Its just I want to know what to expect.
IP: Logged |
bettyg
Unregistered
posted
welcome veronica
please edit subject line and show 23 month old daughter....that will draw parents with toddler's attention quickly ok.
just click on pencil, 3rd box to right of your name to open up subject line and text.
in my welcome letter, print off the link of CHILDREN/ADULTS DOSAGES/MEDS ... that will explain about meds for children ok.
take that to your dr.; they can make a copy of it there; you keep the original ok.
i'm not a parent with lyme kids, so i can't offer any more info.
do read the HERXING REACTIONS link i showed also in my welcome letter to you ok. perhaps parents have discussed kids there; can't remember!
best wishes; we are happy to share info with you.
go to treepatrol's newbie links shown at bottom of my post; look for KIDS info there; he's worked hard to organize this large amount of info. hugs/kisses
IP: Logged |
Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
dear, Veronica, you just edit your subject line and starting in the AM you will definetly
be getting all the parents on this post once they read that involves a sweet child, believe me, the highest number of responses from this site is always about a child.
Once you hear from other parents it will make you less stressed and you'll feel good to know that there are some excellent kids llmds. Your sweet little girl is going to be fine hon, you'll see.
You come back to our site for anything else you need--we love having you and daughter!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Liquid zithromax is what my children got.
They both treated for congenital Lyme for over 18 months.
One of mine also treated for babesia.
My daughter was very physically symptomatic.
My son had the more subjective symptoms such as a red pinna,
Difficulty breathing at birth, hole in his heart,
Being late for physical developmental milestones.
We treated until symptom free for 3 months.
Your child can beat this....especially being so young.
Sending you positive thoughts and prayers.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
julielynne4
Unregistered
posted
Three of my four children have positive tests and have congenital lyme. My youngest has not yet been tested.
They will all be treated, although at the moment the 2 of them with the most symptoms are on antibiotics. The rest are on supplements including cat's claw.
My 12 year old has been on Amox and currently Doxy, although he has an appt with the LLMD and she is going to change it.
My 5 year old has been on zithromax.
They have both experienced some herxing, physical and neurological.
My son's panic attacks have resurfaced with treatment, and my daughter's behavior has regressed significantly.
I have learned that children recover much more easily than adults, and your child is so young that I would definately have high hopes for bearing this rather quickly.
I agree with others that she should be treated...best of luck to you! J
IP: Logged |
posted
Dear Veronica, The diaper rash may be caused by yeast. Candida is common in people with Lyme. I have a huge amount of it. When you are on a lot of antibiotics, this tends to be an issue. That is why LLMDs will prescribe anti-fungals along with the other medications. We are so glad you joined our community, and hope to help in any way we can!
You are so lucky to find it now. My son was hospitalized with suspected cat scratch fever when he was just 23 months old. maybe that is a common time for it to appear.
We didn't get a confirmation of the Lyme or Bartonella until this winter, when I tested postive, and then he did as well.
He handles antibiotics like a champ. I order compounding meds from a pharmacy in New Jersey that ships them. He is on azith. No liquid, no fillers , just the drugs in ice cream. It is really okay.
I think that sensory issues and speech issues (my guy still stutters, but much less often with treatment) will clear up with treatment.
So much better to begin treatment now. How grateful she will be down the road when she realized what a great, brave mom you are.
dx in October of '08 bit (probably a reinfection) Oct of 1985 Possibly congenital Bart at the very least Mom of two congenital Lymies
Posts: 564 | From Tick Hell | Registered: Oct 2008
| IP: Logged |
You are so lucky to find it now. My son was hospitalized with suspected cat scratch fever when he was just 23 months old. maybe that is a common time for it to appear.
We didn't get a confirmation of the Lyme or Bartonella until this winter, when I tested postive, and then he did as well.
He handles antibiotics like a champ. I order compounding meds from a pharmacy in New Jersey that ships them. He is on azith. No liquid, no fillers , just the drugs in ice cream. It is really okay.
I think that sensory issues and speech issues (my guy still stutters, but much less often with treatment) will clear up with treatment.
So much better to begin treatment now. How grateful she will be down the road when she realized what a great, brave mom you are.
Jeanne
dx in October of '08 bit (probably a reinfection) Oct of 1985 Possibly congenital Bart at the very least Mom of two congenital Lymies
Posts: 564 | From Tick Hell | Registered: Oct 2008
| IP: Logged |
posted
Dear Veronica, You are so welcome! Your daughter will be treated as long as the physician feels she needs it. They will likely want to test for co-infections and such. Those do tend to determine the duration of treatment. As far as the probiotics go, I am not sure about dosage with babies. Once she has an LLMD, they will know what dosage to provide your daughter with.
Welcome - this site is a wonderful resource. I'm new here too and have learned alot. The search tool is very helpful when you are looking for a specific bit of information.
I tested positive for Lyme in June and saw my son's health issues in a whole new light - we had him tested and he is positive as well. We go to see his LLMD on the 31st too. His gp has put him on a hefty dose of amox 3x a day until we get to the LLMD. He is doing much better with his abx than I am!
I have heard that children treat much better than adults with Lyme. It's great that you caught it so early.
I have three other boys who were just tested the end of last week. I am waiting to hear about them as well as my husband.
When my 5 year old started his abx we started giving him probiotics too - he can't swallow a pill yet so I break open the capsule and mix it with yogurt - he takes it this way just fine. I remember doing this with all the boys when they were on abx and younger - but we only gave them half a capsule each day.
I'll be anxious to hear what your LLMD has to say as well - maybe we can swap notes after next Monday!
Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
| IP: Logged |
Veronica Baragona
Unregistered
posted
Thank you everyone!!!
Siciliano , I am part sicilian also.
thank you peacemamma
I hope to be speaking to all of the parents all the time. So Thanks for making your selves known ?
posted
My son was infected when he was 3 (almost 4).... Was misdiagnosed for 9 months until his knee blew up. Received the standard amoxicillin for 3 weeks.
Unfortunately, did not cure him as he became very symptomatic. (Worst symptom was visual disturbances/loss/hallucinations).
He has learning disabilities, he's almost 7 now. Has lots of problems with focus & is receiving help with reading, math and speech.
After years of Drs not wanting to or fearful of treating (though he still tested positive), we found our way to Dr. J.
He believes he's "fixable". Predicted length of treatment is year and a half. He takes zithro & omnicef.
Answer to your question, treat now... wish to heck someone had helped my son sooner. It's tough to watch your child struggle.
Best wishes. I hear children heal the best and most complete from this... believe.
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
| IP: Logged |
posted
Oh, and my son takes probiotics also, twice a day. I found some strawberry chewable ones. Besides that, he has the drinkable yogurts twice a day. So far, no gut issues.
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
![[Smile]](smile.gif)
![[hi]](graemlins/hi.gif)
dear, Veronica, you just edit your subject line and starting in the AM you will definetly ![[kiss]](graemlins/kissing.gif)
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic