posted
I live in austin. Have gave birth to 3 girls and I know they have lyme. Needing help on doctor that will treat them. I am in bad shape, every symptoms in the book, on my death bed. Trying to get info to save kids cause I know I'm not going to make it.
It's in my brain, spinal cord, and CNS. I've almost died 3 times. Nobody in texas "believes" in Chronic lyme. Please help me help my kids. I want to save them from this. (and my husband who is in denial.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I have sent you the children's LLMD list. Do you have a good lyme doctor? PM me, if you need help finding one.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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bettyg
Unregistered
posted
yes, poster has fantastic midwest llmd
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posted
Welcome and so sorry you are going through this. Please hang in there for you as well as your family.
Would your husband watch "under our skin" ?
There is also a great letter that was posted here that was written by a man whos daughter was sick with lyme and he didn't "get it" at first but really does now .....it is beautifully written maybe someone else knows where it is.
Maybe you can get him to read it or something else that strikes at home for you.
Seems his support would really help you . Sending you many good thoughts and blessings. You are not alone.
Posts: 161 | From sonoma county | Registered: May 2009
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posted
I would love a PM with this LLMD peds list.
And who is the fantastic Pediatric Midwest LLMD????
Posts: 564 | From Tick Hell | Registered: Oct 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Don't give up. Many have been bed ridden and come out of this. Prayers that God hold you up till you get the help you need.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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bettyg
Unregistered
posted
LYMEDAD'S LETTER TO FAMILIES OF LYME PATIENTS...OUTSTANDING! PRINT & GIVE TO FAMILY MEMBERS!!
lymedad Frequent Contributor Member # 8074 posted 20-04-2007 03:52 PM
Dear Family of a Lyme Disease patient,
I am writing this letter to all parents and family members who are witnessing their children, wife, son, father, aunt, uncle, cousin, etc. struggle with Lyme Disease.
I am one of you.
For more than 6 years my daughter has suffered through this ugly, dark disease.
She has experienced horrible migraines, severe joint & muscle pain, nausea, vomiting, extreme fatigue and loss of her ability to speak or think logically (these are just a few of her symptoms).
She has become unable to work. She has been forced to move back into our home at the age of 23 (she is now 29). She has virtually lost her 20's, one of the most productive and exciting time of her life.
We have taken her to every known medical specialist in southern California as well as three different General Practioners.
She has been diagnosed, at differing times, as having Chronic Fatigue Syndrome, Chronic Pain Syndrome, Fibromyalgia, Lupus, Psychosis, and MS (please notice that all of these are either syndromes or descriptions of symptoms; none of them are diseases).
For the first 4 years of her struggle, I was not a good parent, even though I thought I was.
My daughter didn't have any outward sign of her illness. She looked "normal". After many, many blood tests, MRIs, CAT Scans, x-rays, psychological tests; everything came back "normal".
I was, and sill am, one of the world's biggest cynics and skeptics (I'm originally from Missouri - so "Show-Me").
Surely if you are as sick as you say you are, there must be something that will show up in your blood tests or on x-rays.
You can't possibly be this ill and not have something tangible to show for your symptoms.
You're either just faking it or your lazy or it's psychosomatic or your trying avoid the real world.
Get off your lazy butt and get some exercise or get a real job or face up to life like the rest of us.
That's the way I approached her illness. It's time you took control of your illness and will yourself well.
I was so far off-base. It took an outstanding Lyme Literate Medical Doctor to show me the error in my approach with my daughter and to show me the reality of this disease.
My daughter and I have both suffered because of my ignorance (I'm not saying all of you are ignorant, I'm saying I was ignorant. To be ignorant simply means to be uninformed not stupid). I am still working to rebuild the closeness we had before Lyme.
Lyme Disease is real, the pain is real, the problem with logical thought is real, the lack of energy is real, etc., etc., etc.
If your child or family member has been diagnosed with Lyme Disease, they are just as sick, if not more, than someone who has a more "traditional" illness, like Lupus or Multiple Sclerosis or Cancer.
I've done all the study, I've been with my daughter at all of the appointments, I've watched the misery she's been through.
Hey they just can't help the way this disease treats them. It's not their fault.
We as family members need to be there to support them. They don't need our pity. They don't need our skepticism. They don't need our criticism.
They need our understanding.
If you as family members will take the time to study this disease, you'll see that it is real. The little buggers who have invaided their bodies are real and they are making our loved ones sick.
Please spend the time you currently spend trying to figure out why your loved one acts the way they do really studying the disease. There are volumes being written on the internet as well as new books being published everyday on this disease.
We can't possibly understand the way they feel, not unless we have the same bacteria in our bodies.
My daughter has a long way to go before she's back to where she was 6 years ago. She has a lot of work and pain to endure before she can get there.
She certainly doesn't need someone who claims to love her causing her any more pain than she has already.
Families. from one who has been in your shoes, please let them know you love them.
Let them know you're there to help them.
Let them know that there's no way you can possibly understand their pain, but that you wil try to understand their illness.
I think one of the most important things I've come to learn is that my daughter's disease may be God's way to teach me a lesson.
I'm not saying God gave my daughter Lyme Disease, but He may be using this disease to teach me how to love, how to be patient and how to be more understanding.
I wish you all good health and I hope that none of you will ever have to experience what our Lyme Disease loved ones are experiencing.
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
My husband, my three daughters, and myself all have chronic lyme/babesia.
In the beginning, I was completely bed ridden, and I have, in the past 7 years, been active, in bed again, and on and on.
But I have survived, my kids are surviving, and life is going on.
I have seen three different doctors that treat adults and children also, at a certain age.
One of them is in N.Y. One of them is in S.C. And one of them is in L.A. Depends on where you want to travel to.
P.M. me and I can give you more information. When my youngest was first diagnosed at 4 years old, she went to Dr. J in CT. Wonderful man y ou know.
Hang in there.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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massman
Unregistered
posted
Can refer you to a great Naturopathic doc in Austin. No drugs of course, but he has extensive worldwide experience for the last 30 years. I can PM his name, site etc.
I know and have worked with him personally as a health pro.
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