Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Alright, so here it is! I am pretty pleased with it. There were a few mistakes, but nothing real serious! The only thing I wish is that they had written about the poor testing methods! She didn't end up putting any websites in, which kind of stinks, but oh well!
Also, in the 'real' hardcopy version. She used a lot of space for how to properly remove a tick, where ticks like to hide on the body and the size of an actual deer tick compared to a dime.
I had also asked her to put in my e-mail address, but that also got nixed.
Over all I'm pretty happy with it.
Oh and on the front page of the paper, it says, in pretty big words on the left side, "Madison Woman has to wait 13 years for a Diagnosis!"
So hopefully people will see it and want to read it!
If this link doesn't work, just use the www.mansfieldnewsjournal.com and then find the article under Lifestyle part.
Oh...and the part about a 'cure' by Sept...she had asked how long it can take. I told her my LLMD said typically patients are on abx for 4-12 months (this is only this LLMD), I told her it can vary though!
Oh well...at least they didn't look up the IDSA and it said, "2 weeks and you are fine forever!"
Anyhow, thanks for reading and write comments if you feel so inclined...about testing and everything else!!
Take care,
Rachel AKA Ocean...my real name is out lol!
Happy Mother's Day to all the Mommy's out there too!
posted
Congrats on the article - thanks for putting yourself out there!
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Great Article!!!!
We need more stories like this worldwide! Great Job!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
Way to go Ocean!
Posts: 262 | From ohio | Registered: Jul 2008
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Good job Ocean! That's a very nice article. You actually inspire me greatly to do the same thing as soon as I am up for it.
Thanks for being such a great and determined Lyme Activist! Every little and large thing we do makes a big difference. You never know who you might reach with any effort you make to educate and inform.
Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Thanks all! Today I was pretty bad at church with esp my left arm jerking and spoke with a woman with FM and CFS. I gave her my e-mail address and Lyme info websites (including LN of course!), she seemed very receptive.
I hope someone can see themselves in me and get treated.
i left word on your other post. I REGISTERED; ACTIVATED IT, & IT WON'T LET ME LOG ON! i emailed newspaper.
EVERY ONE .... PLEASE TAKE 5 MINUTES & REPLY TO RACHAEL'S STORY "ONLINE THERE"!!
we need to make the best and they limit to 1000 characters!! thanks.
rachel, please send them your ADDITIONS ONLINE; they did a small correction on hard copy of couple of things; i got the rest of the thigns ONLINE which went to europe even!!
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Very nice Ocean.
Thank you.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Ocean,
Great job....Thanks for doing it and trying to bring awareness,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Good work!
Did you see about the Lyme Rally they are having in SC?
----
PLEASE FORWARD AND CROSS-POST
NUMBERS COUNT
Lt. Governor Andre Bauer will be speaking on behalf of patients. There will be additional speakers for the event as well. This rally will be held on Thursday May 14th between 10-11:30 am. in Columbia SC. This rally is not just for those in SC, but for patients, family members and friends from surrounding states to be included. Legislators will be in session and they have received personal invitations to this event.
Though some of you don't even remotely live near here, send this email to those that you know in SC & surrounding states, like GA, NC & VA.
Please RSVP to me at [email protected] , so we can have a head count.
People from any state are welcome to come. Bring family, friends and of course, wear lime green. CALDA has great t-shirts!
For those of you in the Greenville Lyme Support Group, we will not have the support group meeting planned for May 16th in lieu of the rally.
Please join us for this historic event and make your presence known. Lyme Disease as you know, is a much bigger issue than is imagined by the general populous which barely knows what it is. We need to show this by our numbers.
Your presence or those that you know of will be a huge boost to getting Lyme into the mainstream and recognized.
If you have any media contacts, please inform them and ask them to come and cover this event. Thank you all so much!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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