Topic: GOOD so far- but need 300 more Lyme patients to do survey!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Many have taken this survey already...
But, I just learned they still need 300 more patients so the data can be presented in its full glory at the upcoming IDSA Lyme Guideline Review Panel Hearing.
Please take a few minutes to complete this survey...
And then send this message to those you know who have Lyme disease and encourage them to complete it too.
If you've sent it out already, maybe you could send it out again as a reminder. Time is running out!
California Lyme Disease Association (CALDA) sponsored
Survey will send message from patients to IDSA* Lyme panel
Have you taken CALDA's new Lyme survey? If not, click here to participate. CALDA CEO Lorraine Johnson will present the results at the IDSA's Lyme guidelines hearing in Washington DC on July 30. (The hearing will be streamed live over the internet. Stay tuned to the CALDA web site for details.)
The Infectious Diseases Society of America's (IDSA) new Lyme disease guidelines review panel will hold a one day hearing on July 30.
This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated.
Of the 18 speakers selected to testify, two are patient advocates, including me, Lorraine Johnson.
The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input.
Results of the survey will be included in my testimony to the IDSA panel.
Speak out and be heard. Help CALDA represent your views to the IDSA at the July 30 hearing.
posted
Oh good- you don't need an American postal code now. The first time I tried (a long time ago), it wouldn't accept my Canadian postal code.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Just posted this at LymeLand. Thanks for making it so easy for us who tend to procrastinate just a tad.
Posts: 7052 | From Colorado | Registered: Mar 2003
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bettyg
Unregistered
posted
i posted it on mdjunction lyme board; they have over 1000 members; most very ACTIVE !!
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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posted
done!
Posts: 566 | From West Coast | Registered: May 2008
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Done. Up to the top for others!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Any updates on how it is going??
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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I myself find that I often just go to General Support...not so much Activism or Medical...
just a thought... I do have them once in awhile...
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my done!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
Did mine when first posted. Is there any way one can see if it posted?
Posts: 108 | From maryland | Registered: Sep 2007
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
Done!
Posts: 1487 | From New England | Registered: Oct 2000
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
where is the survey-- I click on the link and it takes me to a page that says Click Here to take survey-
A new page opens up with a bunch of articals on lyme but No survey that I can find --jay-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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click on to the link above again... then ...click on to survey...
then go to......
June16th Listen Up! click on to full story....
then click survey again....
I hope that works.....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Done!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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