Topic: POTS & Dysautonomia are just forms of Lyme Right ?
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
I had a pos. Tilt Table test and I have also been told I have Dysautonomia.
Well, the two are great for my disability claim as this is how I collect now, but I am pretty certain these two conditions are nothing more than Lyme symptoms.
It's no different than if someone told you that you have CFS. We all know this is Lyme too.
I think some are getting confused as to what is what. I just want to be on the same page as everyone.
Stiff neck = meningitis, but if you can touch your chin to your chest and shoulder to shoulder, than it's not a true meningitis, at least by ER standards.
Chills would be a sign of hypothyroid perhaps, but most of us have normal thyroid but have dysregulated body temps.
Some of us get Tremors and we say it's part of Lyme, but one could say it's the beginning of Parkinsons.
We get weak in the legs which is similar to MS, but we know we don't have MS.
BTW, when I was told I had POTS, my BP did drop during the test and for a while after the diagnosis. But after continuing to Rife and on the Salt/C protocol, I can now stand and only get tachycardia. My BP stays relatively normal and no longer drops. In addition, the HR jumps from 70 to 170 are more like 70 to 110 now. So, my POTS seems to be clearing.
It has been suggested in many threads that MS, CFS, and even perhaps Parkinsons is nothing more than Lyme gone wild and misdiagnosed.
So isn't it safe to say that both "POTS" and "Dysautonomia" are nothing more than symptoms of Lyme ?
These are all CNS disturbances.
Someone, please correct me if I'm wrong or if you have a different viewpoint.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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sutherngrl
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Member # 16270
posted
Don't know if I agree totally. I think you could have MS or Parkinsons without Lyme being the cause. These are illnesses of unknown origin so Lyme could be the culprit but so could other bacterial or viral infections or even medications.
POTS and dysautonomia can be symptoms of LD; but could also be symptoms of other illnesses. I guess I just don't believe that "everything" has to be Lyme.
I think you have to take all your symptoms as a whole and see if they all relate to LD. If you have many LD symptoms then these probably are just a part of the whole picture of LD. But these symptoms by themselves could be symptoms of many illnesses.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Hoosiers51
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Member # 15759
posted
I saw one of the best dysautonomia physicians in the country. He said that many things can trigger POTS or dysautonomia.....Lyme, other infections, medications that make the condition worse, female monthly cycles, etc.
So you don't have to have Lyme to have the condition, but many people with Lyme unfortunately do have it.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I think there is more to dysautonomia than just lyme. It can be a chicken and egg issue, but I'm just about done treating the lyme bug & POTS persists
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
I think there is more to dysautonomia than just lyme. It can be a chicken and egg issue, but I'm just about done treating the lyme bug & POTS persists
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
Actually POTS is more about total adrenal exhaustion -- from any cause. Supplements to improve adrenal function will often improve the condition.
Extra salt is one treatment for POTS.
In some cases Lyme or other infections can actually attack the adrenal glands themselves or they can attack the hypothalamus or pituitary in the brain which are both involved in the feedback loop and regulate hormones.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Forgive me folks as I didn't mean to say every case of MS or Parkinsons, etc. is Lyme.
In my case, when I started treating my Lyme, I got these other things, meaning the POTS and Dysautonomia.
I was a clinical diagnosis, but also had 3 pos. bands from Igenix.
I Herx from Lyme frequencies on Rife and Salt/C, so it would appear in my case, the POTS and Dysautonomia are all secondary and part of my disease.
I guess I can't speak for everyone.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I understand what you were trying to say Twister. My dysautonomia started only after lyme infection. For me dysautonomia is due to lyme. This is my doctors opinion as well.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Note: TSH, which is the conventional standard right now, is behind the times.
Thyroid is a clinical dx just like lyme is.
My TSH and other #s are still "within normal limits".
No doctor, until my lyme doctor, bothered checking for thyroid antibodies.
and there they were. I have Hashimoto's. and cold body temperature along with it.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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