I'm going to suggest, however, if you do decide to register with Medic Alert, that you take a hint from the newly published ILADS treatment guidelines. No wait, maybe that was from our own LLMDs new Patient Handbook instead. Yes, I think it was.

Well, anyway, the suggestion was this. If you must go to another doctor, PCP, ER, whatever, do NOT say you have Lyme disease. Instead, tell them you have "neuroborreliosis" which should be less prejudicial against your chronic, late-stage Lyme diagnosis.

The Steere group has gone to great lengths to publish position statements defining Lyme disease as something which is easily treated with short term antibiotics.

However, they ignore the condition of chronic, persistent "late-stage" Lyme disease altogether. That's where the term "neuroborreliosis" can be used to best advantage.

Therefore, register not only your medication allergies when you buy your Medic Alert bracelet, but be sure to register your underlying health condition as being "neuroborreliosis" -- in order to avoid the necessity for defending your diagnosis of chronic Lyme disease, which isn't going to fly with any of these other doctors.

Afterall, the Steere crowd has covered their bases well by publishing position statements prejudicial against Lyme disease, as defined by them, in the journals read by emergency room physicians, too.

Now is the time to become aware of the advantage of redefining what our illness really is and that is by switching our terminology to the more accurate diagnostic label called "neuroborreliosis".

PS - You might also want to use this "neuroborreliosis" terminology elsewhere, such as when you fill out disability paperwork or whenever you must apply for special accommodations under the federally mandated thing about persons with disabilities, such as for college or public school situations.

thanks shadow

Thanks aaron

Thanks me ( sorry my other personality, the one that doesnt have lyme)

{thanks Kara )

I was dx with type 2 diabetes 1-2-04; so I researched and found MEDICAP pharmacy had the best bargain on getting a ID bracelet or necklace for $19.95...printing on both sides.

I put my name, home phone no., & type 2 diabetes on front; back side was everything I was allergic too.

7-12-04 dx w/lyme....neuoborroliosis; so thinking of getting ANOTHER bracelet for lyme & what I'm on. Since new meds are being added monthly/bi-monthly...I'm waiting for now.

At least I'm wearing one w/allergic info!
Betty G., Iowa

My meds switch a lot, and lots of meds are contraindicated or cannot be prescribed, so I also carry an updated meds list with me at all times, and my friends know how to access the list.

Anne

He picked it out, of couse he got the cool one and it was 60.00 but worth it, also in that cost was to have his name engraved on the front of it.

Alot of places I spoke to refused to do this because if a stanger comes up to the child they will see his name ect..

I figured if he lost it, possibly someone would recognize his name (school, church, places we go to frequently) and we have a better chance of getting it back.

This is a great idea and it makes me not worry so much if he is in a car wreck or hurt they could see he was on heparin.

Problem: he just got off heparin but the place said they could either "fill it" or scratch threw it. I am waiting until we know for sure he is off for good.

Great Idea!!