posted
Maybe it's a herx? Mine came back a few weeks ago and it was ugly for about a week or so then it went away mostly. Still annoys me from time to time.
Amy
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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TadichGrill
Unregistered
posted
Could it be lower iron levels?
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Vertigo is USUALLY linked to ear problems.
Magnesium and hearing
J. Vormann1, M. J. Cevette2, K. Franz3 1 Institute for Prevention and Nutrition, Ismaning, Germany 2 Department of Otolaryngology Head and Neck Surgery/Audiology, Mayo Clinic Scottsdale, AZ, USA; 3 Department of Food Science and Nutrition, Brigham Young University, Provo, UT, USA
The pervasive influence of magnesium on cellular function extends throughout the auditory system.
Magnesium deficiency contributes to an increased permeability of the calcium channel in the outer hair cells
with a consequent over influx of calcium,
an increased production of glutamate,
and over stimulation of the NMDA receptor on the auditory nerve.
Magnesium deficiency also promotes oxidative damage and decreases glutathione.
Other factors that might be important in production of otoacustic damage are reduced blood flow to the cochlea due to increased production of and reactivity to vasoactive substances.
Increased susceptibility to noise damage, drug-induced ototoxicity, and auditory hyperexcitability are linked to states of magnesium deficiency.
Evidence for these processes has come slowly and direct effects have remained elusive because plasma Mg does not always correlate with its deficiency.
Experimental and clinical studies have shown that supplemental magnesium was able to reduce ototoxic events and might be of importance in preventing noise- and drug-induced damage."
My note: many drugs also reduce Mg levels.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Marnie,
Thanks for that excellent find. I especially appreciate this part:
" . . . supplemental magnesium was able to reduce ototoxic events and might be of importance in preventing noise- and drug-induced damage."
NAC, too, is very helpful with preventing drug-induced damage and can also help lessen vertigo. I put some info. at the end here.
==========
Geet,
It could be pollen in the springtime air.
In addition to magnesium (which also helps the liver), does ginger work for you? Both can help reduce inflammation. Stinging Nettle, too, may be of great help. Beta Carotene, too.
There is more discussed at this thread, too, and be sure to see the link to VEDA, the vestibular disorders association.
. . . provides information, resources, support, and advocacy for people with dizziness, vertigo, and imbalance and for . . .
================
NAC (N-Acetyl-Cysteine) --------------------
This, from a protocol for Chlamydia Pneumonia (Cpn) which is a similar chronic stealth infection. This treatment protocol is also similar to that of chronic lyme.
This is what one of the protocol authors says about the power of NAC to help protet the liver (in other articles I have seen that is also helps to protect the ears - perhaps by protecting the liver, first.:
. . . "Surprisingly, the only anti-chlamydial agent that did not cause hepatitis in some patients was NAC. In fact, NAC is recognized as being protective.
See attached references.
My conclusion is that NAC should be the first agent in an anti-chlamydial regimen and should be a constant part of the therapy for this protective effect, not to mention it's effect against elementary bodies.
1 - Ben Balough, MD is the Chief of Neurotology at the Naval Medical Center San Diego. Dr. Balough's presentation was on ``Antioxidants: Their Role in tinnitus.''
Dr. Balough stated that antioxidants such as N-Acetyl Cysteine and Acetyl-L-Carnitine are very helpful in preventing hearing loss due to noise exposure or ototoxic medications.
----
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
My dizziness has always fluctuated...by the day, week, or month. No pattern that I could figure.
Posts: 175 | From SW PA | Registered: Mar 2008
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posted
Thank you all for your feedback. I have been supplementing Magnesium 125mg a day but I don't know if that is enough. My Magnesium levels in my last blood test were fine though.
But are Blood tests reliable we all know that they are not always but does this apply to magnesium?
What is NAC? How much do you take? What about the Ginger you take it everyday or just when you feel dizzy?
Thanks all really appreciate the help and advice!
ME
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I've been told to take 1,000 mg minimum of magnesium a day, even up to 2,000 mg (with calcium and other minerals in balance).
Lab tests need to be for intracellular, too. Were your tests done by Quest? If so, you may need to have them repeated.
(Quest) Lab Acknowledges Problem With Vitamin D Test
By ANDREW POLLACK
Published: January 7, 2009
LOS ANGELES --
The nation's largest medical laboratory company provided possibly erroneous results to thousands of people who had their vitamin D levels tested in the last two years, the company has acknowledged.
The company, Quest Diagnostics, has already sent letters to thousands of doctors listing the patients who might have received ``questionable'' test results and offering free re-tests.
. . .
- Full article at link above.
==================
Although I did not see an amount, Dr. B's guidelines have the magnesium excerpts all at this thread:
posted
Did you have any increased stress right before the dizziness came back? That and stiff neck were the first 2 symptoms I got. The dizziness seems to go with my stress levels but not always. About 2 months after starting treatment I noticed my dizziness/lightheaded symptoms had all but gone away. Then some very stressful events happened back to back. About 3 days after the stressful situations subsided I got those symptoms back. They stayed for about 3 weeks and thankfully went away again.
Posts: 27 | From Boulder, CO | Registered: Sep 2008
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posted
what he ^ said!
Posts: 727 | From USA | Registered: Mar 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
How much D are you doing?
I went neuro on 4 weeks 50thous. IU
I would cut back to very low and ramp up slow.
Vitamin D is hormonal in behavior and can throw your system for a spin.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
My LLMD pushed me to 10,000 IU of Vit-D3. I've been feeling worse on it. My D level was 38 when tested. I'm wondering if I really need to keep taking it if I get worse.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
That D is not that bad. My levels were 3 and 14.
Sent me into shock. You can get too much and as a
consequence mess up your calcium. I would try even
400 and ramp up slow.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Did the dizziness start before or after you switched to Mino?
Mino has a side effect of dizziness.
I am already dizzy and it makes me dizzier. (I think.)
Posts: 819 | From East Coast | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Kitty, Good catch about the switch to mino. And, it's best to increase vitamin D3 slowly, too.
Yes, indeed . . . Mino can have some very rough effects for the inner ear system. Some people do fine but, for some others, they may have to switch. First, I'd try B-6 and NAC. Milk Thistle may have some effect until you can get NAC but NAC is the best bet.
Ginger capsules or tea can help with symptoms and inflammation (take it several times a day, on-going) but it's important to include B-6 - and especially NAC (N-Aceytl-Cysteine) - as NAC may help prevent the vertigo by protecting the ear from the ototoxic reaction.
B-6 has been used in studies and is shown to help prevent vertigo from mino.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Geet,
you might ask you LLMD for a referral to a LL ENT or LL neurotologist as not everything is lyme. Or your LLMD may be able to help you determine if this is from lyme, meds, or if you need a vestibular work-up.
A good vestibular work-up would also consider the brain. If you can, a neurotologist would be good (if LL).
posted
Thank you Keebler for your informative responses I am going to start taking B-6 again I stopped because I was getting numbness in my arms and thought it might be related.
I was always dizzy before the mino and after the mino for a few weeks it was BAD but then got better and even went away completely and now its back today is a bad day.
I am seeing a neuro that seems to know a bit about lyme so hopefully she will be able to help, right now we are trying to figure whats going on with the numbness but I will bring up the dizziness too.
I original went to her for the dizziness and she ran a bunch of tests which were all good. A ENG, an brain MRI, and VNG, etc. and I went to an ENT and had tests done there too. But good advice I will ask my LLMD for a referral to and ENT that is familiar with LD maybe that will help.
Have a good day!
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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