posted
Sorry, posted this to the doctor forum by mistake originally.
Okay folks -
I need some help/reassurance/ideas/guidance, as I am sure that so many of us need from time to time.
I have felt just terrible in the last couple weeks as you may have read in earlier posts. I have seemingly relapsed, and as this happens I begin to doubt that I have lyme. I start to think that the abx are causing my symptoms.
My worst symptoms now are neck pain/back pain/myalgias, GI pressure, pain and discomfort and irregularity seemingly causing many more PVCs than usual (#2 gets orangish when sick), urine that is much more concentrated (orangish) and sometimes foamier than usual, strongly heightened anxiety, trouble sleeping sometimes at all (makes the next day worse like a snowball effect).
Exercise makes all of this worse about half a day to a day later. I also heal very slowly - bruises, cuts, and more recently healed cuts stay pigmented darker.
I also notice that my blood is "thicker". You may ask how I could notice this...I will tell you. At the risk of being gross once in a while i pop a pimple or get a small paper cut or something. Lately, all I see is a clear to pinkish liquid that comes out. Pimples used to always be followed by red blood. I also never get cuts shaving now.
I surmise that the blood is thicker and can not flow as whole blood through the small capillaries. This seems to happen when I get some of the other symptoms - I remember this from a couple years ago when all of this started.
I know mostly all of you are not doctors, and yes I have a doctor appointment and will tell my doc all of this. I just wanted some feedback or thoughts. I have two other important questions.
Are zith and minocycline potentially causing my symptoms?
How can I at least try to heal my adrenal glands or provide adrenal support?
trying to keep the train on the tracks,
Bill
-------------------- "Sometimes trouble just follows a man" - Clint Eastwood as Josey Wales Posts: 40 | From Pittsburgh, Pennsylvania | Registered: Aug 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Rifampin can cause orange urine. Though I didn't see you say you were on that.
I'd drink a LOT more water. It can mean you're very dehydrated.
I don't have a lot of other suggestions though. Sorry.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
i couldn't read your whole post but i have had these things turn orange urine:
rifampin resveratrol - high doses alinia
other supps that i have forgotten.
best to google everything you are taken, then call dr if you don't get an answer
Posts: 1173 | From USA | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Deep orange urine can be the result of specific medicines.
Be sure you check your meds but also drink LOTS of water AND be sure you have liver and kidney support. (See book below).
Go easy on salt right now and of course, be sure you have no MSG in your diet (check all your labels and google all terms you are unsure of, as MSG has many names. It can be hard on kidneys).
Go easy on the exercise. Gentle is best.
-----
You also asked: "How can I at least try to heal my adrenal glands or provide adrenal support? "
--
Adrenal support for lyme patients is detailed in this book.
This book, by an ILADS member LLMD, holds great information about treatments options and support measures:
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
*Aside* from the orange urine and stools, paired with GI pressure, pain and discomfort and irregularity, which are very important to look into - it sounds like you are also herxing, in which case the medicines would be causing some or all of your symptoms, *indirectly*, because they would be doing what they are meant to do and killing off the Lyme.
But you may be both herxing and experiencing toxicity from the meds. You may need to back off or lower doseage, or stop them, it depends on what your LLLMD determines.
The Lyme dying off causes a Herxheimer reaction which is a worsening of old symptoms or a re-emergence of symptoms, or brand new symptoms appearing.
If you are concerned about too many toxins, you would do well to get a urine test and CBC from your GP, and have the results forwarded/faxed to your LLMD.
I think most LLMDs call for regular urine and blood tests to make sure there is no antibiotic or other med toxicity occuring.
Try not to worry too much (I know, way easier said than done!), and give a call to your LLMD and see what they think. I would def recommend getting regular urine testing though, to check on your kidneys, etc.
As for orange urine, according to the Wrong Diagnosis website, there can be a few different physical causes (beyond food or side effects from medicines or supplements, as stated by others already) for this symptom:
1. Dehydration Loss of fluids in the body... 2. Hepatitis Any type of liver inflammation or infection.... 3. Jaundice Bile or liver problem causing yellowness....
So give your LLMD a call right away ok? See about your liver and kidneys, and gall bladder. If these are possibilities you need to get a Doctor's advice and some testing.
Beyond the immediate needs of the moment, I have a Lyme Detox tea that I make from dried herbs (well, my husband makes it) for keeping Herx symptoms lowered. If you would like that tea recipe, let me know. I also have one I take every day for GI and Stomach problems. That might help you as well.
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Also, thick blood is also called hypercoagulation, and it is a very common symptom in Lyme patients, and anyone with a long-standing or chronic inflammatory infection.
Your LLMD can perform what is called a MOCHA panel, to check your coagulation rate and other related factors, and determine whether you need a prescription blood thinner or something over the counter, like a supplement, to help.
posted
Thanks for the ideas so far. I will certainly be getting a script for testing on Monday - blood and urine. I am on mino and zith so I don't think that is why the urine is orange. I feel toxic so I am worried about the liver. I am going to take some milk thistle and see if that helps.
Nothing makes me sicker than being sick.
-------------------- "Sometimes trouble just follows a man" - Clint Eastwood as Josey Wales Posts: 40 | From Pittsburgh, Pennsylvania | Registered: Aug 2007
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posted
Hey - i have not ever had a herx that lasted more than 3-4 days (at least bad enough to change my plans). this has been going on for well over two weeks with no let up in sight.
thx
-------------------- "Sometimes trouble just follows a man" - Clint Eastwood as Josey Wales Posts: 40 | From Pittsburgh, Pennsylvania | Registered: Aug 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"Sometimes trouble just follows a man" - Clint Eastwood as Josey Wales
Good movie! I like Westerns too.
I've got one for you.... and this is after the star and he is an expert with a long rifle- Tom Selek as Matthew Quigley- had the stuffings beat out of him by the bad gang...
And he is brought (dragged by a horse) back to the ranch.... to face the BIG bad dude ...
Elliott Marston and he is the really bad guy says....
"O'Flynn and Dobkin- prepare Quigley for an old-fashioned duel".. and Marston says...
"I seem to remember you're not too familiar with Colonel Colt's revolver, so this will be your first lesson. Don't worry. Mr Dobkin and Mr. O'Flynn will ensure that it's a fair contest."
Marston starts walking backwards... and says...
"I'll just back up a few paces... And to your left a bit, that's it... Now you're right in front of my old pistol target."
Marston slips his coat back to reveal his holster and says...
"Some men are born in the wrong century. I think I was born on the wrong continent. Oh, by the way, you're fired!"
Matthew Quigley says....
"This ain't Dodge City. And you ain't Bill Hickok."
Matthew Quigley then shoots Dobkin, O'Flynn and Marston before they can even aim their guns....
Then walks up to a dying Marston and says about the pistol, which is not his weapon of choice....
"I said I never had much use for one. Never said I didn't know how to use it."
Clint is obviously one of my very favorites. Another one of my favorite quotes from Josey Wales -
"When things look bad, and it looks like you're not gonna make it, then you gotta get mean. I mean plumb mad dog mean. Cause if you lose your head and you give up, then you neither live nor win, that's just the way it is."
I guess that kinda applies to LD...what do you think?
-------------------- "Sometimes trouble just follows a man" - Clint Eastwood as Josey Wales Posts: 40 | From Pittsburgh, Pennsylvania | Registered: Aug 2007
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