posted
Working with a lady with a number of late stage symptoms of Lyme and Bartonella.
At the doctor's last week, they checked her reflexes and both knees and elbows had extremely strong reactions. She said she almost kicked the nurse. Has anyone ever heard of this in a person with Tick-Borne Diseases? It's a new one for me.
Any info would be appreciated!!
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
Thank you so much, lea!! All I could figure was neuro stuff must be out of whack. Appreciate your quick response.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Haha...I kicked Dr. H right in the leg when he tested my reflexes last fall. We both said sorry at the same time!
Interesting about Bart... didn't know that, maybe that's another reason why he highly suspected Bart, that and my inability to sit still due to massive anxiety.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Oh, yes. Common with neuroborreliosis to have a heightened reaction. It's interested to ear that Bartonella may be the connecter, too. By now, you probably know that many lyme patients carry several different tick-borne infections and it's hard to figure out what is causing what.
My body has even flown off a chair at the slightest tap on the shoulder - or a sound or flash. (I also go into full seizures from sensory stuff but it sounds like that is beyond the experiences of the lady with whom you work.)
Magnesium and fish oil are essential but, ultimately, the deep infection(s) need to be treated adequately. Liver support, too, if vital as some heightened reactions are due to too many toxins from lyme.
Adrenal function is also likely connected as with the damage to the HPA axis, lyme patients are frequently extremely sensitive to ANY stimuli.
This woman likely does better in quiet environments and also those not with harsh lighting. Fluorescent lights are probably very hard on her and can contribute to over-active nervous system(s), too.
In addition, scent-free and chemical-free environments would be best for her. Anything that stresses one sense will add to the total body stress, especially for lyme patients.
I assume she is not consuming any product that contains aspartame/Nutrasweet/Equal. Have her even check labels on any mints or gum - even toothpaste. Even a trace of this will make the reaction stuff much worse (it even triggers seizures in me).
posted
Keebler, I'm "working with this lady" to try to show that it's possible, or probable, that her symptoms are from TBDs. Her mother and I have discussed it numerous times, but when they mention Lyme to the doctors, they brush it off.
Basically, I guess you could say I'm trying to help them "build a case" to show that this needs to be checked out.
Her worst symptoms are deteriorating vision (can't drive now) and pretty severe arthritis.
No medical background here, but based on what I've learned with my family's experiences, I strongly feel that she has Lyme and Bartonella. The strong reflexes were perplexing to me, but the responses here point to Bartonella and LD.
Thanks to each of you for your input.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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cbb,
I'm glad she has someone like you. Hope you find just the right article or film to show her - and it'd be so great if she would see a good doctor - but we need so many more of them.
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I have this. I don't think you can blame it on any particular infection, it's just a hyperactive CNS.
Posts: 3528 | From US | Registered: Apr 2007
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quote:Originally posted by CD57: I have this. I don't think you can blame it on any particular infection, it's just a hyperactive CNS.
Same symptoms here. I have been told by more than one LLMD that it's hard to assign such neuro symptoms to any particular TBD.
Posts: 408 | From California | Registered: Apr 2008
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