13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
I have read local press and seen the TV interview with doc from the South County clinic.
I wouldn't go there, especially since there are other choices, I would prefer someone who treats aggressively and doesn't blame all my pain on fibromyalgia, says it's normal to have memory problems at age 50... There is lots of talk in the local Lyme community about it but no one I know has gone to the clinic.
Dr. Silverblatt, of the clinic and his wife had Lyme and co-infections and were treated with IV a few years ago. So they understand treatment options but are firm on not overtreating and on looking for problems other than Lyme.
The clinic is only open on Fridays, by referral.
Posts: 79 | From Rhode Island | Registered: Jun 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Louis you live in White Plains, in an area where there are lots of good LLMDS in both NY and CT.
Why do you want to go to a lyme clinic? Do you need help finding a good LLMD? If so, PM me.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Louis I can't answer your PM. Your mail box is full.
Please empty it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Hi Louis,
It still says it's full. Make sure your inbox is empty. If it is, contact the moderator for help.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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