posted
I have looked around the boards but haven't seen to much info regarding a situation like this. I have posted and read a few questions that refer to idiopathic Parkinson's but now think my situation may be more related to parkinsonism possibly from Lyme encephalitis.
My Neuro symptoms started after sore throat bad headache and stiff next in February of 08. Over the past year my symptoms which include all over tremor, rigidity (cogwheel), speech problems, muscle twitches, myoclonus, and so on that have progressed pretty quick despite antibiotic treatment.
I was wondering if people on here had any insight or info on the situation. Do you think the basal ganglia has been directly affected and the damage is permanent and irreversible?Could Lyme only be the culprit and with proper treatment (IV) stop affecting the area
I've been on oral Biaxin and Rifampin for the past 4 months. Think I've had Lyme for 8+ years and have had multiple positive Lyme tests.
Any info or thoughts on the topic would be much appreciated
Posts: 16 | From MA | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Hi, raki.
I'm sorry that I can't answer your question about the basal ganglia. However, from all I've read, I think there is a good chance that this is lyme related - but maybe more things need to be addressed, too, especially how you are handling the toxins.
Lyme is one of the most toxic infections, nearly up there with botulism. And, while necessary, the medicines also can have adverse effects on our liver. However, that can be avoided with very specific measures.
Just killing off lyme is never enough, a stellar program to handle the toxins is also vital. But it also can't be too harsh on the liver as some commercial detox "experiences" can be that all over the web. There are many safe methods that some LLMD suggest that may be of help.
It's understandable after four months to wonder but, after 8+ years of lyme, it will take much longer than 4 months for results.
Yet, it is possible to get better. I don't see liver support listed but I do hope that is an equal part of your treatment.
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Is that all-over tremor all the time?
Have you also been evaluated for other tick-borne infections?
Are you using very specific liver and adrenal support supplements? NAC (N-Acetyl-Cysteine), Milk Thistle are best for the liver but there is more to that. Adrenal support is another whole topic.
What is the dose of magnesium and fish oil that you take each day? Low magnesium can also cause many of the symptoms you have, even speech, tremors and myoclonus. Lyme steals magnesium from our cells. Our cells die with out it and so can we. See page 2 from Burrascano's link below.
Can you get to a far infrared low heat sauna? This could be a very important tool for you. While I am not a fan of intense liver flushes as an event, you may require deep detox measures - still gentle - but methods that can have a deep effect. Infrared sauna - low heat - is one of the best ways to do that.
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You can only buy this for a few more days as they are going to open the movie on a national scale soon:
While not about Parkinson's, this is encouraging - about a doctor who had misdiagnosed ALS. Turns out it was a tick-borne infection. He got treatment and substantially improved.
Motor neuron disease recovery associated with IV ceftriaxone and anti-Babesia therapy
W. T. Harvey, D. Martz
ABSTRACT
This report summarizes what we believe to be the first verifiable case of a significant and progressive motor neuron disease (MND) consistent with amyotrophic lateral sclerosis that resolved during treatment with i.v. ceftriaxone plus oral atovaquone and mefloquine.
The rationale for use of these antibiotics was (i) positive testing for Borrelia burgdorferi and (ii) red blood cell ring forms consistent with Babesia species infection. The patient has continued to be free of MND signs and symptoms for 15 months, although some symptoms consistent with disseminated Borreliosis remain.
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for the full article/ radio interview, Google: "Dream Doctor" ALS "Martz"
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[ 05-28-2009, 01:37 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Dr. Burrascano's Treatment Guidelines, 16th edition, October, 2008
From a word search of this document, nine mentions of magnesium were found. All of those are included in these excerpts:
. . .
Page 6:
Magnesium deficiency is very often present and quite severe.
Hyperreflexia, muscle twitches, myocardial irritability, poor stamina and recurrent tight muscle spasms are clues to this deficiency.
Magnesium is predominantly an intracellular ion, so blood level testing is of little value.
Oral preparations are acceptable for maintenance, but those with severe deficiencies need additional, parenteral dosing: 1 gram IV or IM at least once a week until neuromuscular irritability has cleared.
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Page 25:
Levofloxacin is generally well tolerated, with almost no stomach upset. Very rarely, it can cause confusion- this is temporary (clears in a few days) and may be relieved by lowering the dose.
There is, however, one side effect that would require it to be stopped- it may cause a painful tendonitis, usually of the largest tendons. If this happens, then the levofloxacin must be stopped or tendon rupture may occur.
It has been suggested that loading the patient with magnesium may prevent this problem, and if the tendons do become affected, parenteral high dose vitamin C (plus parenteral magnesium) may afford rapid relief.
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Page 28 (in the supplement section):
6. MAGNESIUM (required)
Magnesium supplementation is very helpful for the tremors, twitches, cramps, muscle soreness, heart skips and weakness. It may also help in energy level and cognition.
The best source is magnesium L-lactate dehydrate (``Mag-tab SR'', sold by Niche Pharmaceuticals: 1-800-677-0355, and available at Wal-Mart).
DO NOT rely on ``cal-mag'', calcium plus magnesium combination tablets, as they are not well absorbed. Take at least one tablet twice daily.
Higher doses increase the benefit and should be tried, but may cause diarrhea. In some cases, intramuscular or intravenous doses may be necessary.
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Page 30:
. . .
OTHER OPTIONAL SUPPLEMENTS
VITAMIN D
Surprisingly, most people in America are vitamin D deficient. In the Lyme patient, low vitamin D levels can cause diffuse body aches and cramps that are not responsive to magnesium or calcium supplements.
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The
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Pennington,
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