posted
Don't know the answer. Have you read the book "Adrenal Fatigue" by James Wilson? Might be a starting point.
Why was this test done, and what does the doctor say about the results? Or did you do this testing on your own?
My impression is that most doctors don't know what to do about adrenal dysfunction as it relates to chronic infections. That includes the endocrinologists. Maybe find a doc that is recommended by the Broda Barnes Foundation, because they tend to be ahead of the curve with thyroid and adrenal problems.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
There is a great deal in this book about the overactive and, therefore soon to become, overwhelmed adrenal system - when it is working too hard due to the "fight or flight" reaction that infections such as lyme perpetuate.
-----------
This book is specific to lyme and other chronic stealth infections such as Cpn.
The author discusses the endocrine connection and effects of STRESS on a person with such infections. I don't know why this is not required reading in medical school.
You can read customer reviews and look inside the book at this link to its page at Amazon.
The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005
by Russell Farris and Per Marin, MD, PhD
=========
Singleton's book ( http://tinyurl.com/6lq3pb ) also discusses adrenal support. And some of the "adaptogens" might be of great help. There are many books about adaptogens at Amazon.
=========
See pages 7 - 9 for suggestions on what can help adrenals. She has a section on adaptogens at the bottom of p. 8:
cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
Hi Mel, I had the same results you did. My LLMD recommended a product called AdrenoStress Guard (Ihope i have that right)
I did not take it because it has phosphatidyl choline, which gives me insomnia and irritablility. But the main ingredient is rhodiola
so i ordered some plain rhodiola about six weeks ago and it seems to be helping (unless of course i have it confused with one of the myriad other supps i take).
You can also try ginseng -- i've tried it several times and it makes me really drowsy, so try it at night first.
did you get your test thru diagnostechs? I think they include some diet recommendations as well.
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
You need an integrative doctor to guide you. When I had VERY high cortisol levels I was put on AdreCor along with some of their other
supplements, which I no longer remember the names of. But each person needs a protocol designed for them based on their lab work.
They have a whole line of supplements but you need a knowledgeable doctor, ND or even a chiropractor to help you.
https://www.neurorelief.com/ This is one of the best labs for adrenals and testing neuro transmitters, which need to be checked along with adrenal function.
Sorry I can't offer more, but you do need to address this. You can order AdreCor off the net and since it's an adaptogen it will help you but you it won't be a comprehensive approach.
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Melanie, your LLMD put me on Seriphos for the same problem. This stuff tamps down the adrenal response. I know people who have taken up to 4/day.
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Melanie you need to see the best endocrinologist
you can find. They need to evaluate you for
certain tumors that can cause high levels.
Especially if you have other signs. Which some
docs may just attribute to Lyme. While it may be
caused by Lyme it still needs fixed. Cortisol
levels swing all day and night and one test is
not enough. It sometimes requires challenges like
Lyme does to get to the bottom of things causing
it. It is not to mess with on your own! Can cause
blood pressure crazies and etc. And there
are certain usually benign tumors that can cause
it that only rears its ugly head occasionally. So
they too can be found with these challenges. A
good endo will do this if necessary.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
It is not to mess with on your own! Can cause blood pressure crazies and etc.
Actually it IS causing many crazy symptoms, and has been for a long time now...(I was told over 3 years ago that my Adrenals were shot)
High BP and pulse, when most of my life those have always been low.
Extreme insomnia, even with my special 'go to sleep' cocktail of meds aboard.
Total muscle loss...I'm now just a mass of bones and skin.
I even shrunk 2 full inches!
No wonder my immune system has given up fighting.
No wonder I wake around 3-ish am and am bouncing off the walls, even before any coffee.
No wonder I absolutely crash hard mid afternoon and MUST lay down because I am falling asleep at my computer.
No wonder I am back up an hour later till midnight or so and cannot settle down till I take those special 'go to sleep' pills.
And many other revelations have come to me since I got these results back and have had a chance to research a few things.
What I can't find in my research is what to DO to fix it!
Yes... I KNOW that is what my doc is for... and I have been trying to get answers... but it just isn't happening!
Once again, I LOVE this doc!
But my calls get me nowhere, so today I will be trying another tactic to see if that gets me any closer to what I need.
Thank you each SO much for the help, ideas, and suggestions. I will look over each one carefully.
Why was this test done, and what does the doctor say about the results? Or did you do this testing on your own?
The test was done on great suspicion that my adrenals were messed up, and yes it was through my LLMD. It was the all day saliva x 4 Diagnos-Techs AASI panel.
My impression is that most doctors don't know what to do about adrenal dysfunction as it relates to chronic infections.
This doc just happens to specialize in this area.
I did not take it because it has phosphatidyl choline, which gives me insomnia and irritablility. But the main ingredient is rhodiola.
I was under the impression that Rhodiola was used to energize? That is the complete opposite of what I actually need, right?
did you get your test thru diagnostechs? I think they include some diet recommendations as well.
The only diet recommendation I could find on my results were directed to the insulin levels and to do another challenge with some sort of specific meal. That was all I saw about diet.
But each person needs a protocol designed for them based on their lab work.
I completely agree. This is nothing to be experimenting with on my own! I'm just SO weary of being the patient AND the doc at the same time, ya know?
Thanks again to each of you for the help. You are SO appreciated! M
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Abxnomore
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Member # 18936
posted
Rhodiola is an adaptogen meaning it will bring down high cortisol levels and bring up low cortisol levels. I see you are in CA. That is where the neuro science lab is. I think the site has a place to locate doctors who use their testing.
If not call them and find out if they can help you find a doctor knowledgeable who uses their lab. You need help from the right kind of doc ASAP and that is usually an integrative doctor. It's more than adrenals, neuro transmitters need to be looked at too.
Good luck.
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sorry you are sick. Please look up Pheochromocytoma
for signs and symptoms. It causes more than just
high blood pressure. It can totally degenerate
ligaments and tendon, they turn to mush.
Nervousness, wt. loss, seizures, etc. While I do
know it can just be caused by lyme I would expect
to not have overactive adrenals at this time.
They should show signs of underactive, it should
go down from inflammation like our thyroid and pituitary
response, unless you have a little pheo somewhere.
While it can be caused by other little tumors
this one excites them the most and can be
dangerous to even test for. Thats why I said the best Endo. Prayers, Melanie
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I do not recommend taking GABA. It's a serious neuro transmitter and you cannot treat this without a doctor. Every person's situation is different.
Cortisol gets elevated in response to stressors, illness, trauma, etc. sometimes pituitary gland problems and it sky rockets in response to stress. That's what it's supposed to do but you need intervention.
When the gland can no longer respond it burns out and then you have low cortisol levels.
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posted
A relative with thyroid and adrenal issues was told to take DSF, but I don't know whether that is for low or high cortisol. It is a glandular, made from bovine sources. So, a worry there about prions?
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Melanie,
Why don't you call the pharmacist on the number at the end of this article. They are a very good compounding pharmacy and perhaps he/she can guide you and put you in the right direction about about what to do.
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