seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Don't you just love the Lyrica commercial with the lady working at the bakery touting Lyrica? She says docs told her she has fibromyalgia (unknown overactive nerve issue).
Did that doc consider TBIs, other problems? These commercials are SO SO SO twisted and makes the public think it's a miracle for everyone. I know they help people at times. These pharmaceutcal companies sure make nice commercials.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
My aunt takes it.. She says "Thank God for this lyrica, it doesn't seem to do much but it's kept me from getting any worse" and I smack my face and just think... what the [email protected]^@??? She won't test for lyme though because her doctor tells her lyme doesn't exist but fibromyalgia does... yeah bacteria doesn't exist doc, but somehow magical crippling pain with no cause does exist... yeah these commercials can convince a lot of people.
Posts: 499 | From Indiana | Registered: Oct 2007
| IP: Logged |
I was in less pain while taking it, but I was so dizzy, I was walking into walls.
And so forgetful, I'd forget if I'd taken my pills within moments.
I was certainly in no shape to work in a bakery, and would not trust myself near an oven or any kitchen equipment!
Those ads also make me cringe.
I feel that it belittles the pain and plight of the situation. It makes it appear as though people with the symptoms of fibro could easily resume a normal life by taking that drug.
If only it were that easy.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
posted
My husband and son take Lyrica for pain and it works for them.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Okay, so Lyrica doesn't resolve the problem (what was the problem again?), but is a happy pill...gotta remember that.
On a more optimistic note, I did see an advertisement for lyme disease in a Fibromyalgia magazine.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I took Lyrica before and after Lyme diagnosis. Its almost like drinking alcohol all day. Of course it helps the pain. You just don't care as much.
I got tired of that feeling and finally got off the stuff. Now I just suffer through the pain; but I do sometimes think about taking it again.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Pryorka said "yeah bacteria doesn't exist doc, but somehow magical crippling pain with no known cause does".
I'm lovin it! Wish I could have thought of that when my GP said "we don't have LD in Mississippi".
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
losferwrds
Unregistered
posted
Chronic Lyme doesn't exist according to the IDSA, if someone gets relief from lyrica god bless em, everyone gives % of how they feel, do you honestly think your gonna get back to 100%, you have contracted essentially a venereal disease from a bug.
You can get close but you'll never be the same, the idsa isn't so far off about treating symptoms, ORAL ABX are not the cure.
I found out a co worker is lyme survivor, bell palsey,em rash, cdc positive, positive spinal tap, 5 months IV abx cured him in 1985
The problem is no one can justify the IV treatment unless they are extreme. The IDSA f'd us
IP: Logged |
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
You have to wonder what the point of marketing is when they give you a laundry list of side effects right on the air...
Many of these drug commercials are similar and they are all a little bizarre...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
| IP: Logged |
posted
My post earlier on this thread was emotionally based.
Just to clarify, I'm supportive of and happy for anyone who has found relief through Lyrica.
I just resent how blithe the commercials are.
In addition to the current one with the bakery woman, there is another one showing a mature women enjoying tea at a little outdoor cafe.
To me, it seems the ads have an undertone that "types" the afflicted. But I know I could be too emotionally wrapped up in it!
Again, my best wishes to those benefiting from this med!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I will clarify also. When I said of course it helps the pain.... I mean when you feel "drunk" then you just don't care as much. Lyrica did not rid me of pain....it only dulled it a little. It offered slight relief which at the time was better than nothing.
Is it amazing that they list all those awful side effects, yet doctors prescribe it like candy, and for long term; yet these same doctors are so concerned about the effects of long term antibiotic treatment.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
posted
I've been taking Lyrica for a long time now, since well before I was diagnosed.
My LLMD kept me on it.
At 75 mg/day, it doesn't work very well.
At 75mg/twice per day it really helps with my pain.
I definitely suffer much more when I don't take it.
I highly recommend lyme patients seek pain relief, even prescription pain relief.
We can't get better if we are beat down mentally by constant extreme pain.
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
75mg at night always gave me the best sleep-healing sleep-i've had since getting sick.
getting a llmd to prescribe it, not the drug itself, has been the problem i've seen.
Posts: 2505 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
posted
I took Gabapentin (Neurontin) for a long time before I was diagnosed. I was told I had fibro back then too. Lyrican and gabapentin work in similar way.
I have to say, initially, it made me groggy and dizzy, but that wore off after a while. It took about a month to build up enough to work but it was the best pain-management med I ever took. It works on nerve pain which seems to be my problem. It also seemed to stop the restless legs.
I DON"T like the commercials but the meds have their place. On Gabapentin, I took far less Ibuprofin, etc.
I don't take it any longer and a lot of my nerve pain and restless legs returned. But I haven't been as bad as I was back then.
-------------------- Sofi Posts: 150 | From Northern California | Registered: Jun 2009
| IP: Logged |
so had to finally stop could not function felt drugged
lyrica has antiseizure properties, and did help my seizure like activity
so i need to look further into the seizure thing
just my experience
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic