Here I am again with more heart issues. Tachycardia and palpitations have always been an issue for me since my onset last year.
Last month my new LLMD thought I was deficient in Mg so she gave me an IM shot of it. My heart got worse and worse after that. It would feel like a strong thud coming from the bottom of my heart and just feel like it was flipping around. One night in bed, I could feel pauses in my pulse. I panicked and went to the ER the next day. My EKG did not show a thing other than tachycardia and my cardiac enzymes were normal. They also had me hooked to a heart monitor and did not see anything.
I then gave myself another shot of Mg like my LLMD instructed me to do. Again, my heart flipped out. It would thud and flop around. I have never had that before. It sort of feels like your heart is moving around or something.
Anyways, my cardiologist said absolutely no more magnesium. He said it was messing with the electrical system in my heart. My Mg level at the ER was 2.1. This was 4 days after the IM shot of Mg. He thinks it was just too much Mg and said something really bad could have happened taking those shots. I have not taken one since and my heart seemed to have gotten better.
I had my third cardiac workup 3 weeks ago. My echo was good. My 24 hour halter monitor fell off around 15 hours but during that time they did not find anything. No PAC's, PVC's, or arrhythmias. I did have an episode of sinus tachycardia where I got up to 144 when I was up moving around.
Well, last night I had another episode after I ate. My heart felt like it was jumping or thudding near the bottom of my heart. It happened several times and then finally went away. I woke up today and felt it again while sitting in bed typing emails. I felt my pulse on my neck and I could feel double beats. I was like beat...beat...beat beat... beat...beat. The thudding and strange sensations in my chest went on for maybe 15 minutes. It terrifies me. They can never find anything on my cardiac testing. It usually happens at night after I eat and I do not know why.
My potassium level is good and my calcium is getting on the high side. Last month it was 10.3. My LLMD ordered labs for me to check for parathyroid and to check my electrolytes.
Should I be concerned? What is this? I have been checked out 3 times now and even had a stress test while I was herxing and very tachycardic. They cannot find a thing other than sinus tachycardia. Are these double beats and thudding something to worry about? Whatever it is feels like it is coming from the bottom of my heart, not the top.
Ahhh I hate this heart stuff! It is so scary for me. I refuse to go running to the ER for the 50th time over my heart. Help!
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
feelfit
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Member # 12770
posted
try hawthorne? Google heart hawthorne and decide if it might be something that would help you. Cayanne pepper too. There is a book called Left For Dead that tells of one man's amazing results with cayanne.
I have been taking hawthorne and my tachy has been way less frequent.....or it could be my new meds: IV rocephin, mepron, zithromax....
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
A friend went to get her b12 shot, and asked about magnesium shots. They told her they don't do them anymore because they've found they mess with the heart, adding an extra beat. I don't know...?
I hope you get feeling better!
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I think it is most def Babesia related. Since I started babesia treatment a couple of weeks ago, way less heart stuff....
Can you try treating babs again? I know the heart stuff is awful. For me, the only time that my heart would not be tachy is when I was perched on the bed.
Showers and the hot water really aggravated things too. Our heart rate should not be over 100 just walking to the bathroom
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Eating, showers, heat....all of those things have gotten to me.
My heart's been significantly better, for the most part, since doing some babesia treatment.
Except today. And a bit yesterday. I've got palps. It's making me crazy, and of course, scared.
You know, 'extra' beats and things like this, when they have not found an underlying heart issue....they always say it's a benign thing.
It seems like a really horrendous thing to just deal with, and be 'okay' with.....but maybe that's 'all' it is.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hi BlueCheetah,
I know what you mean about the double beats. Last fall when I was taking Magnesium citrate, I was getting skipped beats, tachycardia and the double beats. A friend who has a stethoscope caught the double beats while listening. I was having them a lot. She said that it sounded like mine were originating from the upper chambers.
I started oral mag April 2008. My heart stuff got worse, the last time I took it was Oct 31, 2008. I figure that I've had Lyme for almost 13 years and I never took magnesium before and I was still alive, and with the heart stuff I was getting, no more.
Sorry that this is happening to you. If it's from the mg, it should calm down in a few weeks, at least that's when I noticed mine getting better.
I am really tired so I am thinking I am going into my monthly Babesia flare. I was at the ER exactly a month from today. My heart was nuts around this time last month too.
I am doing a 3 week detox and then I am back on Mepron. I never had any of this while on Mepron. I did have tachy but that is normal for me when I am up moving around. I never had this thudding or the weird beats.
My tests results have all been good. My echo was actually better than the previous one. It just seems when I wear the 24 hour monitor, none of this happens. So very frustrating.
Thank you all for your help. I can take anything this disease throws at me but the heart symptoms.
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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posted
I'm with you on the heart stuff. I'm having an episode myself today. I was wearing an event monitor for a week, recording everything that I thought was a heart symptom. Sure enough -- as irony would have it? -- my heart is acting up and the cardio office calls me and tells me to go ahead and mail in the montior, that they have enough info and nothing looks urgent. So I'm busy feeling crummy today and they tell me it looks benign. Great.
I typically get the occasional double beat. However, I could have swore I hads multiple "double beats" / PVC's within 20 seconds. I did get a chance to record that, but the monitoring place can't tell you anything about the reading.
I also get tachycardia when standing up. Not all of the time, but it does happen. Mine is not extreme, maybe up to 120, but I still dislike it.
I also deal with chest pain, back pain, left shoulder pain, and shortness of breath. I hate all of it. If I could get rid of the cardiac symptoms, then I would be so happy.
Posts: 194 | From Colorado | Registered: Nov 2008
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posted
And I'm tired of going to the ER. I try to promise myself that I will only go if things are real bad because all other attempts have found nothing.
Posts: 194 | From Colorado | Registered: Nov 2008
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posted
You sound a lot like me ott70. My heart stuff is the worst. Mine just feels like a fish in there right now. I am not sure if the beta-blocker I have would help it or not.
I am trying to avoid the ER too. They never find a thing. This heart mess is making me lose my mind.
I hope you feel better soon!
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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posted
This has been going on with me for years and I am still here. Once it was so bad I went to work with my husband every day for three weeks because I was afraid I would be dead by the time he came home. I just sat in his cafeteria the whole day. Crazy!
It is much better now. I am on IV Rocephin but I don't know how long the reprieve will last. All I can tell you is that stress makes it worse so when you feel something weird and panic you will release more adrenalin and you will need the ER again.
I try to relax and say it will pass. This is very,very difficult. In the beginning I used to call 911 but I don't anymore. Of course if it feels serious then do what you think is right but I know how you feel- I have been there and it is not over yet.
Posts: 425 | From NY, United States | Registered: Mar 2005
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I am so sorry you have gone through this too. I am scared to be left alone as well. The fear is just insane. I usually get spells of this once a month so to me, it sounds like some sort of flare/herx. I would do anything to get this heart mess to stop.
I am eating right now and just waiting on it to start going crazy. I panic when I have "episodes" which only makes it worse. It does seem to be an adrenaline issue of some sort.
Thank you so much for your reply.
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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posted
I would ask the cardiologist for a 3 wk monitor. Sounds like it would be horrible after that obnoxiuos 24 hr one with all the electrodes and sticky patches!
But no! I have only two leads on mine and I can even shower with it. I just take off the leads and it's good to go.
I just got mine Thursday so I have a long way to go, but so far it's MUCH better than the regular Holter monitor.
I have A-fib and MVP but I THINK the flip flop thing is from my A-fib .. sounds like what you're describing.
Do you think (in your case) it would be caught in 3 wks time?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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I always seem to get this way 3-4 weeks. I think if I was wearing a 3 week monitor or a 30 day event monitor, it would pick it up. They always give me the 24 hour monitor mess and my heart never acts up. Go figure. The sticky patches I hate. They never stay on.
I will ask my cardio about the monitor you have.
Thanks so much!
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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posted
Have you had an adrenal panel run, either by blood or saliva? All of my adrenal hormones are out of sorts, and it has made my heart issues worse...........
-------------------- TL Posts: 365 | From OK | Registered: Jul 2007
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posted
Hi Tif - No I have not had my adrenals ran but I want to do the saliva test soon. I am working on doing that and my LLMD also ordered labs for me for parathyroid.
TuTu - Isn't A-fib felt on the top of the heart like a flutter with a fast heart beat? What I am feeling is coming from the bottom of my heart. Something like a PVC or something. It feels like the bottom of my heart is kicking or something. It only happens when I am sitting and my heart rate is not over 100 when it happens.
Event monitor here I come! Someone please stab me with a fork, I am done.
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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bettyg
Unregistered
posted
good luck; i tried nih's medical library, www.medlineplus.org but found nothing quickly on double beats! xox
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pamoisondelune
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posted
I've had lots of skips and doubles beats off and on, from lyme? Babesia?, as many as 6 per 30 sec. No one did anything about them.
Now they've stopped, since i'm taking COPTIS chinensis extract, which is a Zhang herb for babesia. It contains a lot of berberine.
A fellow posted that his heart skips stopped while he was taking Coptis, but resumed when he stopped taking Coptis.
---Polly Polygonum (i'm taking this name because it sounds more human)
Posts: 1226 | From USA | Registered: May 2007
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posted
Thank you everyone. This is a lot of great info.
pamoisondelune- That does sound like me but it only happens once a month for a few days. It is like clock work. I compared the dates to last month in my Lyme diary and my heart was doing the same thing last month at this time. I think it is Babesia related to tell you the truth. I never had this on Mepron. I am going back on it shortly so hopefully this will stop.
I will ask my LLMD about the COPTIS chinensis extract you mentioned. Thanks so much!
-------------------- Lyme, Babesia Microti, possible Bart. Posts: 173 | From A little south of sanity - PA | Registered: Jan 2009
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