posted
Hi everyone, I've been too sick to do anything here for quite some time, but ONE of the issues is really starting toi scare me.
My pulse shoots to 140 when I walk the 12 ft. from my bed to the kitchen, and it's so intense that pretty much all of the time I can hear it in my head.
I see my LLMD on the 8th & I'm thinking it may be time to look at the possibility of going to I.V. Therapy.
Remember, I was ill with Lyme and didn't know it for about 9yrs. and then plucked 2 ticks from my ankles that tested Lyme+ in June.
PLEASE tell me two things? 1)Is the pulse thing a sign of trouble?
2) Can anyone give me a clue what I.V. Therapy wiould cost?
I'm very grateful for your help, and I'm scared as heck.
-------------------- "SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:
pulses; i don't know; can you call the er and ask them?
iv therapy...check the post at top of medical about ROCEPHIN; the one with replies galore.
i believe i read 1 month ago it ranges from $1 - $4,000/month plus supplies !!
hopefully, that link has more specific info since i've never been on it ok. good night and best wishes hugs/kisses
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
The high pulse could be related to many things. Best to call your doctor. If you are in treatment, be sure to call your LLMD and let them know.
I just got a quote yesterday and with a port - not counting the cost of the port itself - it is $25,000 a year for me. That is based on my treatment plan which could be different for you.
The cost can change (usually going up), depending on what you are taking.
My insurance company will only cover the first month. After that, it's all out of pocket.
If you are on disability through medicare, according to the home infusion company, they do not pay anything toward home infusion. You may be able to go to a clinic (if you can find anyone in your State who will do it), and get your infusions which may be covered by medicare.
I'm still researching and trying to figure out how to afford this.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I have/had both the tachycardia and pulse problems as well as the pounding in head. I have had that for 12+ years, so I know what you're going through. I was eventually put on a beta blocker to help control it, which has helped.
You might want to look into POTS or dysautonomia as that can cause a spike in the pulse rate/blood pressure when changing from a sitting position to standing/walking. AND POTS/dysautonomia is usually caused by an infection such as lyme or co-infections. Many people with lyme have POTS/dysautonomia.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Thank you SO much. This has both seriously eased my concerns and also raised new concerns. It's good to have an idea of where to go from here. I had never heard of POTS, but have struggled with orthostatic hypertension.
I've also had this infection for so long, never knowing what was causing my symptoms. It's not like Kaiser would ever break it to me.
I am so thankful for all of you helping me here. I thought this meant my heart was infected. I want to read your Lyme story.
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