posted
Just wondering if anyone else has these horrible symptoms and why they are there.
Had a complete pulmonary workup. Total cardio workup up to a CT scan of the heart. Negative all around. Having daily palpitations and shortness of breath. still as scary as when they started. So tired of this just kill me already and get on with it.
28, non smoker, and 8 brutal months of this daily. **** lyme.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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losferwrds
Unregistered
posted
Are they palpatations or Tacychardia. Is it worse when you are standing?
Do this, check your pulse sitting down, then stand up and check it again while standing. If it jumps like 30-40 bpm it could be Postural Orthostatic Tachycardia Syndrome http://www.dinet.org/
If its just palps and breathlessness, it could be from babs and/or bart, and a magnesium deficiency.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hang in there Toppers. It is not an easy illness that is for sure. And then tests that you would think would be abnormal are normal, making you even more confused.
I get the palps and tachycardia too. Not real shortness of breath, but feels like I can't breathe. I think it might be babesia symptoms.
Have you addressed co-infections?
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
The BPM does not change when I do that. However my vitals are going lower and lower by the month. Pulse and BP just taken were 105/65, 62 h/rate. systolic and diastolic are dropping by like 5 pts a month, it's insane. I started out at 125 / 85 last year.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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I too had all the symptoms you described. All my tests came out normal as well. My doctor put me on IV Rocephin for the Lyme and this has helped tremendously.
What antibiotics are you on? Are you seeing a Lyme Literate Doctor?
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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posted
None and no. I haven't done the IgeneX test yet. Can I have my doctor put me on trial antibiotics to get a "cheaper" diagnosis instead of dishing out 1k for a complete lyme test?
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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posted
My Primary Care Physican is the one that diagnosed the Lyme. He ran a Western Blot Test and sent it to LapCorp which came back positive. This test is not 100% acurate, but at least it is a start with your primary doctor until you can get to an LLMD.
Do a Western Blot NOT and Elisa. Doxycycline is what most Primary Care Physicans seem to start with.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Toppers,
I had all of these symptoms. They went away when I treated for Parasites and Worms which play a MAJOR part of lyme disease. Check out
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I am also having the symptoms. It is a common sympotm of adrenal fatigue, which basically means your body is low in cortisol hormone from being so stressed from being sick so long, and ALSO it is a sign of Hypothyroidism, and both seem to be common in Lyme disease as I learned from reading http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
So, please get that checked by someone who knows what they are doing..PS- ost endocrinologists have NO clue. I am dealing with this now. Please see www.drlowe.com BRILLIANT man.
posted
Oh sorry..I forgot to add that it is also VERY common in those who are sick a long time to be short in B12. Get a sublinguial methycomalbamin vitamin and do not take more than 3000mg a day. You should feel better right away.
posted
So you say don't take more than 3000 mg a day.
The person who linked the worm thing a couple posts up has a protocol for like 15000 mg a day,.
which is it, rofl. So tired of this, thanks for responses though.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Igenex Western Blot only costs $200.00 for IgM and IgG.
Tests numbered 188 and 189.
Magnesium helped me a lot with my heart symptoms.
Palpatations included.
I had a nuclear stress test done and my heart was "perfect".
If your pressure keeps dropping, you may have Neurally Mediated Hypotension.
When you stand up, even sit up from a prone position,
Your blood pressure drops.
When I started mine was 120/80.
About 1.5 years into treatment while visiting my LLMD,
My blood pressure was in the 60's/40's.
I take cortef to help with this.
Water helps as does extra salt in my diet.
Try the B-12. Don't exceed 3000mg a day to start.
Until you know exactly what is wrong with you.
Magnesium you can take until your stool gets loose.
Then you know it is too much and back off a little.
I weigh 105lbs and can take 1000mg of magnesium easily.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Topper,
I posted the parasite/worm link. I don't take any b12. I think you are confusing it with the salt/c protocol which i take 20,000mg each per day. Just wanted to clarify,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Can anyone else verify that parasite website? That's insane
Question: What was the weirdest thing that has happened to you since starting the treatment? Answer: I had two really strange experiences. The first was when the microscopic worms started to exit my body through my eardrums. It happened after a shower, on two occasions; one hears a crackling noise. Upon further investigation, it was found that the worms were present on a Q-tip. My second strange event was lying awake one night and feeling a microscopic worm exit through the top of my head. Never break the microscopic worm off, let it come all the way out of your body. Just like earthworms, the worms can regenerate, and the remaining half can regenerate in your body. You want to allow the worms to crawl out and desiccate. The next morning, I had a scab on the top of my head. You will feel the worms crawling out of you, especially on your face since your head is where so many of them like to reside.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Toppers,
I have had EXACTLY what is pictured in that website pour out of me. The website is legite. Check out lymestrategies. These are the people on the protocol that have Lyme.
Go back in the archives to 2004 when people first started on it. Willy Burgdorfer found Filarial Worms in the ticks and as an aside found the spirochetes.
For me it all makes sense as to why there is so much pain and suffering involved with this disease,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I have those same symptoms.
I've got a definite dx of Ehrlichia and clinical dx of Lyme, babs and bart (waiting for the IgeneX tests).
I'm on Doxy and Rifampin, plus 50,000 IU Vitamin D weekly.
Today was the first day in almost a year I felt mostly decent, except for one episode this afternoon.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Sounds like Babesia to me. I have those symptoms as well. The shortness of breath has been MIA or totally toned down for the last couple of months since being on Mepron for almost six months now.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
And Gael I did a search, you seem to be the only one promoting this salt thing. Hahaha nothing like having a debilitating illness that doctors can't help you with, them internet scammers bombarding you with profiteering websites. I quit.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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