I have a whole slug of prescriptions that I need to add one per week. I started with the acyclovir because of a horrid cold sore. After 3 days of 3 pills a day (800 mg/pill), my gut went nuts and I had to quit all supplements, drugs, etc (except the Prozac!) until it cleared up.
After I got better, I started it again, thinking it couldn't have been the problem because I'd taken it 3 days already. Well, after 3 days, my stomach started to cramp up again. So once again, I stopped all medications/supplements to let it clear up.
My one LLMD suggested I talk to the prescribing LLMD about Laruicidin. After looking it up, it looks like it'd be a fantastic support to all the other meds I'll need. I didn't get a chance to ask her about it, her assistant called me back and told me to go on 1/2 dose of acyclovir and see how that was.
I don't want to take the acyclovir. Here's why - if 3 pills/day made me sick in 3 days, 1.5 pills/day will make me sick in 6 days, and I'll be that much further behind. I have yet to swallow even one antiobiotic, this whole mess has set me back 2-3 weeks. Plus, if the acyclovir has that strong of a reaction in my gut, what will happen when I start adding the abx's?
I have successfully tolerated ketoconazole for 5 days now, and want to start one of the abx in a day or so - either the ceftin or the biaxin.
I'm going to send my Dr. a fax (she doesn't have email and I have to type it up to make it anywhere near coherent), and hope she agrees. Of course, it's ultimately my body, my decision, I just don't know if she understands that my gut is pretty sensitive, and I don't psychologically tolerate nausea, vomitting, etc, at all.
I'm starting to get depressed that I can't even handle one thing. Plus, I have family coming in the next couple of months to help me through the herx stage and I want to take advantage of that.
What are your thoughts?
4 am the next day: I just had an aha moment, I think. My gut has gone off once again so I can't lay down until the pepto kicks in. The three times this has happened, the only common denominator is the supplements I take and potatoes. The supplements (all on Burrascano's list for neuro-lyme) worked fine by themselves for over a week.
BUT - I had french fries 2 days in a row before the first episode, which was the worst. Day before the second one, just some roasted potatoes, and yesterday french fries again, and this one is pretty bad Of course I have lots of ketchup, too. So do I now have a nightshade intolerance!?
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I am so sorry to hear you have a tough time. I don't know what to say since I didn't have any trouble w/ Acyclovir. I had done 4800 mg a day (not a typo)for years for my "MS".
This will bump it up before it gets too low on page 1.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Yes! LOMATIIUM!
It's an antiviral herb.
It completely and permanently eradicated, cured, my herpes simplex 1 lip sores.
Historically, LOMATIUM saved the Washoe Indian tribe from the 1918 pandemic flu.
Steven Buhner recommends taking it for a month since it is a strong herb (i.e., take lots of milk thistle and liver support herbs). But it didn't bother me, so i kept taking it for a year and more for lyme, although i never had any more herpes outbreaks.
It is known to cause skin welts (temporary). The first times i took it, it caused a skin welt in a perfect circle above the upper lip in the area where my herpes outbreaks occurred.
In all the time i was taking LOMATIUM, there were no more herpes symptoms or skin welts. On the Buhner forum there was a secondhand report or rumor of a girl who took it for 4 months, persevering through huge skin welts, and supposedly cured her lyme.
I bought 3 different brands from the internet.
I've also posted about LOMATIUM here. You could have caught it by searching on antiviral, i guess, unless you spell it anti-viral. I don't know how i spelled it.
---from Polly Polygonum (i'm taking this new name)
Posts: 1226 | From USA | Registered: May 2007
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I'm really curious, though - does anyone think this could be a new allergy/intolerance to potatoes?
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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posted
One of the LLMD's I have seen suggested that giving up nightshades reduced pain in some of his patients and in himself. You might want to try it to see what happens.
He also said the best way to see if it would work is to eat a whole lot of nightshades for a day or two and see if you got worse. Then you would be more motivated to give them up. He said it could take a few months to get the benefit.
Either way, I would give up the potatoes and see what happens if you think that might be the problem.
Posts: 984 | From US | Registered: Dec 2007
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btmb03
Unregistered
posted
Good advice above, restaurants/fast food places or processed food can have additives and oil that has been re-used..so you could have reacted to that as well.
Perhaps a better option for starch might be brown rice or long-grained unpolished rice available at ethnic stores. Hope you feel better soon!
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I have cut out gluten and am eating brown rice tortillas, not bread. I'm also supposed to be doing low-carb, low-fat. Try finding a low-carb, low-fat, gluten-free anything.
At this point, I'm terrified of potatoes, so there's no way I'm going to eat any for a very long time, altough I've heard red-skinned potatoes are not nightshades. It won't be hard to not eat potatoes when I remember the miserable nausea and cramping, that just sucks!
I'll also see what my docs say....
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Red potatoes/new potatoes/red-skinned potatoes are of the nightshade family.
The only "potato" I am aware of that is not is the sweet potato, and it isn't really a potato. If you can tolerate fried foods (for many people it increases inflammation), I have a great recipe for sweet potato fries I can share.
I would try an elimination diet of all nightshades, dairy, gluten, sugar, caffeine, and anything else you might want to check, for a few months, then add one group in at a time (except caff. and sugar), while gauging your response.
I know it's a pain in the rear and you want to find things out quickly, but there really is only one way to tell, and it takes time.
Anyway, if I were you I would start antibios first, and try some herbal antiviral tea (with your LLMD's ok, of course), on the side, as long as you make sure it isn't contraindicated.
Those antiviral meds can be hard just starting out. Your TBIs might need some pounding into submission before you can handle stronger meds? That was the case with me - still is, but I am getting better at handling my meds now.
This is all just my opinion, and I'm not a doctor - just advice based on my own experiences.
posted
I had a HUGE cold sore, and I've never had one before, so she was concerned that starting abxs would allow the virus to flare and then I'd be even more miserable. I have since found a blood test from 2 years ago where I have very high HHV-6, way over the range. I will share that with her and see what she says.
I think it's weird that all these things are coming up now (cold sores, food allergies), when I've had Lyme for years and never had these things.
Thanks for the advice, re: elimination diet. I think I might try Singleton's anti-inflammatory one, I have the book and need to lose weight anyway! I tried elimination 2 years ago, and nothing showed up.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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