posted
I have had lyme for 15 years and my memory problems have increased to serious levels in the last 3 years. My memory was not good enough before, either but it was not as bad as it is now. I can't hold any action in m mind and I don't know what to say when I am face to face with people, I become silent. I can't remember names.. I live like a person who has dementia. ıs there anyone who had such serious memory problems and got well after medicine treatment? after how long time antibiotics using did the improvement start to show up? rochepin usage for 8 months did not do any effect on me. ( I did not have herx) I think either the bacterias were resisting to ceftriaxone or 2 grams rochephin per day was a really low dose for a person who is 105 kgs like me. I have been using 400 mg doxy, 500 mg azitro and 400 mg plaquenil for a month. I have had herx. I have had partial herx with mms, biophoton treatment but I have not improved. . From now on I am scared of not getting well from such serious memory disorder by using intensive and long period antibiotics usage. If there is someone who has experienced what I live and waken up from this nightmare, please write something.thank in advance . Ahmet
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Posts: 182 | From turkey | Registered: Jan 2008
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bettyg
Unregistered
posted
breaking this up to read; please do this in future ahmet; big thanks! hugs betty
quote:Originally posted by ahmet ozbek:
I have had lyme for 15 years and my memory problems have increased to serious levels in the last 3 years.
My memory was not good enough before, either but it was not as bad as it is now.
I can't hold any action in mind and I don't know what to say when I am face to face with people, I become silent.
I can't remember names.. I live like a person who has dementia.
is there anyone who had such serious memory problems and got well after medicine treatment?
after how long time antibiotics using did the improvement start to show up?
rochepin usage for 8 months did not do any effect on me. ( I did not have herx)
I think either the bacterias were resisting to ceftriaxone or 2 grams rochephin per day was a really low dose for a person who is 105 kgs like me.
I have been using 400 mg doxy, 500 mg azitro and 400 mg plaquenil for a month.
I have had herx. I have had partial herx with mms, biophoton treatment but I have not improved. .
From now on I am scared of not getting well from such serious memory disorder by using intensive and long period antibiotics usage.
If there is someone who has experienced what I live and waken up from this nightmare, please write something. thank in advance . Ahmet
ahmet, someone posted about ALZHEIMER'S disease and a NEW medication for this; please read that; you might gain some good information from there.
posted
My memory problems have been been beyond severe.
I forgot to pay my rent one month. Not only that, but I didn't realize I'd forgotten until the following month's rent was due and realized last month's rent was missing from the checkbook. Same day I remembered, I had a late notice in the mail.
Then more recently I switched my Medicare supplement plans, only I have absolutely no recollection of ever having picked up the phone, talked to a rep, filled out an application, etc... I woke up thinking I should be remembering something about my Medicare supp, but I couldn't remember what that something was, and nothing could be recalled.
I forget names now, things I need at the store, stories that my best friends tell me. I don't know what to tell you.
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posted
I had severe cognitive symptoms and they did go away with treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I am noticing that my brain dysfuntion can be down right scary. My brain fog did seem to improve during intensive treatment, but then I took a 3 month break from antibiotics and also took 3 weeks of steroids(long story). The brain stuff is back!
I was driving my car the other day and literally didn't know if I was driving in the correct lane or not. Its as though I forgot my right from my left. A feeling of great confusion came over me and I needed to pull over. I was in a complete state of panic.
I also understand about not being able to talk to people. I get started talking okay, but right in the middle of it, my mind might just go blank. Also my word recall is horrendous. My memory is practically non existant.
Brain fog has been one of the most scary parts of LD for me. I use to have a very good job, with big responsibilities. I had to think quick and I did it with no problem. There is no way I could even hold down a simple job now. I just feel like my life as I once knew it is gone.
On a more positive side, though, maybe brain fog is the last thing to go. Hopefully with more treatment the brain can restore to what it was before.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Wondering if the brain fog is a result of hypoperfusion that many of us have. Would it be worth doing a blood coagulation study, I wonder, see if hypercoagulation is an issue. Then consider doing something about it-enzymes, heparin, etc?
Not really recommending anything, just pondering.
A lot of us have this brain fog. Sometimes I do things or hear things and later have totally forgotten that it ever happened. Scary.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I have had terrible cognitive problems--all the ones listed. very scary. I'm getting much better. I do think lumbrokinase is a miracle supplement. It is expensive, but worth every penny (my opinion). It is a blood thinner and less scary than heparin. It has solved most of my digestive issues (swelling and pain in kidneys, liver and pancreas) and I had a nasty rash on my hand and feet that has disappeared in weeks with lumbrokinase and treatment.
Posts: 68 | From chicago, illinois | Registered: Jul 2009
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm not a doctor so please check anything that you take with your doctor.
Vinpocetine has been studied for use with alzheimers patients. Specifically, it is helpful in increasing blood flow to the brain.
1: Ideggyogy Sz. 2007 Jul 30;60(7-8):301-10.
[Investigation of the effect of vinpocetine on cerebral blood flow and cognitive functions][Article in Hungarian]
Valikovics A. Borsod-Aba�j-Zempl�n Megyei K�rh�z �s Egyetemi Oktat� K�rh�z, Neurol�gia-Toxikol�gia-Stroke Oszt�ly, Miskolc.
INTRODUCTION: Vinpocetine has been widely used in the treatment of ischaemic cerebrovascular diseases and dementias of vascular type.
Chronic cerebral hypoperfusion plays an important role in the development of certain types of dementia.
In consequence of complex mode of action vinpocetine plays a significant role in the improvement of cerebral hypoperfusion.
The symptoms of mild cognitive impairment considered as "predementia" are similar to those of dementia, although milder.
AIMS: The authors investigated the characteristics of the blood flow parameters of patients with ischemic stroke and mild cognitive impairment both in resting conditions or following chemical stimulus as well as they investigated the severity of mental deterioration in the two patient groups.
In a pilot study the authors examined the influence of 12-week long oral vinpocetine therapy on the blood flow parameters and cognitive functions in the two patient groups.
METHODS: The authors studied the blood flow velocity of a. cerebri media in resting conditions and after 30 sec of breath holding with transcranial Doppler before treatment and after a 12-week long oral vinpocetine treatment.
At the same time psychometric tests (MMSE, ADAS-Cog) were used in order to examine cognitive functions, while the general condition of the patients were scored by Clinical Global Impression (CGI) scale.
RESULTS: After a 12-week long oral vinpocetine treatment the increase of blood flow velocity in resting conditions compared to the baseline values was significant in the vascular group. The percent increase of mean velocity after the breath holding TCD test showed a significant increase compared to the baseline in both patient groups.
The authors found a significant improvement of cognitive functions after a 12-week long oral vinpocetine therapy using psychometric tests. The improvement was identical in both groups. The general condition of patients improved significantly according to both the investigator's and the patients' opinion; patients with mild cognitive impairment judged the improvement higher.
CONCLUSIONS: Vinpocetine improved the cerebrovascular reserve capacity in both patient groups and favourably influenced the cognitive status and general condition of patients with chronic hypoperfusion. The authors recommend the use of vinpocetine for the treatment of patients with mild cognitive impairment.
PMID: 17713111 [PubMed - indexed for MEDLINE]
Posts: 6286 | From Oregon | Registered: Jan 2006
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bettyg
Unregistered
posted
a quick, alzheimer's test for all of you i learned at iowa's yearly alzheimer's conference 16-20 yrs. ago.
CLOCK TEST ....
DON'T LOOK AT ANY CLOCKS/WATCHES!!
draw a circle, and then make a clock numbering it 1-12. you do NOT need to make the hands; just the numbers.
is it super small where you can't get the numbers inside?
are the numbers uniform ... meaning are they where they are supposed to be?
are their more numbers on one side of clock then the other.
if you are having problems doing this, please see a NEUROLOGIST for them to do more testing.
hope this helps some of you.
my late SIL died at age 40, yes 40, of EARLY onset AD 16 yrs. ago. she had it 8-14 yrs. and treated for SEVERE DEPRESSION.
now i think it was lyme since my brother/wife farmed with dad for 6-10 yrs. prior to her death.
picking up rocks in field; walking the beans, harvesting, mowing acres of grass, etc.
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Dear LOU - I have documented hypoperfusion to several areas of the brain (BEAM scan) but I do not have hypercoagulation. I had $1,500 worth of blood tests to make sure.
Just in case, I took nattokinase, and serrapeptase for many months with no changes. So, that is not always the issue. I wish it were, so we could all get rid of these scary symptoms. - - - - - - - - - - - - -
Dear BETTY - As a former Psychiatric Social Worker, I can assure you that severe untreated depression or Bipolar Disorder can actually cause a type of dementia all on it's own, and age is no factor.
I've personally seen people die of this in their 50's, esp. Bipolar folks who refuse treatment because they enjoy the manic part of their illness.
I am not saying it was not Lyme in your sister's case, only that it didn't necessarily have to be Lyme. I am very sorry for the early loss of your sister. - - - - - - - - -- - - -
Dear AHMET - I have not had any antibiotics for my Lyme due to drug allergies, but Samento, an herbal treatment for Lyme, slowed down progression of my brain problems for several years, so ABX should do even better.
Recently, having to take a large amt. of cortisone for an anaphylactic bug sting reaction has made my brain function much worse. I am even having episodes of missing time and am afraid to drive.
I have asked my doctor about the dementia issue and been told that if I realize I have memory problems it is not dementia.
True dementia patients often angrily deny they have a problem, and this is exactly what happened with my MIL when she got Alzheimer's.
Another way the doctor described it to me was that if you can't find your keys, that is normal, but if you forget what your keys are for, that's dementia.
Most of what I've read by LLMD's says they think these problems are reversible with treatment, so please do not give up hope.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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bettyg
Unregistered
posted
klutzo, thx for your comments based upon your former work experience on my sister-in-law! hugs
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lymeparfait
Unregistered
posted
Have you removed all your mercury amalgams and metal in the mouth?
Many get better with the fog once this is done and they begin to detox.
posted
I am on a one month free trial pack of NAMENDA.
It is for moderate to severe alzheimers disease.
I have read of off label uses of it for ms, migraines, depression, neuropathy and now me-lyme disease.
After two days, two doses, I noticed a dramatic improvement in my ability to read out loud. My reading ability was back to normal.
It has been four days, now that I've been taking it. I'm so used to lowering my standards that I don't do anything that requires memory anymore.
It will take more time and other people's input to see if this drug really will be worth continuing.
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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