LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Please save my 3 kids. need docs and info.

 - UBBFriend: Email this page to someone!    
Author Topic: Please save my 3 kids. need docs and info.
MazzyStar
LymeNet Contributor
Member # 22017

Icon 1 posted      Profile for MazzyStar     Send New Private Message       Edit/Delete Post   Reply With Quote 
I live in austin. Have gave birth to 3 girls and I know they have lyme. Needing help on doctor that will treat them. I am in bad shape, every symptoms in the book, on my death bed. Trying to get info to save kids cause I know I'm not going to make it.

It's in my brain, spinal cord, and CNS. I've almost died 3 times. Nobody in texas "believes" in Chronic lyme.
Please help me help my kids. I want to save them from this. (and my husband who is in denial.

--------------------
Lyme, Babs, Ehrlichia


www.mommalyme.com

Posts: 276 | From Kansas | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

Icon 1 posted      Profile for Abxnomore     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have sent you the children's LLMD list. Do you have a good lyme doctor? PM me, if you need help finding one.
Posts: 5187 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
yes, poster has fantastic midwest llmd [Smile]
IP: Logged | Report this post to a Moderator
minerva
LymeNet Contributor
Member # 20410

Icon 1 posted      Profile for minerva     Send New Private Message       Edit/Delete Post   Reply With Quote 
Welcome and so sorry you are going through this. Please hang in there for you as well as your family.

Would your husband watch "under our skin" ?

There is also a great letter that was posted here that was written by a man whos daughter was sick with lyme and he didn't "get it" at first but really does now .....it is beautifully written maybe someone else knows where it is.

Maybe you can get him to read it or something else that strikes at home for you.

Seems his support would really help you .
Sending you many good thoughts and blessings. You are not alone.

Posts: 161 | From sonoma county | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
kellyjk4
LymeNet Contributor
Member # 19731

Icon 1 posted      Profile for kellyjk4     Send New Private Message       Edit/Delete Post   Reply With Quote 
Brandi- so sorry you are so sick and having such a hard time.

I've sent you a PM with my LLMD's name and telephone number, and another with one other possibility.

Please don't give up. Your children need you.

--------------------
Take care -kelly
---------------

Posts: 330 | From TX | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
imagine2
LymeNet Contributor
Member # 3136

Icon 1 posted      Profile for imagine2     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Brandi,
Sending you healing thoughts and prayers for you and your family.

Thinking about you!

Posts: 677 | From Virginia | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Brandi - you're just getting started - don't give up - medication can turn symptoms around -

The letter Minerva is referring to is Lymedad's letter. You can do a search for it:

Topic: an open letter to families with Lyme

Category: General questions

Date was 04/20/07 so leave date section as "any date"

Posts: 13069 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
peacemama
LymeNet Contributor
Member # 17666

Icon 1 posted      Profile for peacemama     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would love a PM with this LLMD peds list.

And who is the fantastic Pediatric Midwest LLMD????

Posts: 564 | From Tick Hell | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Don't give up. Many have been bed ridden and come out of this. Prayers that God hold you up till you get the help you need.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
LYMEDAD'S LETTER TO FAMILIES OF LYME PATIENTS...OUTSTANDING! PRINT & GIVE TO FAMILY MEMBERS!!


lymedad
Frequent Contributor
Member # 8074
posted 20-04-2007 03:52 PM


Dear Family of a Lyme Disease patient,

I am writing this letter to all parents and family members who are witnessing their children, wife, son, father, aunt, uncle, cousin, etc. struggle with Lyme Disease.

I am one of you.

For more than 6 years my daughter has suffered through this ugly, dark disease.

She has experienced horrible migraines, severe joint & muscle pain, nausea, vomiting, extreme fatigue and loss of her ability to speak or think logically (these are just a few of her symptoms).

She has become unable to work. She has been forced to move back into our home at the age of 23 (she is now 29). She has virtually lost her 20's, one of the most productive and exciting time of her life.

We have taken her to every known medical specialist in southern California as well as three different General Practioners.

She has been diagnosed, at differing times, as having Chronic Fatigue Syndrome, Chronic Pain Syndrome, Fibromyalgia, Lupus, Psychosis, and MS (please notice that all of these are either syndromes or descriptions of symptoms; none of them are diseases).

For the first 4 years of her struggle, I was not a good parent, even though I thought I was.

My daughter didn't have any outward sign of her illness. She looked "normal". After many, many blood tests, MRIs, CAT Scans, x-rays, psychological tests; everything came back "normal".

I was, and sill am, one of the world's biggest cynics and skeptics (I'm originally from Missouri - so "Show-Me").

Surely if you are as sick as you say you are, there must be something that will show up in your blood tests or on x-rays.

You can't possibly be this ill and not have something tangible to show for your symptoms.

You're either just faking it or your lazy or it's psychosomatic or your trying avoid the real world.

Get off your lazy butt and get some exercise or get a real job or face up to life like the rest of us.

That's the way I approached her illness. It's time you took control of your illness and will yourself well.

I was so far off-base. It took an outstanding Lyme Literate Medical Doctor to show me the error in my approach with my daughter and to show me the reality of this disease.

My daughter and I have both suffered because of my ignorance (I'm not saying all of you are ignorant, I'm saying I was ignorant. To be ignorant simply means to be uninformed not stupid). I am still working to rebuild the closeness we had before Lyme.

Lyme Disease is real, the pain is real, the problem with logical thought is real, the lack of energy is real, etc., etc., etc.

If your child or family member has been diagnosed with Lyme Disease, they are just as sick, if not more, than someone who has a more "traditional" illness, like Lupus or Multiple Sclerosis or Cancer.

I've done all the study, I've been with my daughter at all of the appointments, I've watched the misery she's been through.

Hey they just can't help the way this disease treats them. It's not their fault.

We as family members need to be there to support them. They don't need our pity. They don't need our skepticism. They don't need our criticism.

They need our understanding.

If you as family members will take the time to study this disease, you'll see that it is real. The little buggers who have invaided their bodies are real and they are making our loved ones sick.

Please spend the time you currently spend trying to figure out why your loved one acts the way they do really studying the disease. There are volumes being written on the internet as well as new books being published everyday on this disease.

We can't possibly understand the way they feel, not unless we have the same bacteria in our bodies.

My daughter has a long way to go before she's back to where she was 6 years ago. She has a lot of work and pain to endure before she can get there.

She certainly doesn't need someone who claims to love her causing her any more pain than she has already.

Families. from one who has been in your shoes, please let them know you love them.

Let them know you're there to help them.

Let them know that there's no way you can possibly understand their pain, but that you wil try to understand their illness.

I think one of the most important things I've come to learn is that my daughter's disease may be God's way to teach me a lesson.

I'm not saying God gave my daughter Lyme Disease, but He may be using this disease to teach me how to love, how to be patient and how to be more understanding.

I wish you all good health and I hope that none of you will ever have to experience what our Lyme Disease loved ones are experiencing.

Sincerely,

LymeDad

IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
My husband, my three daughters, and myself all have chronic lyme/babesia.

In the beginning, I was completely bed ridden, and I have, in the past 7 years, been active, in bed again, and on and on.

But I have survived, my kids are surviving, and life is going on.

I have seen three different doctors that treat adults and children also, at a certain age.

One of them is in N.Y. One of them is in S.C. And one of them is in L.A. Depends on where you want to travel to.

P.M. me and I can give you more information. When my youngest was first diagnosed at 4 years old, she went to Dr. J in CT. Wonderful man y ou know.

Hang in there.

Mary

Posts: 1015 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
massman
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Can refer you to a great Naturopathic doc in Austin. No drugs of course, but he has extensive worldwide experience for the last 30 years. I can PM his name, site etc.

I know and have worked with him personally as a health pro.

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.