am much like your daughter. I have a definite pattern of functioning much better during daylight savings time.
Within two weeks of the time change in the autumn, I begin to have much worse heart symptoms and have to stop driving until late spring. The problem is called PSVT and is detectable on a cardiac monitor while it is happening.
If the outside temp goes below 55 degrees, I don't even go outside unless I have to because it aggravates my heart rhythm problem and my muscle pain.
I feel like what little excuse for a life I have left is on hold from November through March.
Unfortunately, most people who live here are more active during the winter, since normals hate the heat and humidity.
I end up having to turn down most of the few social invitations I still get, just because I feel so lousy at that time of year.
I hope you can find an answer....I am so sorry she is bedridden in winter....so hard on a child.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
| IP: Logged |
I should clarify: my daughter is in her 20's and has had an intractable headache for several years. Her pain level is usually around an 8, so the malarone really spiked it up to where she could hardly open her eyes.
She has been off of the meds for 5 days now and feels much better. She did think even the short course of malarone/zith hit something, so it was worth it.
I know she does feel worse when there is a barameteric pressure change, but what she experiences from March through May seems different.
We live in a southern state and the climate changes are not that drastic during those months. I also supplement vitamin D3 because she was low, so that isn't it either.
She lived away from home once and was just as sick, so I don't think it is a mold issue.
I do appreciate everyone's ideas.
Posts: 177 | From God's Grace | Registered: Apr 2007
| IP: Logged |
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I started feeling better over the late fall and through the winter.
Now that the weather is warm again, I've really started feeling crappy.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic