tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I know Lyme is every 4 wks. or so but I've been noticing that I'm very sore all over every 2 wks. or so. Most recently we've suspected Bart with me. Does Bart follow this cycle? How about Babesia? How often to each of those flare? Thanks!
Posts: 2541 | From Northeast | Registered: Jan 2008
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
HAD A NEIGHBOR WHO HAD THAT TOO...DOCS, HER - SHE WAS AN RN TOO - AND ME - BAFFLED. WE ALL TRIED TO FIGURE IT OUT.
ONLY 2 WEEK FLARES, THEN TOTALLY AND COMPLETELY OKAY...VERY STRANGE.
IF YOU FIGURE IT OUT, PLEASE PM ME AND I WILL PASS THE INFO ONTO HER.
WE LOOKED AT HORMONES AND EVEN NORMAL CELL DESTRUCTION TIMING.
VARIOUS CELLS ARE MADE AND USED UP = DESTROYED AT DIFFERENT TIMES.
WHEN PROTEINS ARE BROKEN DOWN = NH3 = TOXIC
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
I read somewhere that Babesia cycles every 2 weeks. Sorry I don't remember where I read it.
Posts: 677 | From Virginia | Registered: Sep 2002
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
FRIEND ONLY HAD A COUPLE OF DAYS - PRIMARILY EXTREME FATIGUE - OF SYMPTOMS EVERY 2 WEEKS.
OTHERWISE - EVERY OTHER DAY SHE WAS COMPLETELY (!)NORMAL.
SHE HAD ASCESS TO THE BEST DOCS IN THE UK AND USA...
WENT TO MANY.
MEDICAL MYSTERY - NOT SOLVED FOR HER.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
This is interesting. Because my white cell count rollercoasters in just about 2 week increments. I see a recommended LLMD next week, so hopefully we'll find out.
Posts: 40 | From NJ | Registered: Jun 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had 48 hours of sickness every week while treating babesiosis. My now famous lyme doc said that babs has a one week and two week cycle.
My 48 hours started every Friday evening and lifted every Sunday evening like clockwork. Otherwise, I was normal. Adding artimesinin to my meds cut the sick time way down--to hours instead of days--and made it milder.
Doc had me take the art to encompass the sick time. Took it all day Friday, Sat and Sun, always on an empty stomach.
Eventually under his treatment, the sick time shifted to a few hours every 2 weeks. Then, finally, no more flares.
So, this, to me explains Laura J's 2 week flares and Marnie's friends' 2 week flares.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I am assuming that you are a woman. It could be a worsening of symptoms due to hormonal shifts. I have this. Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Kathy,
Maybe that does have something to do w/it. Maybe at ovulation and pre-menstrual.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
That could be true, about the cycling. But I don't think that would have anything to do with my elevated white cells.
Posts: 40 | From NJ | Registered: Jun 2009
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posted
Dear laura j, I have similar symptom flares. My usual menstrual cycle bothers it. These symptoms are miserable! It makes my breasts hurt and lymph nodes, as well as causes stomach cramps and nausea similar to morning sickness. I have had this for a years.
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