-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
dave,
thank you for the opportunity to send in my 2 cents.
Here is what i posted:
Most people do not get a rash. Lyme needs long term antibiotic treatment as it can only be eradicated during the reproductive
stage, which is every 3-4 weeks. There is no cure. There are not many accurate labs, Igenex in CA is one that test for 15 bands instead of 3-5. There are not many Lyme Literate Doctors.
My treatment lasted over 8 months and I did not get a diagnosis until 4 doctors and 7 months after infection.
My symptoms were stuttering, joint/muscle pain, confusion, loss of vision, irregular heartbeat, flu like symptoms, fever,
swollen lymph nodes, stiff neck, restless sleep, light and sound sensitivities, and list goes on and on. I am in remission, but still suffering from symptoms.
Lyme is a spirochete and related to syphilis. It can be deadly if left untreated.
There are also other bacteria that travel with the lyme bacteria called coinfections. They are also hard to diagnose.
We need better testing and more doctors that follow ILADS protocol. Someone please listen!!!
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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