I am newly diagnosised. I was tested via electrodermal )hold rod,use metal plate viles etc. Not sure what its called but I had three different practioners over 3 years tell my I had Lyme. The blood tests were negative. I guess I wanted the blood work to be clear for me to believe it.
Been in bad pain for 8 plus years thought is one only due to injuries but the last 5 years it included fatigue, brain fog, hormone imblances, neuro problems,viruss and the like.
Treated pain, did shoemakers, homeopathy and other nurtrients. Treating the hashimotos was the only thig that helped.
I am taking homeopathy and herbs from a ND who makes some of his own herb mixs. He has lyme as well, and does the above mentioned testing. I do trust him but I still don't know if I am doing the right thing. Its been 3 months and no change one way or the other but I am not expecting over night results.
I just don't know if I am treating the best way possible. I know we are all so different with different rates and responces and all the nasty co infections but dam where to begin.
I have to admit that the more I read the more depressed and scared I become.
Do I deal with the parasites first. I know they have to be there. (lived in Nepal and India) Do I do AI first or start trying to kill things? Iam not intrested in doing ABX that is at least one thing off the list. Salt/C is off too. I tried it in small amounts and it affected my heart so that is out of the mix. Still leaves a hell of a lot.
If you had to start at the begining with out a lot of cash or support what would you do?
I am grateful that my MD listens and really cares. She is lyme savey...but it always seems that I have to suggust everything and then it takes months to get anywhere with her support. She has been great for pain meds and Hashimotos but the rest only OK.
I can't afford the insane amount of money the Lyme docs here charge. Feels like exploytation and it makes me really mad that people can take advantage of very sick people.
I so appreciate how much people on this site have endured and the courage its taken to get you through each day. I can only hope I can muster even a little what many have done here.
My mind seems to be in a constant state of loop de loop coping with the constant neck and back pain is brutal and sadly I feel traped. Thanks for letting me vent.....and any thoughts are always appreicated. peace
Posts: 161 | From sonoma county | Registered: May 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Natural remedies can be good, but many people need to take antibiotics at least at some point to overcome Lyme.
Can't your doctor prescribe you antibiotics? If you are taking pain meds, why are antibiotics out of the picture?
You don't have to do them heavy duty if you don't want to....you could just start with Amoxicillin and some herbs, or Biaxin with some herbs. It is better than nothing in my opinion.
I use antibiotics with alternative medicine. There are too many natural remedies out there that frankly just will not provide lasting results, or they aren't good enough on their own. I'm not speaking specifically of anything you mentioned, but just speaking from experience.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
thanks hoosiers I wish I wasn't on any meds esp. pain meds, but without them I wouldn't be hear. I am open but I prefer to stay on the natural side as much as possible.
I just don't see the plus side to starting out with ABX.
If it was something like having strep and you took the ABX and it more often then not worked that would be one thing but the nature of lyme its ablity to hide or transform doesn't seem like the way to go unless everything else fails. The side effects aren't great either.
I don't know maybe I am deluding myself But, it doesn't sound as if ABX has been so helpful for that many people here.
That said, I am asking because I respect what others have learned from thier experience.
I will lose my health insurance in a couple of months so ABX will not be much of an option if they are pricey.
also, not sure how i managed to post this twice sorry, does anyone know how to remove? Thanks
Posts: 161 | From sonoma county | Registered: May 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Minerva,
Dr. K. is one of the most respected LLMDs in the country. He believes as do I, that everyone who has Lyme disease has parasites and worms.
He treats the parasites and worms first from largest to smallest and then treats the co-infections. You can get more info from
There are some terrific alternatives that you can do that are long lasting, and very safe and that work on a deep cellular level to get at all of these infections. A lot of people treat themselves without the assistance of an LLMD. I speak from my own personal experience.
Wishing you well,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Hoosiers51
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You could try them in a non-traditional way, like maybe just pulse Ceftin 6 weeks on, 6 off....if you are also using natural remedies with it.
There are a few members here who buy antibiotics from reputable online sites, or go to buy them in Mexico. Some antibiotics are cheaper than supplements. Amoxicillin I have taken in high doses on it's own (it is one of the few that is safe in high doses) and done very well on. And Amox is dirt cheap, and a great lyme drug!
Another one that I bet would be okay to use alone is Bactrim DS. That might be a little more expensive online...not sure. My guess would be that Ceftin or Omnicef are not expensive online. Of course you would buy generics since they are cheaper.
Some people will say, "what about cysts?" but if you are dealing with natural herbs, my guess is the same problem might come up.
So I guess my point is that you don't have to use the drugs in a traditional way that many on here do. You could rotate them with other things or pulse them.
I think it is worth a shot at least. I would not leave that option out. Some of the best success I have seen is not using antibiotics 3 or 4 at a time, but just using one or two that I know I can handle.
Even with Rife, don't they say you should be on abx too? Not sure because I have not looked into Rife much.
I am not trying to change your mind, I just think it would be a shame to not at least dabble in antibiotics to see if they help you.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Also metal detox (fillings removed), build health with diet/juicing/exercise/sunshine.
Be sure detox is working well.
At some point, Bionic is great for the borrelia.
I like Buhner's herbs and recommend his book.
I drink Fever-Tree tonic every day and it helps with the babs, but my babs load was beat down with Mepron first ... not cured with Mepron, but beat down.
Just some ideas off the top of my head. I'd really read Dr. K's approach. He does it as naturally as possible.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Gaal, thanks for the Dr.K web been wondering who this human was that so many refer to. I looked at his site years ago when thinking about doing injections for my spine.
You are an inspiration for parasite cleanses. Appreciate what you have shared. You have been through a lot. I was disapointed the salt/c was not for me. I know a couple of people who feel saved by it.
I have been considering taking out my fillings out bit worried about it...even if I have only 4 tiny ones. Someone said on the AI thread that its best to get your body recognizing heavy metals before you send them out in the body futher. Made me think , like many hear I also have detox issues and there is also the cost of someone doing it right.
I think Dr. K believes you take fillings out before doing anything else. I will need to go back and re-read his site.
I will consider the possiblity of doing ABX Hoosier. Thanks for the info about getting ABX else where.
It sounds as if you have found a way for them to help without getting really sick. I hope that is so.
I have tried so many things before my lyme diagnosis its daunting to start over. I have lost my old disapline and hope guess that is why I am finally here.
I do have detox issues. We did a modified test for methylation so I have to be smart with that as well. I am taking the right folic acid and B12. I may add the rest and my doctor wants to start me on nebulized glutathoine.
I am hedging toward a parasite clease like the Huma then maybe AI then lyme/co next.
I will keep educating myself and keep my mind and spirit open. Thanks again
Posts: 161 | From sonoma county | Registered: May 2009
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glm1111
Frequent Contributor (5K+ posts)
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posted
Minerva,
If you do a parasite cleanse keep in mind it is not just a one shot deal. Humaworm has a nice program and they give you the order in which to do them Check out "other cleansers" They also have specific herbs for Lyme and herbs that address pain.
Also six has had success with Enula. These parasites are not easy to get rid of and you have to also keep in mind they have layed eggs and larva. It can take several yrs and the key is to be persistent.
Good Luck and be well,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Right, the enula got rid of tons of roundworms for me. Humaworm takes care of other parasites, but never saw a roundworm with Humaworm.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Where do you buy an enula supplement?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I guess the equation is a 3 folded one, according to dr. K.
1- kill parasites, bacteries, viruses whatever that are causing you bad symptoms. There's an order for that according to dr. K, from bigger to smaller, so start with parasites and don't forget the brain.
If you add the borrelia treatment for the Bionic at start, you may get borrelia back again if bigger parasites are not treated (and I believe, toxins as they do hide in heavy metals pockets too, in my opinion).
Then go after the other smaller parasites/ pathogens. I only used natural remedies, but some prefer a mixed approach.
The Bionic or photon therapies with nosodes is a great instrument to start and will give a GREAT advantage compared to most other killers, in my opinion.
But there's also rife when the photons fail and herbs, or Saunum homeopathics. Photons are by far the most potent killers when coupled with nosodes in my experience.
I was great fan of Buhner before I did photons, but ANY combination of herbs or Cowden tinctures now look like a child's toy compared to what photons + nosodes did for me in relation to borrelia... Other pathogens can react though differently with photons / nosodes, sometimes less successfully than borrelia.
2- detox, specially from heavy metals. So start with taking the awful amalgams off, treat root canals/ wisdom teeth the way you think is best, do the AI for helping your body to detox and recognize toxins. Some are doing the KPU too.
Support the killing item above with detox agents, keep rotating these, attention to ALL detox organs.
There's usually more to detox, but in my experience, heavy metal detox is by far the worst of all, the longest, the most difficult and tricky.
For me, this item 2 was always the most difficult, much more than number 1, killing. This item 2 is THE item that will make your life being hell (loads of herxes from killing) or your life looks next to normal (little pathogen symptom due to right killers + no toxin build up from die off), so your days can look almost normal if you get the right cleansers and take them many times a day.
3- treat your psychological load with the best guns you can find. I like the MFT and PK from dr. K. but some people get some good results with EFT or other techniques. This item looks difficult, but it is not. The key is find a good practioner to help you, who does energetic tests.
If you treat only item number 1, number 2 and 3 will catch you back. Same for the other items, dr. K. believes there's a sort of balance in the 3 items above.
The bigger your toxic load, the bigger the load of pathogens and same for psycho load. If you treat only one item, the others will come back in revenge as soon as you stop treating! I guess this is valid for chronic sufferers, not much for acute sufferers though.
This is just my opinion, of course.
Posts: 6199 | From Brussels | Registered: Oct 2007
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-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Thanks Six. Brussells, all this talk about emotional loads/pyschological load. I've never heard of any reputable LLMD except Dr. K who even discusses anything like this in their Lyme protocol. It's perplexing.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Humaworm takes care of other parasites, but never saw a roundworm with Humaworm.
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