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» LymeNet Flash » Questions and Discussion » Medical Questions » Do I still have Lyme?

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Author Topic: Do I still have Lyme?
Hoops123
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I tested equivocal for Lyme in Nov 08 and did 30 days of treatment. I was now retested and await guidance from my doctor and the western blot. The latest lyme elisa shows 1.38 (high) for Lyme IgG/IgM Ab but negative for Lyme Disease Ab Quant, IgM. Is this Chronic lyme, my body producing more antibodies from a Lyme infection ??? Had lymerix vaccing in 99/00

Thanks

Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Starfall1969
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I would venture that if you had Lyme, it's a good chance you still have Lyme; 30 days of treatment isn't enough.

I also have no faith in any vaccine; I have heard nothing good about them.

Have you seen an LLMD, or just your regular doctor? If you don't have an LLMD, I would go over to Seeking a Doctor and post there.

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
TF
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Per Dr. Joseph Burrascano, the guru of lyme disease in this country and the world, use of the elisa test makes no sense in the case of lyme disease. Here's what he says:

The suggestion that two-tiered testing, utilizing an ELISA as a screening tool, followed, if positive, by a confirmatory western blot, is illogical in this illness. The ELISA is not sensitive enough to serve as an adequate screen, and there are many patients with Lyme who test negative by ELISA yet have fully diagnostic western blots. I therefore recommend against using the ELISA. Order IgM and IgG western blots- but be aware that in late disease there may be repeatedly peaking IgM's and therefore a reactive IgM may not differentiate early from late disease, but it does suggest an active infection. When late cases of LB are seronegative, 36% will transiently become seropositive at the completion of successful therapy. (p. 7)

His lyme disease treatment guidelines are found here:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

I suggest you read and study this document to learn about the disease. Lyme is diagnosed based on symptoms since no test is reliable enough to make the diagnosis. Read it in Burrascano, p.7 where he says: "Lyme Borreliosis (LB) is diagnosed clinically, as no currently available test, no matter the source or type, is definitive in ruling in or ruling out infection with these pathogens, or whether these infections are responsible for the patient's symptoms."

So, go to pages 9-10 in the document and see how many symptoms you have.

Then, read about the complexities of lyme and its coinfections and what good lyme treatment looks like.

Then, find a good lyme doctor and get your diagnosis from him.

Generally, 30 days of meds will not cure lyme--unless you got treated within a week or so of the bite and the doc who treated you gave you medications that cover lyme disease, babesiosis, bartonella, and ehrlichia (all the lyme coinfections). I doubt that happened in your case because only a lyme doc knows how to do this.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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What kind of symptoms are you having?

--------------------
sixgoofykids.blogspot.com

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gemofnj
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geo,

you didnt really mention any symptoms. are you sick?

30 days of treatment is way under treatment.

the vaccine i thought could also induce lyme. did you have a rash, find a tick, or sick with lyme symptoms?

http://www.lymediseaseresource.com/BurrGuide2008.pdf

i would venture to say that if you are having symptoms you need to get to a lyme literate doctor as soon as possible for an evaluation.

he will also consider coinfections, which are organisms that travel with the lyme bacteria. coinfections can also complicate treatment.

usually the treatment lasts 3 months past ANY symptoms, and then you are considered in 'remission.'

good luck!

Posts: 1127 | From atlantic city, nj | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Hoops123
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Symptoms are essentially joint and muscle related. Mostly knee and toe pain, had plantar fascitis and have some muscle weakness. Also some fatigue and forgetfulness. Did not have the rash and not feeling sick/ill - more joint related issues. I have seen my regular doc, an ID doc and a rheumatologist. All believe in standard treatment. Looking for an LLMD in central NJ

Thank you

Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
   

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