posted
I am currently asking myself the same question.
I have been diagnosed with fibro and currently take gabapentin for the fibro pain. It has helped ease some of the pain with very little side effects.
I see an LLMD the first week of June. I think my fibro is lyme induced. I have many lyme symptoms and a high exposure risk. Hopefully, I can get some answers soon!
JT
Posts: 72 | From Massachusetts | Registered: Feb 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
My fibro is lyme induced also.
Since my infection was never treated when I developed it and my symptoms remain, it is treated as an active infection.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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rheumatologist both say I have fibro but refuse to
believe I have lyme (I was infected 2005 treated
short-term, wasn't better when I was told
treaatment was finished been sick for 2 yrs).
So far the only LLMD appointment I have is in
September.
So if I was believed I would be treated just for lyme?
Posts: 105 | From Mass | Registered: Apr 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
CathyMary,
You are correct....and any coinfections.
The only reason I have a fibromyalgia syndrome is because of a tick that I never saw.
Fibro is just a set of symptoms given a new name that has "no known cause".
Everything has a cause...they just don't want to look for it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Ditto to what Dekrator said! Treat the Lyme and you should get better.
Do you need more LLMD names?? PM me if you do.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Lyme induced fibro should always be treated as an active infection. The Steerites who say you have lyme induced fibro and there is nothing that can be done to help your symptoms do not believe in chronic lyme disease.
I had overall body wracking pain for a number of years. My pain levels decreased by 70% with IM ceftriaxone. My horrible neuropathy symptoms went away with the first year of lyme treatment. I've heard plenty of other people who got the same results.
I know someone who was treated with the standard IDSA short term abx for lyme after which she was told personally by Steere that she had lyme induced fibro and would have to live with it.
Fast forward. After 20 years of horrific suffering and almost bedridden she embarked on lyme treatment again. She is almost completely well now. This is not an unusual story at all.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I definitely feel my fibro was lyme induced since it started subsiding after treatment.
Considering the doctor's diagnosing Fibro say there is no cure and you will have it for life, I have been pretty happy to find that Lyme treatment DOES make it go away or atleast settle it down.
I had tried Lyrica since I know many swear by it, but it just wasn't a drug I tolerated very well.
Hope it settles down soon.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
I was diagnosed with Fibromyalgia a long time ago.
I've been taking Lyrica for about a year, and it works well for me.
If you do start taking it, please start with a low dose and work up slowly. It can really cause dizziness if you go too fast.
My first LLMD appt was a couple of days ago, and now I actually have hope for the first time.
My LLMD wants me to keep taking the Lyrica as it will help with the herx reactions that are bound to happen.
By the way, I was treated with antibiotics and also colloidal silver IV's a couple of years ago. The treatment lasted only a couple of months and wasn't enough.
Good luck to you. PM me if you have any questions about my treatment plan.
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
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posted
Thanks for all the comments and suggestions it
helps me know that I am not crazy when I
think i may be right and my doctors are wrong (2 and counting).
Especially my new rheumatologist. Get this he
knows I am "post lyme" I am seeing him because my
A and A is abnormal and my primary suspects fibro.
We are talking over my history/symptoms, I
suggest i could have Lyme. He states "impossible
because my knees would have to be swollen like
balloons" He believes my increased A and A due to
the fact that my mom has RA. I have never heard
of these things, I am speechless. He examines me
and finds crackling knees, did I know, I know
they HURT, he orders Nabumetone for the
inflammation (i thought it was only a heredity
factor?). States he will order a bunch of blood
work more RA, lupus....if everything is negative
then I have fibro, see you in six weeks. Two
weeks later I call, complain no relief in joint
pain, change meds over phone to Oxybutynin.
Posts: 105 | From Mass | Registered: Apr 2009
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lymeparfait
Unregistered
posted
My fibro symptoms go away when I take amino acids! Just tried a powdered form of complete amino acids, My Amino Plex by Craylon, suggested by my ND. I have been treating lyme and co's for 1 and 1/2 years before this addition.
I had immediate relief of muscle pain, and believe it helps with the neuroprocessor regulation.
Remember, lymies do not break down foods well in the gut, and therefore are not getting their nutrients. Try smoothies with added vitamins, flax seed oil, or fish oill, and raw green drinks of veggies.
Start with nutrition, then see what symptoms and imbalances are left to treat.
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
LOL, at least they didn't say MS this time. Which is another dumping ground like Fibromaylgia. LLMD is the way to go.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
CathyMary,
I believe it is your ANA that you refer to that is abnormal.
Mine is abnormal too.
My LLMD says that this is common with lyme because it is just an inflammatory marker and it should improve with time/treatment.
Your Rheumy sure doesn't know anything about lyme.
Many people have lyme and don't have swollen knees, including me.
Dr's like that are a huge waste of time and money.
They just don't get it. They see many, many patients with "fibromyalgia" whom they just continually medicate to keep their practices thriving.
They don't even bother to look for the real cause of the FMS.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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