posted
I am looking for some opinions/experiences with children who have transmitted lyme and coinfections through pregnancy or nursing.
My four children have Lyme (and likely Bart, possible other co's as well), and they have all gotten it from ME originally.
(I did not know I had Lyme, Bart, Ehrlic. and babs when I was pregnant)
Although my children SEEM healthy, they ALL have "issues" that I relate with Lyme. Their symptoms range from what I believe is Lyme-induced ADHD, to frequent headaches, chronic eaqr infections, and panic attacks.
Each child is different and I havce different concerns for each.
In your opinion and experience, should I have them al on antibitics aggressively, or should I just make sure they are getting their supplements and cat's claw?
posted
I'm with TC too. However, I just heard from another member that Dr. J is very booked up and follow-ups take 6 months or more.
If that is the case you should inquire about other LLMDs that are expert with kids.
James
Posts: 872 | From New York City | Registered: Jun 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have two children with congenital Lyme.
My LLMD has treated them.
I wouldn't have dared to treat them on my own.
I needed expert guidance especially as I was so sick at the time.
I would pursue an appointment with a LLMD for them asap.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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bettyg
Unregistered
posted
hi julie,
i don't know if you got this earlier, but i'm sending you a pm with KIDS LLMDS IN YOUR AREA to you; so check your profile above for it ok!!
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I have a hudson valley kid who was congenital and reinfected at 2.5 lyme babs. She was treated by dr J and is 100% today at almost 7. I also have another child born and breastfed when I was infected who's dealing with frequent ear infections. He has been tested and evaluated but not treated because he has no fatigue or joint pain and he's reaching all his milestones. He's 4.5 now.
I would recommend you keep a symptom diary and try to get an appointment scheduled eve if its in the future.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Hi Julie,
Sorry to hear your kids are having symptoms. I believe my 3 young kids could have been congenital as well (ear infections constantly and 2 week long colds) and then were infected with tick bites from age 2 to 3. Then the headaches and muscle aches and ADHD and insomnia and behavior symptoms started. I did not know I had lyme and did not know why they were so sick as infants, but now I know.
Since we started treatment with Dr. J over a year ago, many of their symptoms have disappeared. I would strongly recommend seeing an LLMD so you can get abx treatment started if he/she diagnoses lyme. It has made a world of difference with my children.
Dr. J does have a 6 month wait. I recently talked to another member here who took their 3 year old to see Dr. E in NJ until they could get in to see Dr. J. They were very happy with her and she was quite inexpensive compared to most LLMD's.
Best of luck to you,
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
Tincup gives the first of a series of good advise. As a matter of fact, Tincup gave me the same advice about my daughter in 2001.
I did not take her to an llmd though. I just dealt with all the issues. Now, she has symptoms that I am not able to handle, fix, or help. And neither could the many specialist I took her to over the past year.
I am still kicking myself for not at least seeking the input of an llmd back then. (Tincup, you can say you told me so!! )
I would seek the input of an llmd now,rather than later to rule out or rule in a tick born disease.
My daughter was recently diagnosed and on antibiotics, under the care of an excellent llmd. But she has a long road to recovery ahead of her.
All the best.
-------------------- I found my original identity! It has been a bit over 12 years...can't blame me for forgetting my password, right?!!
Member red (Member # 1886) Registered: 26 November, 2001 70 posts Posts: 164 | From NJ | Registered: Jan 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
We have a group on www.lymefriends.com for issues around congenital lyme, if you aren't already a member.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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